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RIP Riley (3 Viewers)

Wow the neurologist who treated my daughter is the biggest ##### in the world. She's the one when I was told the cat scan showed a stroke and I said "is that as bad as it sounds?" she responded in a condescending tone "well it's not good". That was the only time I dealt with her until today. The nicu told me to call her to make a follow up appointment. I was hesitant because how much I hated her but I figured she knows my daughter's case at the very least I should follow up once with her. I called her office and they told me she would call me back to schedule an appointment. I had my phone on me for two hours. I put it down for five minutes to change Riley and she called and left a voicemail. "This I'd dr xxxx calling. Next time I call I'd appreciate you pick up the phone. Thank you." That was it. What a nasty #####. I'm so pissed I might just try a different neurologist now. Of course that would mean getting all Riley medical records, explaining the whole story, and hoping I can get an appointment asap.

 
shadyridr said:
Wow the neurologist who treated my daughter is the biggest ##### in the world. She's the one when I was told the cat scan showed a stroke and I said "is that as bad as it sounds?" she responded in a condescending tone "well it's not good". That was the only time I dealt with her until today. The nicu told me to call her to make a follow up appointment. I was hesitant because how much I hated her but I figured she knows my daughter's case at the very least I should follow up once with her. I called her office and they told me she would call me back to schedule an appointment. I had my phone on me for two hours. I put it down for five minutes to change Riley and she called and left a voicemail. "This I'd dr xxxx calling. Next time I call I'd appreciate you pick up the phone. Thank you." That was it. What a nasty #####. I'm so pissed I might just try a different neurologist now. Of course that would mean getting all Riley medical records, explaining the whole story, and hoping I can get an appointment asap.
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Change neurologists, ASAP.  This is not the time you need to be dealing with a ##### like that.

 
great pics! oh man, those cheeks!! 

feeling like one of my lil' old Italian aunts  right now: "just wanna pinch 'em!"  :D

Bless her and all of you on this glorious day - enjoy!

 
I honestly couldn't wait to get home, hoping that there'd be an update here (and my kids, I guess).... freaking awesome, shady! love the shot of your son with Riley- he looks sooooo happy. I'll second the grinning like an idiot post above... and a little drippy at the eyes too. welcome home, gb!

 
shadyridr said:
Neurologist just called me. She is no longer taking new patients because she is retiring in the next year. So happy lol
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Sounds like you're way better off going with someone else anyway. The medical profession, and patients, will be better off without her.

If you have a good pediatrician, I'd give them a call and ask if they have recommendations. 

Or, if I remember correctly, you were talking to a doctor you found on some other site that had some expertise in some of your daughter's issues. Maybe hit them up for arecommendation or help in where to go to get one.

 
GroveDiesel said:
Sounds like you're way better off going with someone else anyway. The medical profession, and patients, will be better off without her.

If you have a good pediatrician, I'd give them a call and ask if they have recommendations. 

Or, if I remember correctly, you were talking to a doctor you found on some other site that had some expertise in some of your daughter's issues. Maybe hit them up for arecommendation or help in where to go to get one.
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Yes I have him and one other in mind

 
Phenomenal. I haven't opened this thread since day 1 because I was petrified of reading something I didn't want to read. Thanks for updating the thread title so I could check in again. To see this news is about 8 levels beyond "cool." I am absolutely overjoyed for you and your family, Shady. 

 
shadyridr said:
Wow the neurologist who treated my daughter is the biggest ##### in the world. She's the one when I was told the cat scan showed a stroke and I said "is that as bad as it sounds?" she responded in a condescending tone "well it's not good". That was the only time I dealt with her until today. The nicu told me to call her to make a follow up appointment. I was hesitant because how much I hated her but I figured she knows my daughter's case at the very least I should follow up once with her. I called her office and they told me she would call me back to schedule an appointment. I had my phone on me for two hours. I put it down for five minutes to change Riley and she called and left a voicemail. "This I'd dr xxxx calling. Next time I call I'd appreciate you pick up the phone. Thank you." That was it. What a nasty #####. I'm so pissed I might just try a different neurologist now. Of course that would mean getting all Riley medical records, explaining the whole story, and hoping I can get an appointment asap.
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You want me to drag her outside? Kick the sh## out of her? 

 
Great pics and great news Shady.  Congrats.  So cool to see Riley in a car seat, cruisin' in the backseat, finally HEADING HOME!  

 
shadyridr said:
Wow the neurologist who treated my daughter is the biggest ##### in the world. She's the one when I was told the cat scan showed a stroke and I said "is that as bad as it sounds?" she responded in a condescending tone "well it's not good". That was the only time I dealt with her until today. The nicu told me to call her to make a follow up appointment. I was hesitant because how much I hated her but I figured she knows my daughter's case at the very least I should follow up once with her. I called her office and they told me she would call me back to schedule an appointment. I had my phone on me for two hours. I put it down for five minutes to change Riley and she called and left a voicemail. "This I'd dr xxxx calling. Next time I call I'd appreciate you pick up the phone. Thank you." That was it. What a nasty #####. I'm so pissed I might just try a different neurologist now. Of course that would mean getting all Riley medical records, explaining the whole story, and hoping I can get an appointment asap.
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That's nuts.  BTW never would have pegged you as a New Order fan

 
Thanks for all of the updates and the pics. To see your healthy baby girl and the happiness on you, Mrs. Shady, and Justin's faces is enough to make a grown make cry. 

 
shadyridr said:
Wow the neurologist who treated my daughter is the biggest ##### in the world. She's the one when I was told the cat scan showed a stroke and I said "is that as bad as it sounds?" she responded in a condescending tone "well it's not good". That was the only time I dealt with her until today. The nicu told me to call her to make a follow up appointment. I was hesitant because how much I hated her but I figured she knows my daughter's case at the very least I should follow up once with her. I called her office and they told me she would call me back to schedule an appointment. I had my phone on me for two hours. I put it down for five minutes to change Riley and she called and left a voicemail. "This I'd dr xxxx calling. Next time I call I'd appreciate you pick up the phone. Thank you." That was it. What a nasty #####. I'm so pissed I might just try a different neurologist now. Of course that would mean getting all Riley medical records, explaining the whole story, and hoping I can get an appointment asap.
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Get a new doctor.

At least you have a new baby in your home.  Yeah!

 
3 hours of sleep last night and couldnt be happier! I did make her gag on her medicine though. I have to get better at that. The neurologist I wanted to take her to had a cancellation today so we are going there now!

 
couldn't wait to hear how the first night went- soooo happy for you guys shady.

and of course, I'm sure there was the "oh yeah- a baby" realization when you got home and lose sleep etc. "oh yeah- our healthy baby is home!"

 
When's Riley's driving you nuts as a teen you should go back to this thread and write a book.  Just the highs and lows you expressed, how you dealt with them, the support you received, good stuff.

 
James Daulton said:
When's Riley's driving you nuts as a teen you should go back to this thread and write a book.  Just the highs and lows you expressed, how you dealt with them, the support you received, good stuff.
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As the father of a...challenging teenage girl, I thank God for those challenges.  Shady will as well and thank God for that.

 
shadyridr said:
3 hours of sleep last night and couldnt be happier! I did make her gag on her medicine though. I have to get better at that. The neurologist I wanted to take her to had a cancellation today so we are going there now!
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Good luck. Let us know how it goes when you have some spare time (hahaha).

 
neurologist was very nice. wants to see her again in a month. going to do another eeg and check her blood levels for the phenobarbitol. other than that we are just monitoring. Her body weight and height are in the 25 percentile but her head size is in the 5th percentile. Something to monitor. Her right side is more stiff than the left. But everything is just a waiting game

 
shadyridr said:
neurologist was very nice. wants to see her again in a month. going to do another eeg and check her blood levels for the phenobarbitol. other than that we are just monitoring. Her body weight and height are in the 25 percentile but her head size is in the 5th percentile. Something to monitor. Her right side is more stiff than the left. But everything is just a waiting game
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Did the neurologist give any thoughts on what's going on?  Keeping in mind that "none of your ####ing business, Henry!" is a perfectly acceptable answer?

 
shadyridr said:
neurologist was very nice. wants to see her again in a month. going to do another eeg and check her blood levels for the phenobarbitol. other than that we are just monitoring. Her body weight and height are in the 25 percentile but her head size is in the 5th percentile. Something to monitor. Her right side is more stiff than the left. But everything is just a waiting game
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I was on vacation for the last week, so I haven't been keeping up on the updates, but I was thrilled to see when I got back that she was going home.  I'm very happy for you for that huge step and continue to be hopeful for her continued progress and pulling for you and your family.

 
Love it Shady!!   Take Justin out for a big ice cream.  He has gone through so much and has been such a warrior through it, he deserves it 

 
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