This topic is right in my wheelhouse. Mom had Alzheimer's and passed away last August of a rare cancer at 82. It was awful, but it spared her the worst ravages of Alzheimer's. Even though she was losing her mind, she cared for my 89-year-old Dad, who has severe back pain issues and has had a stroke. His regular health is great, with the exception of some mild congestive heart failure. All his problems are pain and nuisances (like his prostate, which is roughly the size of a cruise ship). He has a condition called gastric dumping, in which the contents of his stomach will slip out into his intestine before it is fully digested. It is usually associated with people who have had any of the different types of gastric weight-loss surgeries, but can affect anyone. It's not dangerous, but apparently is very frightening and uncomfortable and he lives in fear of it occurring. Because of this, he has developed an insane diet regimen that he insists on keeping. It involves eating certain things at certain times of the day, like a single scrambled egg at 4:15 am. He also has cheesecake and Yoplait yogurt (no other brand is acceptable) at 8pm before bed. His caregiver must use the correct spoon or it isn't right and he will fuss. He eats oatmeal at 1:15 am, but not just your regular oatmeal, it must be made the correct way, with an absurd amount of milk. He lives at home and has 24-hour care with a sitter service and he refuses to go into a nursing home (he is too feeble for assisted living). One of the main reasons he won't go into a nursing home is that he fears he won't be able to maintain his routine or give him the amount of pain medication he requires. He is right, they will not accommodate such ridiculousness, so he is spending over $12,000 a month on his home care. After mom died, I spent 8 months staying with him five nights a week, to attempt to save money and to hopefully convince him to give up his routine or to just display some flexibility in case he fell or got sick and was forced into a nursing home. It didn't work, so to avoid further damaging my marriage, I quit spending nights with him and let him blow his money. He saved well and invested, so he still has some money left to do this for a while. But it will eventually dry up (he is too mean to die any time soon), and he will be forced into a nursing home on Medicaid and will have to use his house to pay it back. He would be in much better shape financially in a private-pay nursing home, using his long-term care insurance and renting his house but he is not ready. His mind is still good, so forcing him is not possible. They can't take him involuntarily.
Man, I just wrote a novel and I could go on, but you get the picture.