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Caring for our elderly parents (1 Viewer)

How old was your Mom when this started?  I realize everyone is different but just curious.  My stepfather is 77.
They think she had it for years before my father died.  Hers is kind of a stairs dementia, where things trigger it, not a sloping decline.  We really didn’t notice it until my father died - because the spouse subconsciously fills in for the other.  She was 80 when my father died, but the last three years we noticed more and more.  She is 87 now.

 
We did POA for that reason - we have discussed assisted living but my mother is adamant against it at the moment.  As I’m sure you and others can appreciate - you want to do what’s best while giving them dignity and let them have some level of control/say.  If things were worse I would push for it.  Right now I think it’s manageable.  Thanks.
Absolutely...roll with it while things are manageable.  We kept dad home for as long as we could.  Maybe even a little too long.  Just be attentive to mom's needs as well.  The 24/7 can take a mental and physical toll on the caregiver as the disease progresses.  With regard to the POA, realize that the feds will not recognize them.  So if there are things relating to Social Security and such to manage, plan for that.

 
OK... I admit I have not read all the posts...  but I also am experiencing this life event.  My F-in-Law is 91 and early stage dementia while 88 yo M-in-Law is very physically limited (polio survivor as part of it).  We suggested  "getting help", hiring a cleaning person, lawn care service, etc several years ago.  They just got them on board this past summer June 2021. 

We often asked "What do you want?" regarding this topic...  his response... "I want to be carried out of this house in a body bag.  I don't want to be a burden living with my children.  That's not fair."  So, we are trying to honor that.  

Things went downhill July 2021.  They now require full time "Live in Care".  $435/day for both (Greensboro, NC).  Service called Griswald.  Pretty happy with the people they have provided us.  We had 1 problem person and they took care of it immediately.  Almost $13K/month.  We go over about every 10 days (88 min drive) and my B-in-Law is of the opinion, "They are adults. Let them handle it".  He thinks they should handle it all themselves.  He just does not have time for them or just don't want to face it. He is about to retire himself so not sure (he is 62). 

Well, we did. or at least we tried....  He paid $5K for hearing aids that don't work; then paid a plumber $750 to replace a faucet (same model at Lowe's was $69).  Then forked out $2700 for Terminex to get rid of some mice under house (crawl space).   They did about $200 of carpentry work IMO.  

Now, we stagger staying /visiting.  Hot Water heater goes out. F-in-Law wants "exact same" style.  I oversee it and it's $1400.  Same service he used for Plumber....  just with me watching & engaged.  They are not safe from all the pilfering or panhandlers.  They gave $200 to a guy walking neighborhood claiming to be with some church looking for local support.  Nothing to show for it (tax receipt, etc).  

OK.  Assisted Living facilities are hard to gauge the value.  But most cost same as current "Live in home Care" service now.  We are interviewing more in February 2022.  Toured 2 already.  We are focusing on "her care arrangement" as we don't expect "him to leave the house".

We are meeting Lawyer for POA.  House is paid off.  We took his car keys.  We drive him in it occasionally.  He has "Retirement & Stocks" to cover both their expenses for almost 3 years. But it is costly.  We are of the opinion.. it's his money we spend it on his care.  It is not intended to be saved as an inheritance. 

 
Absolutely...roll with it while things are manageable.  We kept dad home for as long as we could.  Maybe even a little too long.  Just be attentive to mom's needs as well.  The 24/7 can take a mental and physical toll on the caregiver as the disease progresses.  With regard to the POA, realize that the feds will not recognize them.  So if there are things relating to Social Security and such to manage, plan for that.
I’m clueless - what do you do for Federal?

 
Did the doctor mention if the a polyp was cancerous or if there was an actual tumor?  And if there is a tumor did it breach the colon walls?  

I had colon cancer early in my 20's and was incredibly lucky that the tumor grew from the wall of my colon outward into the colon and not through the colon wall like typically happens.  This caused me to have symptoms that made me go to a doctor and get it diagnosed while also not giving it an opportunity to spread to the rest of my body.  I hope your mother is as lucky.


He said there is a 3cm lesion on the colon wall near the appendix. So not too big in his mind. He needs her to meet with a Colo-rectal surgical team I believe to do full imaging if the area. He didn't know if it was on the outside walls or spread to other organs. 

The colonoscopy had been ordered as my mom has become severely anemic over the past few months. 

That's awesome about your recovery!

 
We did POA for that reason - we have discussed assisted living but my mother is adamant against it at the moment.  As I’m sure you and others can appreciate - you want to do what’s best while giving them dignity and let them have some level of control/say.  If things were worse I would push for it.  Right now I think it’s manageable.  Thanks.
You might point out to her that moving might help him if he does it while he can participate in the choice and while he can learn his new environment.  

It might also help if you are able to find a nice, homelike place for him.  The one I was fortunate enough to find was not only near our house, but smelled like home.  It never smelled like cleaning fluid or medicine.  At mealtimes, it smelled like good food.  At Christmas, it smelled like wassail.  I know that sounds weird, but it really mattered.  No one wants to live in a hospital-smelling place.

Even if she doesn't want to move him yet, having all the ducks in a row might help her know that things are ready when he/she needs them.

 
Guessing three's a lot of us entering into this realm. I looked, but couldn't find a thread already. If there is one, please hit me with the HONDA emoji and I'll participate in the existing thread. 

My situation:

  • Mom is 81 years old and starting to enter into the phase where she won't be able to care for herself. Has still been driving and had a large degree of independence. Has been renting a room from a friend. Lives about 45 minutes away from me in Anacortes, WA. It's a small town on the Puget Sound with a largely retired community. She loves it there. Lots of friends in the area. 
  • We hit a new phase suddenly this past week when she fell down some stairs. Broke two toes and a hip. Can barely get up. Trouble caring for herself in ways I can't imagine. 
  • The hospital she was in tried to get her out the door as fast as humanly possible. She failed a cognitive test in the worst ways, and then a nurse tried to explain her medication procedures in the next few weeks. Watching the disconnect there between the two hospital employees was awful. 
  • Her income is just under $2000 a month from postal employee retirement. Recently packed away $50,000 into a CD for three years. Has a car and little to no other assets. Expenditures has been $600 a month rent and maintaining the car.
  • I'm learning a lot about Medicare A (she has this), Medicare B (no dice), and the possibilities of Medicaid. 
Not looking for immediate advice, but I know I will be having questions in the very near future. As I learn things I will share. If others have some specific advice going forward I'm all ears. 


I wish you the best as I am not there yet. 

Reading your post it struck me that Joe Biden is about the same age and Pelosi is actually older than your mom. A dose of reality about our leaders.

Good luck brother hoop.

 
I’m clueless - what do you do for Federal?
I had guardianship in Texas, which is all the paperwork they needed.  I was told that if I didn't have that I would have needed to prove the person medically unable to manage their own funds.  A letter from their primary care physician was necessary.  The POA will help the SSA in deciding if someone qualifies, but a POA does not prove medical imcompetence.  The SSA's site is very non-specific about this stuff.

 
I’m clueless - what do you do for Federal?
Not that you have to do anything, rather IF.  I had a financial mess to clean up with dad.  One of the things I wanted to do was to change accounts where his social security check was getting auto deposited.  The Social Security Administration did not care about my POA.  They would not acknowledge it.  I had some business relating to his army service as well.  That ended up easier than the SSA, but still required him to sign some documents personally.  So, if there are things you need to handle at the federal level, try to get to it while dad still is still able to function.

 
OK... I admit I have not read all the posts...  but I also am experiencing this life event.  My F-in-Law is 91 and early stage dementia while 88 yo M-in-Law is very physically limited (polio survivor as part of it).  We suggested  "getting help", hiring a cleaning person, lawn care service, etc several years ago.  They just got them on board this past summer June 2021. 

We often asked "What do you want?" regarding this topic...  his response... "I want to be carried out of this house in a body bag.  I don't want to be a burden living with my children.  That's not fair."  So, we are trying to honor that.  

Things went downhill July 2021.  They now require full time "Live in Care".  $435/day for both (Greensboro, NC).  Service called Griswald.  Pretty happy with the people they have provided us.  We had 1 problem person and they took care of it immediately.  Almost $13K/month.  We go over about every 10 days (88 min drive) and my B-in-Law is of the opinion, "They are adults. Let them handle it".  He thinks they should handle it all themselves.  He just does not have time for them or just don't want to face it. He is about to retire himself so not sure (he is 62). 

Well, we did. or at least we tried....  He paid $5K for hearing aids that don't work; then paid a plumber $750 to replace a faucet (same model at Lowe's was $69).  Then forked out $2700 for Terminex to get rid of some mice under house (crawl space).   They did about $200 of carpentry work IMO.  

Now, we stagger staying /visiting.  Hot Water heater goes out. F-in-Law wants "exact same" style.  I oversee it and it's $1400.  Same service he used for Plumber....  just with me watching & engaged.  They are not safe from all the pilfering or panhandlers.  They gave $200 to a guy walking neighborhood claiming to be with some church looking for local support.  Nothing to show for it (tax receipt, etc).  

OK.  Assisted Living facilities are hard to gauge the value.  But most cost same as current "Live in home Care" service now.  We are interviewing more in February 2022.  Toured 2 already.  We are focusing on "her care arrangement" as we don't expect "him to leave the house".

We are meeting Lawyer for POA.  House is paid off.  We took his car keys.  We drive him in it occasionally.  He has "Retirement & Stocks" to cover both their expenses for almost 3 years. But it is costly.  We are of the opinion.. it's his money we spend it on his care.  It is not intended to be saved as an inheritance. 
The perspective of "not wanting to be a burden" on the kids is noble, but sometimes they don't realize that it may be harder on their kids trying to help care for them at a distance.  I am fortunate to live only about 15 minutes away from my parents (mom still alive living on her own, dad deceased), and I also have 3 sisters within a 45 minute drive.   So we have been able to share some of the responsibilities. With regard to your brother-in-law, I hope he comes around.  There does come a point where they can't handle everything on their own. I wish you the best.

 
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My wife and I know that my MIL will come to live with us at some point in the near future.  She's 78 and lives a block to the street in a 1BR rental apt. This works for all of us as it gives us some distance but not too much.  She's mentally fine, maybe slower processing than she used to be, but no dementia.  She does have mobility issues and walks with a cane, even after 2 knee replacements.

Yesterday at saw a house in our neighborhood that could fit the 4 of us and her in it and still have enough space for 2 separate offices for my wife and I to work from home. 

But we really aren't in a place mentally to deal with her moving in with us.  Covid has really reduced her support network and many things are still closed, like her water aerobics. Plus, she's stopped driving since she got into a minor fenderbender pulling out of our garage and mistook the gas for the brake while in reverse. 

Are we prolonging the inevitable pain? Should we promote her living on her own, in her own space for as long as possible?  We are trying to wind down her assets via gifts to both of us (reducing her IRA) to make any future needs easier. But if she moved in with us, we could legitimately charge her rent which would speed up the transfer as well.

 
The Z Machine said:
Are we prolonging the inevitable pain? Should we promote her living on her own, in her own space for as long as possible? 
I would suggest talking with her about it and consulting with an elder care planner.  Get all those ducks in a row so you can relax with a plan in place.  A lot of us obviously didn't have that luxury.

 
At a nursing home the last few days. We moved my fiancé’s father here last night. He was officially admitted to hospice care today.

Just wanted to share how important it is to have a living will and to ensure your parents have one.  I am so grateful my girlfriend, her sister and her mom don’t have the burden of trying to decide what should be done.

Both my parents had Living Wills and Advance Directives. They each discussed those with us. Both 1-on-1 and, later the same year, collectively. Just to ensure there was no ambiguity or uncertainty. To relieve your spouse or children of that weight is pretty clutch.

Losing my mom (2011) was the hardest thing I’ve ever gone through. Her demise was sudden - just over 48 hours from her having a massive stroke until she passed. Mercifully, she was gone only 20-25 minutes after removal from life support.

Very different scenario with Big D (2016); my father battled Parkinson’s for almost 6 years. Over the final winter and at the end we were fortunate to have in home care and in home hospice.

Dad lived on top of a sand dune overlooking Lake Michigan; there were few things he enjoyed more than sitting in his living room, or on his deck, watching the sunset. We put his hospital bed in front of the back picture window. He watched his last sunset 9 days before he passed. Took a pic, texted it to me, and lost consciousness. That was, AFAIK, his last conscious moment.

Anyway…something to consider.

 
It's just as important to have wills and medical and financial Power of Attorney docs in place.  Having that stuff keeps other people (ie the courts) out of your business and makes it easier to focus on the family stuff.  Having to get guardianship is for the birds.

Also, thank goodness for hospice.

 
At a nursing home the last few days. We moved my fiancé’s father here last night. He was officially admitted to hospice care today.

Just wanted to share how important it is to have a living will and to ensure your parents have one.  I am so grateful my girlfriend, her sister and her mom don’t have the burden of trying to decide what should be done.

Both my parents had Living Wills and Advance Directives. They each discussed those with us. Both 1-on-1 and, later the same year, collectively. Just to ensure there was no ambiguity or uncertainty. To relieve your spouse or children of that weight is pretty clutch.

Losing my mom (2011) was the hardest thing I’ve ever gone through. Her demise was sudden - just over 48 hours from her having a massive stroke until she passed. Mercifully, she was gone only 20-25 minutes after removal from life support.

Very different scenario with Big D (2016); my father battled Parkinson’s for almost 6 years. Over the final winter and at the end we were fortunate to have in home care and in home hospice.

Dad lived on top of a sand dune overlooking Lake Michigan; there were few things he enjoyed more than sitting in his living room, or on his deck, watching the sunset. We put his hospital bed in front of the back picture window. He watched his last sunset 9 days before he passed. Took a pic, texted it to me, and lost consciousness. That was, AFAIK, his last conscious moment.

Anyway…something to consider.
what area of the west side?

 
Family (siblings, nieces & nephews) are around Grand Haven. Big D was north of Muskegon - Scenic Drive, just off River Road.
Nice area, haven’t been up there in a few years.  I have some friends in nearby Hart.  I’m down by Warren Dunes, love the dunes.

 
Nice area, haven’t been up there in a few years.  I have some friends in nearby Hart.  I’m down by Warren Dunes, love the dunes.
That’s about an hour south of where we boated (Douglas) for 20 years. I did a little work around St Joseph.

His Scenic Drive house was his retirement property, lived there his last 28 years. Plain Jane walkout ranch. 1400’ deep wooded lot, 100’ frontage on a 80’ bluff. Neighbors on either side were 20’ lower, so privacy was ideal. About 120 wooden stairs to the beach - viewing platform off to the side halfway down, with six permanent seats. Anyone who’s been around Lake Michigan you knows the setup - fairly common along Lakeshore Drive north of Holland.

______________

Off to the daily vigil soon. 10, maybe 15 days? End of life you is such a heavy thing.

My prospective FIL has not been able to speak for years. But before I proposed I respectfully asked permission to marry his daughter. My future MIL assured me he had a happy expression and therefore approved.

He’s actually been relatively alert the last couple days. His eyes follow me around the room whenever I come in. You’re creeping me out, Oppa.  :lol:

I never knew him when he was active but it’s pretty cool how many people have reached out or stopped by. He was an entrepreneur who taught golf and tennis to kids at the local club. Was an informal marriage counselor to many in his congregation. A mechanic/plumber to folks in his community who couldn’t afford it. He lived life generously.

Makes you think about legacy, ya know? Who will remember me? Who have I impacted in a positive manner without even being aware of it?

________________

Go Rams!

 
Moved my mom into an assisted living late in February. She ended up being really happy there. Was able to esh meals in the dining room with other ladies, make new friends, get involved in activities like hangman, etc.

She has surgery last Tuesday for colon cancer. Hadn't spread elsewhere. Discharged on Thursday back to assisted living. 

She passed in her sleep Friday night into Saturday. 

We'll never know exactly why, but the suspicion is a blod clot. 

Sucks.

She should have had more time there in the next chapter of her life.

 
Moved my mom into an assisted living late in February. She ended up being really happy there. Was able to esh meals in the dining room with other ladies, make new friends, get involved in activities like hangman, etc.

She has surgery last Tuesday for colon cancer. Hadn't spread elsewhere. Discharged on Thursday back to assisted living. 

She passed in her sleep Friday night into Saturday. 

We'll never know exactly why, but the suspicion is a blod clot. 

Sucks.

She should have had more time there in the next chapter of her life.
My condolences on your loss.

 
Moved my mom into an assisted living late in February. She ended up being really happy there. Was able to esh meals in the dining room with other ladies, make new friends, get involved in activities like hangman, etc.

She has surgery last Tuesday for colon cancer. Hadn't spread elsewhere. Discharged on Thursday back to assisted living. 

She passed in her sleep Friday night into Saturday. 

We'll never know exactly why, but the suspicion is a blod clot. 

Sucks.

She should have had more time there in the next chapter of her life.
I’m sorry for your loss

 
Just discovered this thread. I'll post more details about my situation at some point, but not yet, partly because I have a bunch of stuff to do tonight, and partly because I'm still sorting out a lot of feelings out regarding my parents. Quickie summary is that they are in their early 80s, have no major health crises and are financially stable (thank God) but Mom's memory is slowly slipping away. We're not sure yet if it's Alzheimer's (her mother had something similar, and while she was very forgetful and would often repeat herself, she lived to 100 and never suffered full-blown dementia) but it is tough to watch, and also tough to realize that my kids (11 and 6) will never really remember how full of energy she was when she was younger.

 
Just discovered this thread. I'll post more details about my situation at some point, but not yet, partly because I have a bunch of stuff to do tonight, and partly because I'm still sorting out a lot of feelings out regarding my parents. Quickie summary is that they are in their early 80s, have no major health crises and are financially stable (thank God) but Mom's memory is slowly slipping away. We're not sure yet if it's Alzheimer's (her mother had something similar, and while she was very forgetful and would often repeat herself, she lived to 100 and never suffered full-blown dementia) but it is tough to watch, and also tough to realize that my kids (11 and 6) will never really remember how full of energy she was when she was younger.
If you haven't taken her to see a doctor, please do so.  She could be having mini-strokes or something of that sort.  Treatment could make a difference.

 
Going through some tough times right now.  

My dad has been battling cancer (liver & lymph nodes) for a couple years now.  He also has a small tumor on his femur and somehow escaped breaking any bones during a recent fall in their bedroom.  He is only able to get around with a walker and there've been some debilitating side effects to the chemo treatment  (blood blisters, diarrhea) that have popped up recently.  He's getting by, but not only is it tough on him, but my 75-year-old mom has to deal with all of it.  The doctor appointments, the research, the note-taking, everything.

It's now really taking a toll on her. She doesn't sleep well because my dad gets up during the night to pee and she has to help and make sure he doesn't fall.  They have a bedside commode now, which helps. 

The chemo treatment my dad's on is really helping.  He's in good spirits for the most part but hasn't gone out to do anything in months.  So my mom, then, hasn't either.  I had to go over there the other day with my kids to sit with him while she went to the grocery store.

(sorry for long post)

I've told my mom that I'm available to come over whenever.  My work schedule allows me to work remote some days.  I will be going over on Wednesday so she can go to a birthday lunch with her friends.

I travel at least once a month, and have 2 kids that have sports, and school events now that the school year is winding down.  Summer will be crazy with trips, camping, etc.  My sister has vowed to take my mom on an overnight trip somewhere so she can relax a bit.  I would stay at my parents house and make sure my dad is OK.  He is having surgery on his femur next week to stabilize the bone; once he's recovered from that I hope my sister can take my mom somewhere.  I'm actually just as worried about her as I am my dad.

Anyways, that's what I'm going through right now.   

 
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My wife was a stay at home mom for our kids. Now she's essentially one for her mom - who has liver/kidney disease and early dementia.

BTW - These assisted living/nursing home facilities are crooks (nothing costs that much) and government/insurance rules are the dumbest in all of bureaucracy.

 
Can your parents get grocery delivery?  It sure makes my life easier.


Probably.  But I think my mom prefers to just pick her own veggies.  Plus I think she needs to just get out of the house every so often, too.

I definitely don't mind going over there a couple times a week - or more if needed - to help facilitate that.

I personally prefer shopping for myself, too.  My wife uses WalMart for some grocery items to be delivered.  I like being able to walk down the aisles and see things that strike me as "needed" (or at least "wanted").  It sure makes for a larger bill in the end but the food definitely gets eaten!

 
My wife was a stay at home mom for our kids. Now she's essentially one for her mom - who has liver/kidney disease and early dementia.

BTW - These assisted living/nursing home facilities are crooks (nothing costs that much) and government/insurance rules are the dumbest in all of bureaucracy.
I agree for the most part.   BUT I will say it took us forever to find a place that took Medicaid, and dealt with health and mental issues.    THe 1100 or whatever they pocketed was a steal for the piece of mind for us

 
I agree for the most part.   BUT I will say it took us forever to find a place that took Medicaid, and dealt with health and mental issues.    THe 1100 or whatever they pocketed was a steal for the piece of mind for us
Places my wife has looked into are asking for $6k+ for care...that's in addition to the room.

The stuff with private pay for X number of months before Medi-whatever will pay anything...who can afford that? 

 
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Places my wife has looked into are asking for $6k+ for care...that's in addition to the room.

The stuff with private pay for X number of months before Medi-whatever will pay anything...who can afford that? 
Gothca yeah thats a little different and I agree.  We were looking for only Medicaid since he had no money.  Was it the nicest place?  Nope.  But it made life easier on everyone

 
My mom (90) has been living with us since my father passed away in 2015.   Her last sibling (1 of 13) passed away last Friday (age 95).  She suffered from Alzheimer's which is a very sad thing to deal with.   I am  counting my blessings things are ok so far.   We had to take her drivers license away as she couldn't drive anymore.   We pretty much tend to her every need....   Until things get to where we cannot provide the care she needs, we will keep her with us....

Its almost like having a child/teenager in the house again.   We were looking forward to being empty nesters and travelling.  That is being put on the backburner for now....

 
My mom (90) has been living with us since my father passed away in 2015.   Her last sibling (1 of 13) passed away last Friday (age 95).  She suffered from Alzheimer's which is a very sad thing to deal with.   I am  counting my blessings things are ok so far.   We had to take her drivers license away as she couldn't drive anymore.   We pretty much tend to her every need....   Until things get to where we cannot provide the care she needs, we will keep her with us....

Its almost like having a child/teenager in the house again.   We were looking forward to being empty nesters and travelling.  That is being put on the backburner for now....
That situation is starting us in the face.

 
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My father died of cancer 30 years ago, and my mom was in a house in the country (50+ acres) all by herself for 35 years.  We were just starting to discuss my concern over her living alone at 83 when she went into the hospital for pretty routine bowel surgery last fall.  She didn't make it home. Some observations:

I was going to buy her an Apple Watch for Christmas.  She wanted no part of one of those I've fallen and I can't get up bracelets, and the Apple Watch seemed like it would be a great alternative for alerting us kids and 911, assuming she could figure out how to use it.  The lack of stigma over wearing it was going to be a real benefit for her.   

It's amazing how much stuff we accumulate over the course of our lives.  My mother had a thing for fleece, pens, notepads, reading glasses, batteries, light bulbs, and those little return address stickers you get in the mail from charitable causes. Get rid of what you don't need - your heirs will appreciate it.

As others have said, a Living Will and Medical Directives are hugely important.  I think it's also important to state your wishes as to burial/cremation and memorial service.  Also make sure there is a current will and a file of important papers/accounts/passwords.  My mother was pretty good about this stuff and it made sorting out her affairs much simpler.

To all the people caring for elderly parents, hang in there and cherish the time you have together.  It's a real gut punch when they are gone. 

 
Places my wife has looked into are asking for $6k+ for care...that's in addition to the room.

The stuff with private pay for X number of months before Medi-whatever will pay anything...who can afford that? 
Looking at one now for my dad and it's 5k per month for 24 months before they'll take medicaid.  The first year will suck up all of his liquid savings then we'll have to leverage my parents' house.  Honestly I don't think he'll make it through the second year.  As nice as this place is, he's going to be miserable (even moreso than he currelntly is with Alzheimer's). 

 
My wife is the expert on the details of this but there are "asset reduction" steps that you can legally use to your advantage.

Having cash assets somehow affects the calculations for aid & such so it's better to actually spend the money (otherwise the government spends it on care instead). You can buy things like clothes, jewellery, and - surprisingly - automobiles. So were able to buy my MIL a car that she can't drive but we can use. It IS easier for her to get in/out of. We feel a bit guilty about it, but we look at it as an inheritance - about all my wife will receive.

 
Having cash assets somehow affects the calculations for aid & such so it's better to actually spend the money (otherwise the government spends it on care instead). You can buy things like clothes, jewellery, and - surprisingly - automobiles. So were able to buy my MIL a car that she can't drive but we can use. It IS easier for her to get in/out of. We feel a bit guilty about it, but we look at it as an inheritance - about all my wife will receive.
So you can buy a classic car or some really expensive jewelry and then sell it, even if its for a small loss, when the person passes?  Seems like a good to know loophole.  

 
So you can buy a classic car or some really expensive jewelry and then sell it, even if its for a small loss, when the person passes?  Seems like a good to know loophole.  
I don't know how they decide if you overstepped the intent, but for the most part, yes.

When you buy the car, at the dealership you ask for a "transfer on death". So  when my MIL passes, the title transfers right to us.

 
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BTW - These assisted living/nursing home facilities are crooks (nothing costs that much) and government/insurance rules are the dumbest in all of bureaucracy.
Many sure are.  The one my mom was at charged about 78K/year, but they took care of everything.  Tasty food, entertainment, the in-house medical stuff- all in a very nice environment.  (Mom had her own medical insurance.)  And it costs a lot to do that.  She needed basically constant care.  They even had in-house hospice when the time came.  They were wonderful.  I was very fortunate.

The government rules are truly idiotic.

 
So you can buy a classic car or some really expensive jewelry and then sell it, even if its for a small loss, when the person passes?  Seems like a good to know loophole.  
Be very careful with this.  There is a three year "claw back" for the government to claim money that was not spent appropriately.

 
Nursing home insurance (a type of supplemental health care insurance or long-term care insurance) is a thing too. My parents have had it for a long time. Unfortunately, now that my dad could really use it, he refuses to go.

 
When you buy the car, at the dealership you ask for a "transfer on death". So  when my MIL passes, the title transfers right to us.
In Texas, the title now has a spot for this.  Mr R and I signed it, and it automatically activated this.  When I had to sell my dad's car, it was like smuggling drugs from Colombia.

 
My wife is the expert on the details of this but there are "asset reduction" steps that you can legally use to your advantage.

Having cash assets somehow affects the calculations for aid & such so it's better to actually spend the money (otherwise the government spends it on care instead). You can buy things like clothes, jewellery, and - surprisingly - automobiles. So were able to buy my MIL a car that she can't drive but we can use. It IS easier for her to get in/out of. We feel a bit guilty about it, but we look at it as an inheritance - about all my wife will receive.
there are lot of legal ways to do this. here is one  that our banker is pushing as an option

 
Mrs. Rannous said:
Be very careful with this.  There is a three year "claw back" for the government to claim money that was not spent appropriately.
The big question is what's considered appropriate.   Sounds like buying your standard car is but beyond that, there's some uncertainty.  My classic car example is an extreme example, but say you wanted to treat yourself to a high end luxury car.  You'd think it would be perfectly reasonable to do that during your golden years.   

 
There's an ethical element to the whole "asset reduction" thing, too.  Medicaid was designed for the people who can't afford to pay for care, not for people who could afford to pay but would prefer that everyone else (taxpayers) pay for them instead.  Personally, I wouldn't feel right doing it.

 
Just found this thread.  Going through much of this right now.  My wife's 86 yo grandmother lives with us fulltime. Been a widow since 2003.  Writing most of this just because it's good to vent and get it out - TLDR skip this post bc I'm mostly just rambling to myself.

The house we're in has a converted 2 car garage on one end so Grandma's got her own little studio apartment down there.  We installed a kitchenette and bathroom and she's got ~600 sq ft. of personal space. Been living down there for 4 years now.  Mentally she's great, no signs of dementia or anything like that.  She's adamant about not going to a nursing home, but if it gets to the point of her needing physical help to go to bed/get up/use bathroom then we can't afford for me or the wife to not work and be her caretaker to that level.  Also, she's bigger than my wife so I'm the only one physically able to lift her, and quitting my job is out of the question.  

When we moved her in with us it was partially to make life easier on us (I was maintaining her house, cutting two yards, wife was taking her groceries/scripts, having to go fetch her to take her to appointments, etc) and to make it so that she got some type of regular human contact as she'd go days/week sometimes alone in that house.  Easier to do all that if she's under the same roof as us. 

Her physical mobility has taken a nosedive in the last ~8 months.  She went from taking her beagle out on a leash for a mini-walk, to coming through the house and letting it out in the (fenced in) backyard, to now texting me through the house to ask me to let the dog out because she can't.  She used to take her trash out and put it in the can outside, now she sets it outside her door and texts me to come get it. Everyday there's some new physical ailment.  Knee hurts one day.  Feeling unsteady the next day.  Got a bad headache today.  Hip is really sore today.  Knee is just killing her today, etc... She started asking my daughter to tote her laundry basket for her when she wants to do a wash.  Then she asked my wife to buy her a rolling laundry basket.  Then decided she needed a cane.  Now she uses a rolling walker, which means no free hand to pull laundry basket so it's back to having daughter tote her laundry for her.  Then she said she needed a rail installed in the bathroom and a seat booster to add height to help get off the commode.  Now she's asking my wife to help her sell her recliner and get one of those lift chairs that will stand you up at the push of a button.  Last week she said she's real unsteady getting into the bed so she's been sleeping in her recliner about half the time. Yesterday she had a doctors appointment at 10:00 and my wife went back to her room at 9:30 to take her to it and she informed my wife "I called and canceled it because I'm just feeling real weak today and didn't sleep much last night and I don't think I can get up into the car today"...

We feel like #######s if we don't help her and say "no you need to do X yourself" because she likely is in physical pain somedays, and maybe the decline is really real.  But she's also been a person that we've always known as "give her an inch and she'll take a mile".  Figuring out where to draw the line between "Ok I'll help you" vs. "no you need to do that for yourself to help keep your mobility" has become a daily struggle for us.  Verbally she says she doesn't want to go to nursing home.  Physically (at least it appears to us) she's doing very little to prevent it. Some days I feel like maybe she's giving up.  Talking to her about it usually just upsets her though, and she shuts down and clams up.  

 

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