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RIP Riley (3 Viewers)

I hope I'm not intruding or bringing this up at a bad time, if so i apologize but I was curious if your dad or brothers have been involved during this difficult time?

 
Oh man.  I'm so sorry to hear this.  I have nothing to add except that you did the right thing by telling your son.  

 
Bull Dozier said:
I'm a firm believer that honesty, even when difficult, is always the best policy.  Don't beat yourself up over it.  You respected your son enough to be honest and up front with him.  Good for you.
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@shadyridr

Echoing these sentiments to the fullest.   Sucks, but it's a valuable life lesson and something you can't shelter him from.  Will strengthen your bond in the long run also.

 
Shady, My heart goes out to you.  I live in Jersey and have been driving out to Long Island to visit my dad who just broke his hip,  I am a retired FDNY Firefighter and was one of the cooks.  I am going through some tough things right now and cooking a nice meal for your family would be more therapy for me and could give your wife a break.  If you like lasagna or pulled pork or you are adventurous and want me to try one of your favorites please pm your address and I can drop it off to your family on Friday morning.  

You and your family are in my prayers.

 
Valjean said:
Shady, My heart goes out to you.  I live in Jersey and have been driving out to Long Island to visit my dad who just broke his hip,  I am a retired FDNY Firefighter and was one of the cooks.  I am going through some tough things right now and cooking a nice meal for your family would be more therapy for me and could give your wife a break.  If you like lasagna or pulled pork or you are adventurous and want me to try one of your favorites please pm your address and I can drop it off to your family on Friday morning.  

You and your family are in my prayers.
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This is awesome.  Love the way this place comes together in the face of personal tragedies.

 
comfortably numb said:
I hope I'm not intruding or bringing this up at a bad time, if so i apologize but I was curious if your dad or brothers have been involved during this difficult time?
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My brothers? Of course. I've always been close with them. My dad? Haven't talked to him in 3 years. The topic has been broached to tell him.

 
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shadyridr said:
It was brutal. I immediately regretted it. Besides the crying he hit himself, sobbed uncontrollably about wanting a baby sister and said maybe another baby will grow in mommy's belly. I don't think he's old enough for the "mommy had her tubes tied during the c section" conversation. She's turning 39 and we were both happy with two.
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There's one way to help him, and by extension you.  Love the #### out of him, and when it gets tough gun the pedal and love him even more.  Make sure he laughs and has a positive outlook, and because it's your job you'll find it hard to remember why that's not easy.  That will go on for awhile, and then you'll all be okay.  In the meantime, prayers going out to all, especially Riley and Justin.

Remember it's not a matter of if miracles will happen, but in what form.

 
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Shady, that is brutal.  So sorry to hear it man.  Best to you, and your wife, and your son in a difficult time.  Sending our love your way.

 
I have typed up four different posts trying to post something meaningful and erased them all as nothing I can say seems like it is enough

I am not a religious man but I am hoping for a little miracle. 

 
Been thinking about you and your family the last few days shady. Praying for a miracle.

You've got a whole lot of positive mojo behind you from all over the world right now. 

 
Mr. Ham said:
There's one way to help him, and by extension you.  Love the #### out of him, and when it gets tough gun the pedal and love him even more.  Make sure he laughs and has a positive outlook, and because it's your job you'll find it hard to remember why that's not easy.  That will go on for awhile, and then you'll all be okay.  In the meantime, prayers going out to all, especially Riley and Justin.

Remember it's not a matter of if miracles will happen, but in what form.
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Love this.  Can't help but get emotional when I read these posts from Mr. Ham and BB.  Nothing else I can say.

 
The_Man said:
Can you get some professional help, GB? Does the hospital have someone that you can talk to and help you with things like what to tell your son, how to support your wife, etc?
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Good suggestion. They probably have social workers and such. My wife is a Child Life Specialist and works directly with kids who are undergoing treatments, explaining all the tests they're going through, helps them get comfortable with all the scary looking machines and tubes, etc. But she frequently gets called in to work with kids who have parents and siblings in the hospital to help them understand what is happening.  

Thinking of you guys. 

 
Righetti said:
I have typed up four different posts trying to post something meaningful and erased them all as nothing I can say seems like it is enough

I am not a religious man but I am hoping for a little miracle. 
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This.  So much.  I have no words. Good luck.  

 
Have had people I am close to lose an infant so I've seen firsthand how devastating it can be but still can't imagine how it must feel 

so sorry for what you guys are going through

 
So I joined a Facebook support group for people with this disease. They suggested contacting a doctor who used steroids in conjunction with anti seizure meds. I was going to come in today and tell that but apparently the neurologist read the same article because they started steroids last night and it seems to be helping. She's moving around a lot more than any day since this happened. Making sucking movement, moving her arms on her own, yawning. I'm trying not to get my hopes up but I think those are good signs. She's still sleeping but I'm feeling more positive today. Hopefully it isn't false confidence. I hope she proves everyone wrong.

Also, the support group put me in touch with doctors that have special experience in this disease and I provided the names to our doctor to contact. I'm talking directly to the president of the foundation on Facebook.

 
Shady I've stayed away from this because just reading the title made me cry.  I'm sorry for being so cowardly and not letting you know that I'm praying for you now too, and will have my family do the same tonight.  I so hope and pray that you get to hug your baby girl every day for decades to come.  

 
shadyridr said:
So I joined a Facebook support group for people with this disease. They suggested contacting a doctor who used steroids in conjunction with anti seizure meds. I was going to come in today and tell that but apparently the neurologist read the same article because they started steroids last night and it seems to be helping. She's moving around a lot more than any day since this happened. Making sucking movement, moving her arms on her own, yawning. I'm trying not to get my hopes up but I think those are good signs. She's still sleeping but I'm feeling more positive today. Hopefully it isn't false confidence. I hope she proves everyone wrong.

Also, the support group put me in touch with doctors that have special experience in this disease and I provided the names to our doctor to contact. I'm talking directly to the president of the foundation on Facebook.
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AWESOME.. Continued T&P's and Positive Waves coming to you my friend.

 
It's great to hear some positive news coming from you Shady.  I'll continue to hope for the best and pray for a quick and full recovery for your daughter.

 
Very heartwarming update. I found myself talking to family members about this last night, and they have all offered their best wishes and prayers as well. Go ShadyRiley!

 
Good to hear something positive. Sounds like you're doing a great job as her dad and advocate Shady. Continued prayers for Riley, you and the rest of your family.

 
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