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cheeseypoof

My life after the passing of my wife - Cancer treatment. Doing well!!!

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3 minutes ago, cheeseypoof said:

Merry Christmas.  Thanks for asking!!!  ☺️

It went ok.  I really like the Dr.  She was very nice.  Came off as very caring and competent.  Apologized for the mix up over my appoint getting moved up without an explaination.  Gave my high five for my treatments beingveffective so far.  She didn’t have me fretting about the protein issue.  Explained the plan moving forward. 

I have another 24hr urine test to do next week.  If the protein levels drop below a given threshold I can go back in the Oral daily chemo pill, just at a reduced dosage.

If the protein is still above the threshold she’ll adjust some of my meds, change or add a med to address the issue.  She didn’t want to jump directly to that and limit her options moving forward if it didn’t work.

So I’m in a holding pattern until my next appointment/treatment on the 3rd.  I need to figure out the most convenient day to do the 24hr test before the 3rd.  Want to do it early enough so they have the results for my next appointment.

The more Drs I come in contact at UPenn and the Perelman Center (including while my wife was going through her liver issues) the more confident I am that I’m being treated at the right place.  There is a high degree of comfort I’m experiencing.

And that's so important, loving and trusting your team. My first oncologist was an old dude who used charts. No computer or tablets! He was insensitive. I asked if I'd lose my hair and he rubbed his bald head and said I have hairloss. 🙄 He only had my biopsy results even though I had mri too. He developed a whole treatment plan based on that. Mri found 2 more cm. He was leaning on the wall next to me so I was twisting my head to see him. That was the first and last visit. I went with a much better onc who is certified and does research as well. Paid cash. Now she's gone into research only. 😥 

Here's to a better and stable 2020 for you. Half the battle is your thinking and a great team! ❤🥂🍾

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I’m 9 immunotherapy infusions into my treatment and things seem to going ok.  All my blood work has looked good.  I’m tolerating the infusions very well.  In fact, if they are scheduled early enough in the day I go to work after.  Had elevated protein levels in my urine in December.  A concerning development for somebody with only one kidney.  

They suspected it was a function of the oral chemo pills I was taking.  Called it protein wasting.  The doctor took me off my daily oral chemo pill and retested my urine 3 weeks later.  Protein levels were still elevated but dropped to about half the previous result.  They restarted my daily oral chemo pill at a lower dose.  Interesting effect when I came of the chemo med.  I gained about 10-12 pounds in the space of those 3 weeks, although it was around the holidays.  Within about 2 weeks of restarting the chemo meds, I lost that same weight.  Not a weight loss plan I’d recommend.

I go for blood work, chest CT scan and abdomen/pelvis MRI’s on the 11th in preparation of my next treatment on the 14th.

Overall I generally feel pretty good.  Maybe a little more tired than usual.  I’m tolerating the combo therapy very well.  They LPN that works for my Oncologist is pleased with how well I’m doing, which was encouraging to hear.

Edited by cheeseypoof
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Very good news.  I'm with you on the wieght loss plan.  That sounds just a tad extreme.

Happy Valentine's Day and a belated Happy Groundhog Day.

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9 minutes ago, cheeseypoof said:

I’m 9 immunotherapy infusions into my treatment and things seem to going ok.  All my blood work has looked good.  I’m tolerating the infusions very well.  In fact, if they are scheduled early enough in the day I go to work after.  Had elevated protein levels in my urine in December.  A concerning development for somebody with only one kidney.  

They suspected it was a function of the oral chemo pills I was taking.  Called it protein wasting.  The doctor took me off my daily oral chemo pill and retested my urine 3 weeks later.  Protein levels were still elevated but dropped to about half the previous result.  They restarted my daily oral chemo pill at a lower dose.  Interesting effect when I came of the chemo med.  I gained about 10-12 pounds in the space of those 3 weeks, although it was around the holidays.  Within about 2 weeks of restarting the chemo meds, I lost that same weight.  Not a weight loss plan I’d recommend.

I go for blood work, chest CT scan and abdomen/pelvis MRI’s on the 11th in preparation of my next treatment on the 14th.

Overall I generally feel pretty good.  Maybe a little more tired than usual.  I’m tolerating the combo therapy very well.  They LPN that works for my Oncologist is pleased with how well I’m doing, which was encouraging to hear.

Awesome! It's amasing how much people can differ in side effects. My chemo wasn't as bad as I expected since everyone had scared me oh oh, they're giving you the red devil? That's what they call adriamycin and it really is red. But the maintenance meds kick my ### energy wise. Most days are an effort to do simple daily things. Most days calls for naps. Memory is iffy which I hate the most. But what can you do. Gotta keep trying and keep going. As we say on the cancer board, I'm in your pocket rooting you on! Xxx

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Hoping for the best for you. 

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Well mixed bag.  Blood work and the scans were good.  She was very pleased with the results. 💪🏻💪🏻

However, I’m still having an issue with elevated protein levels (protein wasting) in my urine.  My nurse practitioner took me off the oral chemo pill temporarily while she, the oncologist (was supposed to see him today but he was at a conference) and the nephrologist can consult and devise a plan of action.  They are supposed to get back to me Tuesday or Wednesday. 🤞🏻🙏🏻

I try not to complain because overall I’m doing well and generally feel good but it’s mentally exhausting.  I feel like a hamster on a wheel.  🤦🏼‍♂️🤷🏼‍♂️

Thank you all for the continued thoughts, prayers and positive vibes.  I truly appreciate it. ❤️☺️

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25 minutes ago, cheeseypoof said:

Well mixed bag.  Blood work and the scans were good.  She was very pleased with the results. 💪🏻💪🏻

However, I’m still having an issue with elevated protein levels (protein wasting) in my urine.  My nurse practitioner took me off the oral chemo pill temporarily while she, the oncologist (was supposed to see him today but he was at a conference) and the nephrologist can consult and devise a plan of action.  They are supposed to get back to me Tuesday or Wednesday. 🤞🏻🙏🏻

I try not to complain because overall I’m doing well and generally feel good but it’s mentally exhausting.  I feel like a hamster on a wheel.  🤦🏼‍♂️🤷🏼‍♂️

Thank you all for the continued thoughts, prayers and positive vibes.  I truly appreciate it. ❤️☺️

Glad to hear you're doing well and tests are good!. And it is exhausting when something is off and it takes more time to figure it out. I admire you. I'm not stage 4 yet but if I recur stage 4, I hope to be strong like you. Praying for a plan for next week. Meanwhile, happy valentine's day. May you feel all the love from us and from your loved ones! 🙏🏻❤Xxx

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7 minutes ago, CurlyNight said:

Glad to hear you're doing well and tests are good!. And it is exhausting when something is off and it takes more time to figure it out. I admire you. I'm not stage 4 yet but if I recur stage 4, I hope to be strong like you. Praying for a plan for next week. Meanwhile, happy valentine's day. May you feel all the love from us and from your loved ones! 🙏🏻❤Xxx

Right back at you, too.  May warm fuzzies come your way.

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10 minutes ago, CurlyNight said:

Glad to hear you're doing well and tests are good!. And it is exhausting when something is off and it takes more time to figure it out. I admire you. I'm not stage 4 yet but if I recur stage 4, I hope to be strong like you. Praying for a plan for next week. Meanwhile, happy valentine's day. May you feel all the love from us and from your loved ones! 🙏🏻❤Xxx

Thank you.  You’re not the first person to tell me I’m strong.  I had a very good role model to emulate in my wife as she went through her medical issues.  I don’t necessarily feel strong, I just see it as not having a choice but to do what I have to do.

Happy ❤️ Valentine’s Day to you as well.  Praying for all of us!!!

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14 minutes ago, cheeseypoof said:

Thank you.  You’re not the first person to tell me I’m strong.  I had a very good role model to emulate in my wife as she went through her medical issues.  I don’t necessarily feel strong, I just see it as not having a choice but to do what I have to do.

Happy ❤️ Valentine’s Day to you as well.  Praying for all of us!!!

Exactly. I never felt strong when people found out I'm doing cancer alone even though people would say wow. If I thought my family would have a positive effect on me I would have involved them. But my parents are full on high anxieties that they'd be calling me twice a day for the rest of my life asking if it/it's still remission. I'd lose my mind. But the benefit of being able to do it all by myself is I'm able to help others, especially those who are alone too. That's where I get my self esteem is by helping others, whatever it is, without expecting anything back. 

I'm praying my dad will get the it is what it is and out of the feelings of despair. He has motor neuron disease, primarily lateral sclerosis. It's a non fatal type of ALS that progresses very slow. Only voluntary muscles are affected. I can't imagine. Randall146 here is my hero on how he's handling it. For one's mental sake, the it is what it is is best when you don't have control over things. What else are you going to do? Fight to the end no matter what the diagnosis is. Just know that while people may not say anything, you are a role model and you could be changing their state of mind for the better. ❤

Edited by CurlyNight
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26 minutes ago, Mrs. Rannous said:

Right back at you, too.  May warm fuzzies come your way.

Thank you so much! I appreciate it. I am snuggled up with my furry pet! 😊

Edited by CurlyNight
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Ok so I heard back from the Ocologists office.  After oncology and Renal conferred, I’m back on the oral chemo pill.  Same dose.  I was off the chemo for a total of 4 days.  They also added in a diuretic.  I think the diuretic is to help flush the kidney.  

Renal moved my appointment up from May to early April.  I think if it was that concerning they would have wanted to see me immediately.  Maybe I’m just hoping.  🤷🏼‍♂️

 I repeat the 24 urine protein test next weekend prior to my next treatment on 3/6.  Overall I think it’s positive.  I’m feeling good about how I’m doing.

 

In other news, I have a brunch date tomorrow morning.  We connected on a dating app (Plenty of Fish).  We’ve chatted extensively all week.  She seems really nice and has been easy to talk with.  The conversation has been back and forth.  I’m really looking forward to this.

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Awesome to hear cheesey!  Keep the updates coming.

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14 minutes ago, cheeseypoof said:

Ok so I heard back from the Ocologists office.  After oncology and Renal conferred, I’m back on the oral chemo pill.  Same dose.  I was off the chemo for a total of 4 days.  They also added in a diuretic.  I think the diuretic is to help flush the kidney.  

Renal moved my appointment up from May to early April.  I think if it was that concerning they would have wanted to see me immediately.  Maybe I’m just hoping.  🤷🏼‍♂️

 I repeat the 24 urine protein test next weekend prior to my next treatment on 3/6.  Overall I think it’s positive.  I’m feeling good about how I’m doing.

 

In other news, I have a brunch date tomorrow morning.  We connected on a dating app (Plenty of Fish).  We’ve chatted extensively all week.  She seems really nice and has been easy to talk with.  The conversation has been back and forth.  I’m really looking forward to this.

Awesome! So happy for you! And for sure if something is concerning they work you in. I was being scheduled for March 7 for the gastro. When I mentioned what was happening, magically this Mon opened. All medical offices either save a spot ot two for emergencies or double book. Where I worked we did the latter. Have fun at brunch tomorrow. You deserve it! Xxx

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Appreciate the update and I hope you have a good time on your brunch!

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10 minutes ago, cheeseypoof said:

Date day.  Need you positive vibes!

Thanks,

Cheesey

Remember what I told you when we had The Talk: wear protection.

Seriously, enjoy and don't overthink it.

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2 hours ago, cheeseypoof said:

Date day.  Need you positive vibes!

Thanks,

Cheesey

Just be yourself and have fun!

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I thought it went very well.  She’s very nice. Intelligent. Soft spoken.  Attractive.  Conversation was good.  Talked about past relationships.  I’m actually very smitten.  A hug when we met and parted.  Unfortunately not a Colonel Jessup hug.  Lol

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2 minutes ago, cheeseypoof said:

I thought it went very well.  She’s very nice. Intelligent. Soft spoken.  Attractive.  Conversation was good.  Talked about past relationships.  I’m actually very smitten.  A hug when we met and parted.  Unfortunately not a Colonel Jessup hug.  Lol

Awesome! Imo the mistake people make is they get too excited and things move too fast for the other person. I truly believe best friends make not only the best friendships but the best partners if that's what you're looking for.

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16 minutes ago, CurlyNight said:

Awesome! Imo the mistake people make is they get too excited and things move too fast for the other person. I truly believe best friends make not only the best friendships but the best partners if that's what you're looking for.

I think you’re correct.  But patience is tough for me.  Lol

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1 minute ago, cheeseypoof said:

I think you’re correct.  But patience is tough for me.  Lol

Got to have it though. Enjoy the journey! 

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52 minutes ago, CurlyNight said:

Got to have it though. Enjoy the journey! 

I’m learning g.  Slowly as it may be.

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4 minutes ago, cheeseypoof said:

Date 2 agreed upon.  Date/time/location tbd.

I’ll take it!  Lol

Enjoy! And don't overthink it. Just have fun!

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Had a office visit with the Oncologist and a treatment today.  

They had the UPenn radiologists reread my latest CT and MRI scans (done at a non UPenn radiology center).  They compared the latest scans to my original scans, pre-surgery.  The lung modules were consistent.  No new nodules and they are all less than 5mm.  That’s a great indication the treatment is effective.  No other indications of spread into my abdomen/pelvis.

Urine protein issue is still there but we think we have it under control.  The levels in my last 24hr test were still elevated but significantly reduced from 3 weeks ago.  I follow up with Nephrology in early April.

The oncologist is very pleased with how effective treatment has been and how well I’m tolerating it.  We are staying the course with treatment.  Glad I started as soon as I did.  Still cognizant that the treatment isn’t curative and no idea what the future holds, but who really does.

Going to see an Endocrinologist about my type 2 diabetes.  My latest A1c was 5.8 but my glucose numbers have been a little wonky lately.  The diuretic I’m on has a side effect of raising blood sugar.  Also the immunotherapy drug I’m on can potentially  cause type 1 diabetes.  All that led me to decide to see the specialist to manage my type 2, instead of trying to do it myself.

Overall, I feel good.  Been consciously trying to eat better/less and been working in some cardio exercise.  Down 18 pounds since 1/1/20.

Still talking with the woman I had brunch with a couple of weeks ago.  We haven’t gone out again, yet, but we talk everyday.  Feeling optimistic, but cautious.  Doing my best to stay in the moment and just let it happen.

Thanks to everybody in the FFA for all of your continued support.

Much love.

Cheesey

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best friday update possible.

great to hear cheesey :thumbup:

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Date #2 going down tonight.  She knows the readers digest version of my medical issues and hasn’t bailed.  All signs seem to be positive.  Trying to stay in the moment and not get ahead of myself.

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9 minutes ago, cheeseypoof said:

Date #2 going down tonight.  She knows the readers digest version of my medical issues and hasn’t bailed.  All signs seem to be positive.  Trying to stay in the moment and not get ahead of myself.

boom.  have a blast cheesey

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12 minutes ago, cheeseypoof said:

Date #2 going down tonight.  She knows the readers digest version of my medical issues and hasn’t bailed.  All signs seem to be positive.  Trying to stay in the moment and not get ahead of myself.

Yes, must stay in the moment. Hard to do especially in the early stages of going out. Keep your mind on what a great friend she is. At the very least if she is, you don't want to lose that. Focus on friendship and possibly a great support person first. 

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Cheese, I know you know this but it makes me feel better saying to stay extra safe out there. 

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Went well.  Just dinner. Shared dessert.  Good conversation.  Still getting to know each other.  She’s definitely driving the pace but I’m ok with it.  I want to see where, if anywhere, this goes.  The more I talk to, and spend time with, her the more attractive she becomes.  I think she very pretty, but she’s also smart, funny, can laugh at herself, compassionate, thinks I’m handsome, etc, etc, etc.  lol. I’m quite smitten with her.

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1 minute ago, cheeseypoof said:

Went well.  Just dinner. Shared dessert.  Good conversation.  Still getting to know each other.  She’s definitely driving the pace but I’m ok with it.  I want to see where, if anywhere, this goes.  The more I talk to, and spend time with, her the more attractive she becomes.  I think she very pretty, but she’s also smart, funny, can laugh at herself, compassionate, thinks I’m handsome, etc, etc, etc.  lol. I’m quite smitten with her.

Slow roll. Let her drive this. Meanwhile continue enjoying the friendship!

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One thing I'll say from my own experience, which isn't uncommon. A guy can be near a dream. But it becomes a turn off if the guy starts getting ahead of where she feels it is. There have been guys where I'd be told wow, you're lucky. But when they weren't getting they are going too fast and were too excited, like wanting to be exclusive too early on in the getting to know you phase, suddenly this good looking dude becomes ugly. Be yourself yes, but don't put the horse before the cart. Those dudes would take steps back but by that time I wasn't interested in trying again with him, not even as friends. So not knowing how she is I give you this caution until you reallllllllllly know her and her preferences. 

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22 minutes ago, CurlyNight said:

One thing I'll say from my own experience, which isn't uncommon. A guy can be near a dream. But it becomes a turn off if the guy starts getting ahead of where she feels it is. There have been guys where I'd be told wow, you're lucky. But when they weren't getting they are going too fast and were too excited, like wanting to be exclusive too early on in the getting to know you phase, suddenly this good looking dude becomes ugly. Be yourself yes, but don't put the horse before the cart. Those dudes would take steps back but by that time I wasn't interested in trying again with him, not even as friends. So not knowing how she is I give you this caution until you reallllllllllly know her and her preferences. 

Doing my best.  Definitely more open to letting evolve naturally than I’ve done previously.  Not easy for me.

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19 minutes ago, cheeseypoof said:

Doing my best.  Definitely more open to letting evolve naturally than I’ve done previously.  Not easy for me.

Miss Curly is right.  These things need to mature like fuzzy, stinky cheese.

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16 hours ago, cheeseypoof said:

Date #2 going down tonight. 

 

9 hours ago, Mrs. Rannous said:

 ...like fuzzy, stinky cheese.

Watch that phraseology, young lady!

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Posted (edited)
23 hours ago, Steeler said:

 

Watch that phraseology, young lady!

Sorry.  Too much Food Network.  It went to my head.

Edited by Mrs. Rannous

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