Ministry of Pain
Footballguy
T&P
Run It Up Strong!
Run It Up Strong!
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Anyone here have or had Hodgkin's Lymphoma? (1 Viewer)
- Thread starter Run It Up
- Start date
AAABatteries
Footballguy
Run It Up
Footballguy
Just a quick update; I just finished up my last of six rounds of chemo and am officially done with treatment.
For the next 3 years ill be having a PET scan every 6 months, after that I will have annual PET scans for the rest of my life.
Despite having applied for medicaid at the same time as SSI, I qualified for SSI within a month -- in fact it will run out come the end of January. I was told when approved that qualifying for SSI virtually guarantees you will qualify for medicaid, but no word. I've called everyone I'm allowed to talk to and they have all said that essentially they don't have a time table, a decision will happen when it happens -- great... in the mean time I have literally every collections agency in the country bothering me non-stop.
Does anyone know how this will affect my credit?
For the next 3 years ill be having a PET scan every 6 months, after that I will have annual PET scans for the rest of my life.
Despite having applied for medicaid at the same time as SSI, I qualified for SSI within a month -- in fact it will run out come the end of January. I was told when approved that qualifying for SSI virtually guarantees you will qualify for medicaid, but no word. I've called everyone I'm allowed to talk to and they have all said that essentially they don't have a time table, a decision will happen when it happens -- great... in the mean time I have literally every collections agency in the country bothering me non-stop.
Does anyone know how this will affect my credit?
Run It Up
Footballguy
Thanks, I personally haven't but the hospital I go to is great, before I was qualified for financial assistance through them or even SSI I was given a patient representative and shes done virtually everything to my knowledge that she can, got me in connection with the ACS and the Lymphoma society.
Just seems to be the system, you have to be verified then considered eligible by the government, but then they send your application to a medical review team who makes the final decision, the first part has a 3 month deadline, the second part has no deadline...
Run It Up
Footballguy
Hopefully my final update on the matter. I've been a mess this year so far, my best friend died suddenly and unexpectedly December 26th. Made for a super ####ty ending to chemo and beginning to my recovery.
Mid-January I had what was to be my first PET scan of an annual regimen I will have for the rest of my life. After waiting anxiously for two weeks I received a phone call from my oncologist saying that the PET scan showed no signs of my cancer, but that my spleen appeared enlarged and was returning positive for the contrast (heavy indicator of cancerous cells). Knowing that the spleen is essentially the crux of your lymphatic system my anxiety ramped up to 11, not only was my cancer not gone, it was in my spleen. Doctor wouldn't speculate on whether it was cancer or something else and ordered me to have an MRI done immediately. If you are claustrophobic or have anxiety problems NEVER have an MRI unless its your only option.
Got a call from my doctor today with the results of my MRI, he said after consulting with a handful of people that my spleen looked absolutely fine and that it was likely just a residual effect from my chemotherapy and to have a CAT scan in 12 weeks to confirm. I've never been more relieved, I was in a pretty bad way and most of it over nothing.
All that aside -- I STILL haven't been approved or denied Medicaid... the medical review board sent me a request for additional information which was literally the entire application AGAIN, so I'm still being harassed pretty much 24/7 by collections, but at least I'm cancer free most likely.
#### cancer...
Mid-January I had what was to be my first PET scan of an annual regimen I will have for the rest of my life. After waiting anxiously for two weeks I received a phone call from my oncologist saying that the PET scan showed no signs of my cancer, but that my spleen appeared enlarged and was returning positive for the contrast (heavy indicator of cancerous cells). Knowing that the spleen is essentially the crux of your lymphatic system my anxiety ramped up to 11, not only was my cancer not gone, it was in my spleen. Doctor wouldn't speculate on whether it was cancer or something else and ordered me to have an MRI done immediately. If you are claustrophobic or have anxiety problems NEVER have an MRI unless its your only option.
Got a call from my doctor today with the results of my MRI, he said after consulting with a handful of people that my spleen looked absolutely fine and that it was likely just a residual effect from my chemotherapy and to have a CAT scan in 12 weeks to confirm. I've never been more relieved, I was in a pretty bad way and most of it over nothing.
All that aside -- I STILL haven't been approved or denied Medicaid... the medical review board sent me a request for additional information which was literally the entire application AGAIN, so I'm still being harassed pretty much 24/7 by collections, but at least I'm cancer free most likely.
#### cancer...
Nathan R. Jessep
Footballguy
Glad to hear, and keep up the good fight! 
Willy
Footballguy
Really glad to hear the good results.
I am not sure how you will deal with the expenses. They were probably astronomical and you really have very little hope of finding a way to pay them back. You can send creditors a drop dead letter so they will at least quit harassing you.
http://www.clarkhoward.com/news/clark-howard/consumer-issues-id-theft/sample-letters-drop-dead-letter/nFbC/
I am not sure how you will deal with the expenses. They were probably astronomical and you really have very little hope of finding a way to pay them back. You can send creditors a drop dead letter so they will at least quit harassing you.
http://www.clarkhoward.com/news/clark-howard/consumer-issues-id-theft/sample-letters-drop-dead-letter/nFbC/
Ministry of Pain
Footballguy
SacramentoBob
Footballguy
Man I can't even imagine what it's like to be sitting around waiting for tests to tell you whether you're about to live or die. Happy this is all working out as well as can be expected.
Run It Up
Footballguy
While my prognosis was never this serious, I would summarize the entire experience as "hurry up and wait -- for everything". Three weeks before diagnosis I had surgery, took two more weeks for my diagnosis, another two weeks to get an appointment with a specialist, a week to rest before surgery (to have my port placed), first chemo a week after my port was placed (was a sense of urgency), two more consecutive treatments the last of which resulted in discovering that my port had become faulty and I had to have emergency x-rays to figure out what was wrong, then I spent two weeks arguing with my doctor because I didn't wanna have a second port placed, surgery to remove my port, then three consecutive treatments through an IV (9 weeks), three week break (during which my friend died) and finally my PET scan followed by the events I just posted about.
I spent too much time stewing on things in a bad state of mind. This thread has been very cathartic for me throughout and I really have appreciated all the kind thoughts and words from you all.
Godsbrother
Footballguy
Glad to hear the good news.
