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Thanks. Its right above my pectoral but below my collarbone, left side - right next to where they did a deep tissue biopsy 20 days ago. I was just starting to get the strength back in my left arm, I had trouble lifting a water bottle today.
The nice thing about a port is you can go swimming, take showers, etc. and you don't have to worry about infections once the incision heals. Way more low maintenance than a PICC line.
If I inspired you in anyway thats amazing, but to be perfectly honest my anxiety is driving me up the wall and when it isn't I'm being waited on hand and foot by healthcare professionals and my immediate family - I feel like a baby. I was losing my #### today before treatment, I was presented with an overwhelming amount of material that suggest the chemo will negatively affect me little if at all, aside from losing my hair and possibly developing some mouth sores but I just couldn't shake the feeling that I was gonna be that 1:2000 guy. All-in-all the treatment went well, 5 more to go (next is in 3 weeks), as well as a lifetime of ####### PET scans.........................
Nothing too impressive, they actually told me to just brush my teeth after every meal and then rinse with half cup of warm water, table spoon of salt and baking soda.
Do it religiously. Depending on how strong your treatment is, mouth sores may be unavoidable, but you want to prevent them if you can. Maintain good mouth hygiene. And Ativan wasn't addictive in our experience. But we used it for breakthrough nausea (when the zofran dosage wasn't strong enough), so it wasn't like it was a constant dosage or anything. May be worth getting some Marinol as well, just in case.
Thanks again.
Marinol looks like a appetite increaser? I've only had a little bit of nausea so far and no loss of appetite, they suspect I'll continue to have very little while I'm on Prednisone and 2 anti-nausea medicines (names escape me). But if they don't work out ill definitely bring it up with my doctor.
Doing good, had my first evaluation following my chemo last Monday today. Blood counts are all good, in a weird state physically though, exhausted but also having insomnia. Its obnoxious being able to fall asleep basically any point of the day but not being able to stay asleep for more than an hour.Just thought of you and wondered how you are holding up.Hope you are doing well.
Benedryl always knocks me out so hopefully it will have the same effect on you. A few years back I had to serve weekends in county jail and would take like 4 or 5 Benadryl on the way there Friday evening. I would get to the cell, find my bunk and pass out until Saturday morning.Doing good, had my first evaluation following my chemo last Monday today. Blood counts are all good, in a weird state physically though, exhausted but also having insomnia. Its obnoxious being able to fall asleep basically any point of the day but not being able to stay asleep for more than an hour.Just thought of you and wondered how you are holding up.
Doc suggested that I take my Xanax and some Benadryl before going to sleep, planning on doing just that hoping ill be able to sleep for more than 4 hours at a time.
Apparently these next 4-5 days are when I'll be feeling the effects of the treatment the most, fortunately I haven't had any nausea of note. Also at some point in the next 10 days I'm supposed to start losing my hair - can't wait.
It has a similar effect on me.Benedryl always knocks me out so hopefully it will have the same effect on you. A few years back I had to serve weekends in county jail and would take like 4 or 5 Benadryl on the way there Friday evening. I would get to the cell, find my bunk and pass out until Saturday morning.
Have you considered a preemptive head shave or are you just gonna wait and see?
I'm glad to hear you are not getting nauseous, I hope it stays that way.
Anyway, just thought of you and wondered how you are doing. Keep us updated and hang in there.
I don't know. Not trying to give you advice but if it were me I would shave it off before hand. Seeing it fall out would be depressing to me. Plus, you might be surprised with how cool you will look with a shaved head. My hair is longer now but I look pretty awesome with a shaved head.It has a similar effect on me.Benedryl always knocks me out so hopefully it will have the same effect on you. A few years back I had to serve weekends in county jail and would take like 4 or 5 Benadryl on the way there Friday evening. I would get to the cell, find my bunk and pass out until Saturday morning.
Have you considered a preemptive head shave or are you just gonna wait and see?
I'm glad to hear you are not getting nauseous, I hope it stays that way.
Anyway, just thought of you and wondered how you are doing. Keep us updated and hang in there.
I've been planning to shave my head but I just keep avoiding it, I'll get around to it hopefully before it starts falling out, everyone keeps telling me its a shocking how fast it happens and that its better to just avoid it.
It also happens unevenly. You don't have to go all the way down to the scalp though. You can go with a number one buzz cut, and then the loss from there isn't as noticeable.It has a similar effect on me.I've been planning to shave my head but I just keep avoiding it, I'll get around to it hopefully before it starts falling out, everyone keeps telling me its a shocking how fast it happens and that its better to just avoid it.Benedryl always knocks me out so hopefully it will have the same effect on you. A few years back I had to serve weekends in county jail and would take like 4 or 5 Benadryl on the way there Friday evening. I would get to the cell, find my bunk and pass out until Saturday morning.
Have you considered a preemptive head shave or are you just gonna wait and see?
I'm glad to hear you are not getting nauseous, I hope it stays that way.
Anyway, just thought of you and wondered how you are doing. Keep us updated and hang in there.
I was very sorry to hear about your son.
Wow - great news!I was very sorry to hear about your son.Saturday I got woken up by a phone call that told me the results of my PET scan came back all negative with no abnormalities. Today I met with my oncologist before starting my third cycle of chemo, he went into more detail, for now at least I've gone into a near if not full remission, with the three notable tumors being completely gone.
I'll continue my treatment as planned, ending sometime mid January and ill continue to receive periodic PET scans after that.
Weird little tidbit, my hair fell out almost completely in about 5 days two weeks ago and in the two weeks since my hair has grown back to almost a 1/2 half... I was told it might grow back a little, but that it would just fall out again, but the hair growing back isn't falling out
I was very sorry to hear about your son.
Saturday I got woken up by a phone call that told me the results of my PET scan came back all negative with no abnormalities. Today I met with my oncologist before starting my third cycle of chemo, he went into more detail, for now at least I've gone into a near if not full remission, with the three notable tumors being completely gone.
I'll continue my treatment as planned, ending sometime mid January and ill continue to receive periodic PET scans after that.
Weird little tidbit, my hair fell out almost completely in about 5 days two weeks ago and in the two weeks since my hair has grown back to almost a 1/2 half... I was told it might grow back a little, but that it would just fall out again, but the hair growing back isn't falling out
Thanks and me too.I just read this thread for the first time, I'm very impressed with your strong approach to this - it will help a lot with your positive outcome.
Congrats on the near to full remission.
I'm sorry to hear about your port problems today, I hope that's a fairly straight forward thing to remedy.
The radiology department which I'm not on good terms with was who had to figure out the problem with my port. The surgeon I talked to who was trying to access my free floating port with a pair of pliers and a needle while carrying on a conversation with me and watching it through the x-ray monitor, he told me regardless that the port would have to come out. Afterwards I spoke to either head of radiology or surgery and they told me that they needed to replace it.
The form of Hodgkins I have is atypical and is now viewed as a Hodgkins but more Non-Hodgkins, just interesting.Tackling Dummies said:
Thanks, I actually have several reliably ins to get some if I felt it got to that point, socially smoked before diagnosis haven't since. My blood counts have actually been incredibly good, ive been amazingly lucky with this treatment, its everything but the treatment that keeps being uncooperative.
