2019 Is Already THE SUCK!!!1!!!! (1 Viewer)

[Terminalxylem]

B17 = Amygdalin

Po-tay-toe, car-cin-o-gen.

 

[Galileo]

Sorry.

For my cousin they gave her an ultimatum of stop taking them or  find a new Dr. To order blood test.   If I had cancer I wouldn't need a Dr for blood tests cause I know many since I work in a hospital.  I could just get a Dr. To order it I wouldn't need to  see a cancer Dr.

So she gave up the doctor and continued with the seeds?  How's she doing?

ETA...I see your description from earlier of her improvement, but I do not know if that is a recent description or not.

 

[bucksoh]

So she gave up the doctor and continued with the seeds?  How's she doing?

She is cancer free and living a normal life.  She still takes it every day cause she doesn't want her cancer to come back.  I'm just really happy for her.  As for the Drs they had already gave up on her because she was in hospice.

 

[Mrs. Rannous]

Yeah.  Good luck with that.

Epic level trolling, by the way.

 

[comfortably numb]

You guys are all nuts. Not sure why 2019 sucks. We cured cancer in here. Praise jesus. 

 

[Tom Skerritt]

So one way to make 2019 better... I should tell me friend to give her 13yo daughter cyanide. Sounds like a plan!! I’m on it!!! Thanks for the tip!!!

 

[Terminalxylem]

Yeah.  Good luck with that.

Epic level trolling, by the way.

That ain’t trolling. There are plenty of people who distrust conventional doctors, big pharma, etc. in favor of snake oil salesmen. Especially if they’re touting something natural, like good old fashioned cyanide.

 

[WDIK2]

If I had cancer I wouldn't need a Dr for blood tests cause I know many since I work in a hospital.  I could just get a Dr. To order it I wouldn't need to  see a cancer Dr.

I've read this a dozen times and it is hurting my brain.  You wouldn't need a doctor for blood tests but you would get a doctor you know to order it?

There are 0 doctors that would not refer you to an oncologist after discovering you have cancer.  Oh, but you work in a hospital and know the doctors.  That changes everything.    I'm sure you get lab work for free.

 

[matuski]

Do a little research.  What is bat chit crazy, is telling people u know nothing about and have been helped.  That you don't know anything on the subject for what you are talking about, that is bat chit crazy.

I sell products whose primary function is to deliver chemo.  

My favorite part of my 5 minutes "researching" it:  Cochrane Library Systematic Review

The claims that laetrile or amygdalin have beneficial effects for cancer patients are not currently supported by sound clinical data. There is a considerable risk of serious adverse effects from cyanide poisoning after laetrile or amygdalin, especially after oral ingestion. The risk–benefit balance of laetrile or amygdalin as a treatment for cancer is therefore unambiguously negative.

If you are actually advising people to go this route you are being horribly, batchit crazy irresponsible.

 

[matuski]

Sorry.

For my cousin they gave her an ultimatum of stop taking them or  find a new Dr. To order blood test.   If I had cancer I wouldn't need a Dr for blood tests cause I know many since I work in a hospital.  I could just get a Dr. To order it I wouldn't need to  see a cancer Dr.

You work in a hospital.

May I ask what your role is?  

I'm sorry your cousin had or has cancer, and I can see how emotions in that scenario would lead you to believe unsupported claims about a chance to cure cancer... but this ain't the way pard.

 

[matuski]

This is how people come to believe vaccines are dangerous. 

 

[Terminalxylem]

You work in a hospital.

May I ask what your role is?  

I'm sorry your cousin had or has cancer, and I can see how emotions in that scenario would lead you to believe unsupported claims about a chance to cure cancer... but this ain't the way pard.

Judging by his/er understanding of the practice of medicine, I’m gonna guess hospital CEO.

 

[Leroy Hoard]

You guys are all nuts. Not sure why 2019 sucks. 

2019 is not the best year. But we have determined the worst.

https://www.cnn.com/2018/11/20/health/worst-year-536-scli-intl/index.html?

 

[bucksoh]

I sell products whose primary function is to deliver chemo.  

My favorite part of my 5 minutes "researching" it:  Cochrane Library Systematic Review

If you are actually advising people to go this route you are being horribly, batchit crazy irresponsible.

Do it don't do it I don't care.  I just am putting it out there for the people that are not helped by chemo,    it is much safer than chemo and you saying otherwise is bat chit crazy.  If it doesn't help don't take it but being stupid about something that is ridiculously cheap and safe compared to chemo is down right dangerous.  It's helped me and several other people it saved their lives.  Chemo is bad for you.  But keep beating that drum.

 

[bucksoh]

So one way to make 2019 better... I should tell me friend to give her 13yo daughter cyanide. Sounds like a plan!! I’m on it!!! Thanks for the tip!!!

The level of stupid in this thread is the reason I usually pm people.  Let her die I could care less.   There is plenty of people that it has helped.  Just trying to help people out.  It is much safer than chemo.  

 

[bucksoh]

Yeah.  Good luck with that.

Epic level trolling, by the way.

The only people trolling is the ones like yourself in this thread.  I just offered a different alternative which has been quite effective for a number of people.

 

[matuski]

The level of stupid in this thread is the reason I usually pm people.  Let her die I could care less.   There is plenty of people that it has helped.  Just trying to help people out.  It is much safer than chemo.  

I don't think you even appreciate the irony here.

 

[bucksoh]

This is how people come to believe vaccines are dangerous. 

Wow u should sell snake oil because your so good!

 

[matuski]

Do it don't do it I don't care.  I just am putting it out there for the people that are not helped by chemo,    it is much safer than chemo and you saying otherwise is bat chit crazy.  If it doesn't help don't take it but being stupid about something that is ridiculously cheap and safe compared to chemo is down right dangerous.  It's helped me and several other people it saved their lives.  Chemo is bad for you.  But keep beating that drum.

Chemo is awful.

But it it is the standard of care, it is WELL understood... you can drown in studies on any chemotherapeutic agents.  It helps people beat cancer daily.

This is like having a debate with an anti-vaxxer/evolution denier.. you can't support your position, rely heavily on defensive arguments, refuse to acknowledge "the facts" (your words).  It is unfortunate.

 

[matuski]

Judging by his/er understanding of the practice of medicine, I’m gonna guess hospital CEO.

Obviously not clinical.

 

[bucksoh]

Chemo is awful.

But it it is the standard of care, it is WELL understood... you can drown in studies on any chemotherapeutic agents.  It helps people beat cancer daily.

This is like having a debate with an anti-vaxxer.. you can't support your position, rely heavily on defensive arguments, refuse to acknowledge "the facts" (your words).  It is unfortunate.

I can't support my claim because big pharma doesn't want to do studies.  Why do you think that is?  Apricot seeds are safer then chemo fact.  There will never be a study because like marijuana big pharma will not allow it.

 

[matuski]

I can't support my claim because big pharma doesn't want to do studies.  Why do you think that is?  Apricot seeds are safer then chemo fact.  There will never be a study because like marijuana big pharma will not allow it.

This is again just ridiculous, as any person or company who discovers a cure for cancer would make more money than god.

So rather than "big pharma won't"... big pharma totally would.  Little pharma totally would.  Any individual that could prove your position would be an insta billionaire.

For the 10000th time, please post clinical evidence of your "facts".  Multiple agencies (among them the FDA) have banned the substance for being UNSAFE.

I can link it again if needed.

 

[Tom Skerritt]

I can't support my claim because big pharma doesn't want to do studies.  Why do you think that is?  Apricot seeds are safer then chemo fact.  There will never be a study because like marijuana big pharma will not allow it.

Because apricot seeds and Laetrile have shown to be an ineffective treatment. Perhaps in a handful of anecdotal reports. But not in clinical trials or peer-reviewed studies. Just stop. 

 

[bucksoh]

This is again just ridiculous, as any person or company who discovers a cure for cancer would make more money than god.

So rather than "big pharma won't"... big pharma totally would.

For the 10000th time, please post clinical evidence of your "f acts".

Once again you're being ridiculous I don't work for big pharma you do.  Chemo is a billion and billions dollar industry.  Taking seeds are cheap.   They stand to lose billions.  If you want I could get my cousins blood work.  But I know this wouldn't be good enough for you.  For facts.    Show me where chemo is safer than seeds still waiting for the 1000000th time.  You can't.

 

[bucksoh]

Because apricot seeds and Laetrile have shown to be an ineffective treatment. Perhaps in a handful of anecdotal reports. But not in clinical trials or peer-reviewed studies. Just stop. 

Later tator!

 

[Terminalxylem]

Obviously not clinical.

I was joking. Truthfully, I suspect he is a nurse.

 

[bigbottom]

Update:

Daughter’s friend (let’s call her Amy) was given the all-clear by the oncologist back in January. The original lesion first appeared last November, biopsied and diagnosed in December, and then finally given the “all-clear” mid-to-late January.

Fast forward to July, and Amy is having back pain, abdominal pain, fatigue, and weight loss. Mom gives Amy ibuprofen for pain. Doesn’t seem to help. Mom calls oncologist who says to go to her pediatrician, and that she probably overdosed Amy on ibuprofen. Pediatrician palpates the upper abdomen and Amy winces in pain.

Two days later, Amy is admitted into the local Children’s hospital with an 8cm abdominal mass that is diagnosed as the same tumor from December. 

If your daughter’s friend is interested in getting a consult and/or treatment at Texas Children’s Hospital or MD Anderson in Houston (two of the best cancer hospitals in the country), let me know. Our Foundation can assist with housing for her and her family.

 

[Tom Skerritt]

My wife and daughter visited Amy yesterday, and she was in very good spirits. They kept conversation light and funny, and the wife said that the girls were laughing and singing and having a good time. They even took Amy around the hospital for a snack scavenger hunt. 

This whole thing just breaks my heart, but we will remain vigilant and hopeful that she will be treated into remission. 

Amy’s mom told me yesterday that the tumor has already shrunk from the first round of chemo. This type of lymphoma has a pretty good long-term prognosis, and we are encouraged by early results. Still a long way to go though.

 

[bigbottom]

I can't support my claim because big pharma doesn't want to do studies.  Why do you think that is?  Apricot seeds are safer then chemo fact.  There will never be a study because like marijuana big pharma will not allow it.

I personally know people who are conducting cancer research, and our Foundation funds that research. We are not big pharma.  And we are just one of many such organizations. If there was a simple cure for cancer, there would be plenty of funding for research, studies and trials.  And the people I know have dedicated their lives to finding a cure. Your suggestion upthread that they (the doctors) care about making money and not finding a cure is repugnant. That said, I am so happy that your sister is cancer free. I hope she is living her best life. 

 

[bigbottom]

Once again you're being ridiculous I don't work for big pharma you do.  Chemo is a billion and billions dollar industry.  Taking seeds are cheap.   They stand to lose billions. 

Much of the cancer research being undertaken today if successful would effectively replace chemo as the standard treatment protocol. 

 

[matuski]

Once again you're being ridiculous I don't work for big pharma you do.  Chemo is a billion and billions dollar industry.  Taking seeds are cheap.   They stand to lose billions.  If you want I could get my cousins blood work.  But I know this wouldn't be good enough for you.  For facts.    Show me where chemo is safer than seeds still waiting for the 1000000th time.  You can't.

Where on earth did you get the idea I work for big pharma?

I don't.

My god man, you are off the rails.

eta - and again, yes, there are endless peer reviewed studies supporting chemo's effectiveness and benefits.  Which, again, is why chemo is the standard of care.  Which agent do you want me to cite?

eta again - you have yet to link ANYTHING supporting your position, I have.

 

[matuski]

A landmark study supporting specific patients foregoing chemo... BUT BUT BIG BAD PHARMA. @bucksoh

"With results of this groundbreaking study, we now can safely avoid chemotherapy in about 70 percent of patients who are diagnosed with the most common form of breast cancer," Dr. Albain said. "For countless women and their doctors, the days of uncertainty are over."

 

[matuski]

A landmark study supporting specific patients foregoing chemo... BUT BUT BIG BAD PHARMA. @bucksoh

"With results of this groundbreaking study, we now can safely avoid chemotherapy in about 70 percent of patients who are diagnosed with the most common form of breast cancer," Dr. Albain said. "For countless women and their doctors, the days of uncertainty are over."

To continue on with this particular line:

This doc, discussing the evidence within a subset of cancer patients (based on recurrence scores) that there may not be a benefit to chemoendocrine therapy over endocrine therapy alone.

He seems like he is really pushing his patients into chemo and is just a money grubbing guy ignorant of the "facts" around... apricot seeds of course. @bucksoh

 

[eoMMan]

What about apple seeds? Would they work?

 

[bigbottom]

To continue on with this particular line:

This doc, discussing the evidence within a subset of cancer patients (based on recurrence scores) that there may not be a benefit to chemoendocrine therapy over endocrine therapy alone.

He seems like he is really pushing his patients into chemo and is just a money grubbing guy ignorant of the "facts" around... apricot seeds of course. @bucksoh

One of my son Chance’s best friend’s dad is a big time researcher at MD Anderson and his research focuses on using an engineered cold virus to attack recurrent glioblastoma (one of the deadliest forms of brain cancer).  

 

[matuski]

One of my son Chance’s best friend’s dad is a big time researcher at MD Anderson and his research focuses on using an engineered cold virus to attack recurrent glioblastoma (one of the deadliest forms of brain cancer).  

MD Anderson is full of amazing people.

 

[Terminalxylem]

Much of the cancer research being undertaken today if successful would effectively replace chemo as the standard treatment protocol. 

True, but most of it is immunotherapy, which is even more pricey than chemo.

 

[bigbottom]

True, but most of it is immunotherapy, which is even more pricey than chemo.

Yes, immunotherapy is a big focus. But even assuming that immunotherapy will ultimately be more expensive than chemotherapy as a treatment protocol (I don’t know that that will be the case, particularly once you factor in the costs of all the ancillary treatment resulting from chemo, including treatment of secondary cancers), there is still tons of ongoing cancer research being funded in a host of other areas that would effectively replace chemo with other less costly options (several examples have already been cited in this thread).  The point that bucksoh was making with which we were taking issue is that big pharma wouldn’t allow that research to happen. That’s demonstrably untrue. 

 

[Tom Skerritt]

Yes, immunotherapy is a big focus. But even assuming that immunotherapy will ultimately be more expensive than chemotherapy as a treatment protocol (I don’t know that that will be the case, particularly once you factor in the costs of all the ancillary treatment resulting from chemo, including treatment of secondary cancers), there is still tons of ongoing cancer research being funded in a host of other areas that would effectively replace chemo with other less costly options (several examples have already been cited in this thread).  The point that bucksoh was making with which we were taking issue is that big pharma wouldn’t allow that research to happen. That’s demonstrably untrue. 

And... immunotherapy has similar side effects as chemo. Eventually, gene editing will will replace most diseases, including cancer. In fact, US doctors have recently used CRISPR to treat a patient with sickle cell disease.

For the study, doctors are using cells taken from patients' own bone marrow that have been genetically modified with CRISPR to make them produce a protein that is usually only made by fetuses and by babies for a short time following birth.

The hope is this protein will compensate for the defective protein that causes sickle cell disease and will enable patients to live normally for the rest of their lives.

But it probably will take months, if not years, of careful monitoring of Gray and other patients before doctors know whether the treatment is safe and how well it might be helping patients.

 

[Terminalxylem]

Yes, immunotherapy is a big focus. But even assuming that immunotherapy will ultimately be more expensive than chemotherapy as a treatment protocol (I don’t know that that will be the case, particularly once you factor in the costs of all the ancillary treatment resulting from chemo, including treatment of secondary cancers), there is still tons of ongoing cancer research being funded in a host of other areas that would effectively replace chemo with other less costly options (several examples have already been cited in this thread).  The point that bucksoh was making with which we were taking issue is that big pharma wouldn’t allow that research to happen. That’s demonstrably untrue. 

I don't pretend to know the entirety of cancer research, but most of the recent cutting edge stuff is immunotherapy - this includes cancer vaccines, check point inhibitors, immune modulators (including stuff like the cold virus research you mentioned) and monoclonal antibodies. And it's all expensive.

Granted I'd rather expensive immunotherapy than cyanide poisoning...

 

[Terminalxylem]

And... immunotherapy has similar side effects as chemo. Eventually, gene editing will will replace most diseases, including cancer. In fact, US doctors have recently used CRISPR to treat a patient with sickle cell disease.

In general, immunotherapy seem better tolerated than conventional chemo, though it certainly has potential side effects.

And gene editing is promising, but most cancers involve multiple mutations (any many that are unidentified) so it won't be nearly as simple as sickle cell.

 

[bigbottom]

I don't pretend to know the entirety of cancer research, but most of the recent cutting edge stuff is immunotherapy - this includes cancer vaccines, check point inhibitors, immune modulators (including stuff like the cold virus research you mentioned) and monoclonal antibodies. And it's all expensive.

Granted I'd rather expensive immunotherapy than cyanide poisoning...

I think you’re missing my point. 

 

[Terminalxylem]

I think you’re missing my point. 

Yeah, I know bucksoh is off-base wrt the evil Pharma rhetoric. And I know there is a ton of cancer research on non-chemo modalities. I just disagree regarding the cost of new and potential therapies - look up the most expensive drugs and you'll see many of them are monoclonal Ab, for example. 

 

[bigbottom]

Yeah, I know bucksoh is off-base wrt the evil Pharma rhetoric. And I know there is a ton of cancer research on non-chemo modalities. I just disagree regarding the cost of new and potential therapies - look up the most expensive drugs and you'll see many of them are monoclonal Ab, for example. 

I’m not sure anyone has disagreed with you on the cost of immunotherapy. 

 

[Terminalxylem]

I’m not sure anyone has disagreed with you on the cost of immunotherapy. 

You've made a couple posts suggesting cancer care may become more affordable. With the current modalities, that doesn't appear to be the case. While neither of us can predict the future, I think it is a reasonable to assume new treatments will continue on the same trajectory.

But for the sake of cancer patients and our healthcare system, I hope you're right.

 

[Tom Skerritt]

####...that sucks.  No way you should waiving "all clear" signals after 2 months for most any type of cancer.  Steer clear of that oncologist, IMO.  And not to hijack your thread, but I think my 2019 kicks your 2019's ### for suck so far, but I'll spare you the grim details.

Update:

Participated in a “Care Conference” with Amy’s parents, oncologist/& staff, patient educator, social worker, nurses, and patient liaison yesterday. Mom asked if I would be present for knowledge and support. 

Once the meeting started, everyone at the table introduced themselves and their role in Amy’s care. When it came around to me, I said that I am a family friend, moral supporter, and that Amy and my daughter have been friends since they were 2 years old. And just to let them know that Amy’s side of the table knows what is going on, I mentioned that I have worked in pathology for over 20 years. I felt a collective momentary shock at the table. Right at that moment, the nursing/patient educator sitting across the table from me half-jokingly asked me how much the family is paying me. And she laughed as though it was funny. Thought that was weird and inappropriate, but telling.

Apparently the caregivers and hospital have just been screwing up all over the place. Tests have been ordered incorrectly. Staff is confused about which access port to apply. Tests are cancelled with no explanation. Amy has not had a bowel movement in almost 2 weeks, and the oncologist was not even aware of this!!!

And the biggest thing to come out of it is that the oncologist essentially admitted the misdiagnosis back in January. 

Oncologist et al at least owned up to all of the mistakes and miscommunication. But I am not convinced that things will be considerably better. But Amy is currently in Round 1 of chemo, and that is most important.

I’m worried that Amy is in pain, is depressed, and physically unable to tolerate 5 more rounds of chemo after this one. But I have to remain vigilant and hopeful... which is what I will do.

 

[Tom Skerritt]

Oh yeah, and my good friend and neighbor died early this morning from a ruptured aorta. He collapsed at work yesterday.  Was rushed to the hospital for emergency surgery. He was stabilized initially, but he was unable to make it through the night. My wife called me at work early this morning to break the news. 

2019 is still the suck!

 

[Galileo]

I’m worried that Amy is in pain, is depressed, and physically unable to tolerate 5 more rounds of chemo after this one. But I have to remain vigilant and hopeful... which is what I will do.

It's tough.  The chemo can take a greater and greater toll on the body as you progress through treatments.  They have a lot of techniques these days to help mitigate some of the side effects, but it just sucks.  Good to hear that she is in a better place moving forward (hopefully).  

 

[Galileo]

Oh yeah, and my good friend and neighbor died early this morning from a ruptured aorta. He collapsed at work yesterday.  Was rushed to the hospital for emergency surgery. He was stabilized initially, but he was unable to make it through the night. My wife called me at work early this morning to break the news. 

2019 is still the suck!

We are living some parallel lives...My friend and neighbor suffered the old widow-maker back in May just before his son's HS graduation.  He died alone in a hotel room while away on a business trip, and I just laid my uncle to rest on Monday.

 

[Tom Skerritt]

We are living some parallel lives...My friend and neighbor suffered the old widow-maker back in May just before his son's HS graduation.  He died alone in a hotel room while away on a business trip, and I just laid my uncle to rest on Monday.

Sorry to hear. My friend was in his early 40’s and had a congenital heart defect. Had open heart surgery a few months ago to explore and repair some things. Seemed to recover well. Then experienced leg pain shortly after. Discovered an aneurysm in his femoral artery. Returned to surgery  a month ago to repair that. And now this. 

This guy just got divorced this year because his wife is lesbian. And they had two young boys age 7 and 9.