Mr. Ham

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Mr. Ham last won the day on February 3 2016

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About Mr. Ham

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  • Birthday 08/26/1971

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  1. Attended the funeral service for Joshua, the 5th grader who had been in the same 21 kid 2nd grade class of my Connor. The biggest difference was that we had Connor cremated and Joshua's service was open casket. Our memorial service didn't have Connor physically present. This isn't a topic I'd ever thought or wanted to have a nuanced opinion on, but there was a love and dimension of spirituality from having his remnants there, but also a dimension of overwhelming hold your breath sadness that I don't know I could have taken. Like Connor, we lost a beautiful, brilliant and much loved boy. Joshua was an award winning artist, musician and gifted athlete. By all accounts, we was a prototypical good kid. Thoughtful, excellent student. His teacher euologized him. Every morning his kids give thanks for something, and the morning he died, Joshua was thankful for the science lessons they had planned for the day. Like Connor, what did we lose! Must have been 400-500 people there. Once again, our community has come together, and is shocked. Childhood cariac deaths are something I'd like to see become an anachronism as soon as possible. Thank you to those who have given. Your donations do make a difference.
  2. Just fixed formatting issues if you want to recopy and paste. Want to stress how incredibly good a mother my wife is, and how involved we are with our children. She listened to what the doctor told her. She followed up and called the nurse, asked sensible questions and followed the recommendations. It's increasingly crucial to advocate for your children's healthcare. (And your own for that matter). People and systems are flawed, and normalize around the expected. This information is something I'd like all parents to have in their back pocket. ...Now off to the memorial service for a ten year old.
  3. Below is a thoughtful reply from the Foundation's Director on what a parent should look for, and what they can do. Had we known this, it may have at least given Connor a fighting chance. My wife took him to the Pediatrician Wednesday and he became critical Friday evening. More prodding of the doctor and awareness on our part could have flagged it. I gather he still would have had a fight and months in the hospital, but depending on when the diagnosis arrived he could have survived. WHAT TO LOOK FOR AND WHAT TO DO IF YOUR CHILD GETS SICK "This is my disclaimer…While this is not set in stone, these are only suggestions and not to be specific…a parent knows their child best, so their gut thoughts are what the parents need to go on first…These are thoughts for when to have parents ask to look further if they are unsure… Gen Clinical manifestations of acute viral myocarditis are usually non-specific and highly variable. They range from mild flu-like symptoms to sudden death. Many infants and children with myocarditis present with fulminant features such as: - Rapid and labored breathing - Wheezing, grunting, cool extremities, decreased urine output Older children may complain of fatigue, fever, vomiting or muscle aches for a few days before developing more severe symptoms such as shortness of breath and exercise intolerance. More advanced symptoms include rapid heart rate, irregular and weak pulse, paleness, sweatiness and dizziness. If a child has any of these symptoms, the doctors may put them in the category of: flu, stomach virus, asthma, pneumonia… Before they leave the doctor, I would ask the doctor to: listen to heart sounds, feel the child’s liver for congestion, look for peripheral edema (swelling of the hands, legs, feet, and face) If diagnosis of pneumonia is made, ask for a chest x-ray (to see if heart size is enlarged), although in fulminant myocarditis (comes on quickly, intense and severe) it may not be seen initially. I would impress on the parents to make sure that the physician does a thorough exam before just placing the child’s symptoms into a generalized category of common diseases (flu, stomach virus, asthma, pneumonia…) If they see that the child is not improving, do not hesitate to bring them back to the emergency room. There they can do ekg, labwork to look for inflammation (Troponin level), or an echocardiogram to look for ventricular heart function (how the heart is pumping). A parent knows their child better than anyone, and if they see major changes in how they are acting or responding to therapy, it is cause to look further. Information taken from: The MF’s “Pediatric Myocarditis Pamphlet” and The MF’s “Be Alert to Myocarditis in Children: A Guide for Physicians” Pamphlet"
  4. Was trying to explain to my 6 yo what happened at the awards last night with the mix-up. It didn't resonate with him on the surface. By way of some Q&A, I pretended that the award for "Gets to play tablet anytime he wants his whole life goes to... Riley [our last name]." He has an intense rivalry with his cousin, Charlotte, who is close to the same age. I told Riley to make a speech, and after a few seconds I stopped him and said, "Oh, no. I messed up. It's Charlotte. Charlotte gets the tablet for life. Charlotte, come up here and.." "But... I still..." "No. No you don't. You don't get anything. A popsicle. Maybe we can find you a... Oh, no. There are no popsicles... Sorry." He got very serious for several seconds, then lit up. "Do it again... But reverse it."
  5. 6 y.o. is doing some local kids theater. He's learned a bit of the lingo. As I was walking out the door: "Hey dad, break a leg at the gym."
  6. Not sure this belongs here, but extremely thought provoking and I promise worth the read. “For history is of value only to someone who takes seriously the notion that there are patterns in the past which may provide the present with nourishing traditions.” ... “An Orwellian world is much easier to recognize, and to oppose, than a Huxleyan,” my father wrote. “Everything in our background has prepared us to know and resist a prison when the gates begin to close around us … [but] who is prepared to take arms against a sea of amusements?”
  7. I haven't met Maurile personally. But he's still one the smartest people I've met.
  8. This is not a partisan thing. The ties to Russia, circumstantial evidence of blackmail and solid evidence of collusion with an enemy state during an election are very much real and need to be investigated.
  9. Oh ### #### no. #### no.
  10. jv PM'ed me and wins the Faith in Humanity Award for 2017. Beyond humbled by the generosity of this offer. It's a major commitment of time and materials, and such a kind and thoughtful thing to do. I'm just floored.
  11. Incidentally, the Foundation maintains a four star rating and <10% operating expenses. >90% goes directly to towards a cure.
  12. Otis, thanks for the interest. The event will be held at the Mandarin Oriental Hotel on the 22nd of June. The official invite for 2017 is being designed. But here's some background: A Foundation board member, Chris Corso's son Matt is a 14 year old survivor who spent months in the hospital and lives with permanent damage. Matt's Story Chris is a tremendous guy, and is an executive in the reinsurance industry. He used his contacts last year to found the gala, mostly represented by that industry, and it raised $400k -- which is a huge amount for this Foundation. We are looking to expand this year beyond that one industry. Below are the sponsorship levels: Angel Grant at $25,000 Includes a table for 12 guests, your corporate logo on the Myocarditis Foundation’s website and on the formal event invitation, a full page ad in the event’s journal, the pleasure of having a Foundation board member sit at your table, and your donor name announced at the event. Epicardium at $15,000 Includes a table for 12 guests, a half page ad in the event’s journal, and your donor name announced at the event. Cardiomyocyte at $10,000 Includes a table for 10 guests, a half page ad in the event’s journal, and your donor name announced at the event. Endocardium at $7,500 Includes a table for 8 guests and a quarter page ad in the event’s journal. Pericardium at $5,000 Includes a table for 8 guests Journal Advertiser There is a $2,500 sponsorship for journal advertising only. Contributions are fully tax deductible. The non-deductible portion of each ticket is $200. I'll post the formal invite when published. If you or anyone are interested, PM me and I can send a letter with more details.
  13. Thank you so, so much! One of the things the Foundation is involved with, and there is a meeting among physicians next month, is updating protocols. In some cases, the symptoms are too subtle to notice. But as a rule: Doctors don't think to check the heart in kids Insurance doesn't want protocols to include the tests that would detect In rare instances the flu symptoms could mask a deadly condition Don't trust a pediatrician's heuristics -- most haven't seen enough samples to know (our pediatrician treated the symptoms like typical flu) Know what tests to demand when On my "to do" list this week, I'll gather a consensus of recommendations for when a parent might reasonably suspect that symptoms need a harder look, and what to do specifically to advocate for your child. I want this as something to push to our friends, family and community and will publish here too.
  14. If you have an item for the silent auction, there is a form. You can PM me and I'll email that form -- or you can email Genevieve Rumore below, who is the Director of the Foundation.