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Caring for our elderly parents (1 Viewer)

My FIL lost his battle with ALS a couple of weeks ago.  The weirdest thing is first the grief, and then the relief for the end of his pain and the burden on his wife / my MIL (who is actually a great MIL by the way), and then the guilt at the relief, and then then back to the grief and cycling through that. 

My grandparents also went out bad (Alzheimer's, dementia, stroke, cancer + emphysema) but I was younger and not as involved, just mostly saw the impact on my parents and the family.

It makes me hope I have the courage to pull a Chief Willoughby from Three Billboards Outside Ebbing, Missouri while I still can if / when (based on family history) I see things heading in that direction, I just wouldn't want to do that to my family.

Just a reminder that you guys stepping up to provide support through things like this are amazing.

 
My FIL lost his battle with ALS a couple of weeks ago.  The weirdest thing is first the grief, and then the relief for the end of his pain and the burden on his wife / my MIL (who is actually a great MIL by the way), and then the guilt at the relief, and then then back to the grief and cycling through that. 

My grandparents also went out bad (Alzheimer's, dementia, stroke, cancer + emphysema) but I was younger and not as involved, just mostly saw the impact on my parents and the family.

It makes me hope I have the courage to pull a Chief Willoughby from Three Billboards Outside Ebbing, Missouri while I still can if / when (based on family history) I see things heading in that direction, I just wouldn't want to do that to my family.

Just a reminder that you guys stepping up to provide support through things like this are amazing.
Sorry for your loss Lehigh.  It is very hard watching a loved one decline.  I’ve been doing it for a long time now,  the burnout factor is very real.  

 
We feel like #######s if we don't help her and say "no you need to do X yourself" because she likely is in physical pain somedays, and maybe the decline is really real.  But she's also been a person that we've always known as "give her an inch and she'll take a mile".  Figuring out where to draw the line between "Ok I'll help you" vs. "no you need to do that for yourself to help keep your mobility" has become a daily struggle for us.  Verbally she says she doesn't want to go to nursing home.  Physically (at least it appears to us) she's doing very little to prevent it. Some days I feel like maybe she's giving up.  Talking to her about it usually just upsets her though, and she shuts down and clams up.
Oh man, i think I'm seeing the future here for my MIL. She's 75 and constantly complaining about some physical ailment.

 
My FIL lost his battle with ALS a couple of weeks ago.  The weirdest thing is first the grief, and then the relief for the end of his pain and the burden on his wife / my MIL (who is actually a great MIL by the way), and then the guilt at the relief, and then then back to the grief and cycling through that. 
I'm sorry for your loss.  When my mom died (of Alzheimer's), I was very relieved.  I definitely didn't geel guilty about that.  Also, she had basically died during Hurricane Ike as far as I was concerned, so I was mostly done grieving.  It was more weird than anything else.

Everyone is different at this time.  I reckon just muddling through is pretty normal.

 
Blackdotting this for now.  Things haven't been great the past few months but I don't feel like getting into it right now.  But I need to be thinking about long term care.

 
If/when you put your loved ones on assisted/nursing/memory care I would recommend putting a camera of some sort (Wyze, for example) in the room.

My MIL has been in her room for just three days and were getting her out. We saw all sorts of incompetence with the camera. She rolled off her couch at 3 AM this morning and wouldn't have received help until about 8 if my wife hadn't checked the camera at 6 to see her laying on the floor.

Then when the nurses did arrive, they didn't check her blood sugar (she's diabetic and is listed as such on her care plan), took her to the bathroom, then had her walk BY HERSELF back to the living room as they cleaned up. This morning was the last straw. There's been lots else the last three days.

When we called 911, the paramedics asked the head nurse for a copy of the care plan...and they didn't know where to find it. The paramedic told my wife, "They don't know what they're doing."

So anyway, having a camera in the room has been helpful in seeing WTH is going on with her care.

 
If/when you put your loved ones on assisted/nursing/memory care I would recommend putting a camera of some sort (Wyze, for example) in the room.

My MIL has been in her room for just three days and were getting her out. We saw all sorts of incompetence with the camera. She rolled off her couch at 3 AM this morning and wouldn't have received help until about 8 if my wife hadn't checked the camera at 6 to see her laying on the floor.

Then when the nurses did arrive, they didn't check her blood sugar (she's diabetic and is listed as such on her care plan), took her to the bathroom, then had her walk BY HERSELF back to the living room as they cleaned up. This morning was the last straw. There's been lots else the last three days.

When we called 911, the paramedics asked the head nurse for a copy of the care plan...and they didn't know where to find it. The paramedic told my wife, "They don't know what they're doing."

So anyway, having a camera in the room has been helpful in seeing WTH is going on with her care.
My Dad goes into a memory care facility next Tuesday.  Hadn't thought about a camera.  Crap.  

 
Thank you all for posting your experiences. It will help me with handling my parents affairs, wishes, etc. 

Lately, I have been thinking of preparing for the wants, needs, wishes, and other items to insure my parents live the best life they can without headaches or problems.  I know that will be a very difficult thing to accomplish. But, right now I do not know a thing regarding my parents affairs.

Cliff notes: parents are mid 70's. Dad good health. Mom has diabetes Type II, bipolar, and has fragile frame (broken wrist, broken ankle).

They live in Upper Peninsula, MI. In a very small town. Sister lives about 5 minutes away from them.

I live in Southern California with wife. After much talk regarding house buying, we have decided not to buy in Cali. Our plans include buying investment property in Central Califonia, and a possibility of a home in Upper Peninsula, Michigan. 

Even though my sister lives a few miles away,  I do not trust her in attending to my parents needs. There are a few reasons why for my thoughts. Main reason is that she still has issues with them when she was young. I believe she will neglect both parents. 

Me and wife will be visiting my parents later this year.

With all that, I want to get very involved with my parents affairs such as: name/number of relevant people in their lives, will, med list, are there health directives? I wish to be an authorized person to look at medical records...the list will be huge.

I am in need of help of what other subjects, questions, and other items to ask my parents. Can someone help? 

 
Just a general update for those that give a hoot.... my dad (85, battling lymph node and liver cancer) is actually doing much better with whatever cocktail of chemo and other medication they're doing now.  He has a small tumor on his femur which is causing a lot of pain, but it's subsiding somewhat.  Still needs a walker to get around 80% of the time, but is doing physical therapy (thank God our next door neighbor of 30+ years is a PT and is in-network... he comes and helps my pops out) and is starting to amble around without the walker a bit.

My mom's a mess though... good health, physically speaking.  But all the doctor appointments, dealing with all sorts of insurance BS, dealing with my dad being in the house 24/7... etc... really taking a toll on her mentally and emotionally.  Worried about her as much as I am about my dad.

My sister and I have promised to come over weekly to help with chores.. just to be around... I went over on Friday, but my mom told my sister not to come over today for some reason.  

Anyways, had to get that all out.  The worst is certainly yet to come, but as of now we've stabilized things rather well for the time being.  I just pray that I'll have the strength to deal with the next 3-4 years or whatever it may be.

 
My mom's a mess though... good health, physically speaking.  But all the doctor appointments, dealing with all sorts of insurance BS, dealing with my dad being in the house 24/7... etc... really taking a toll on her mentally and emotionally.  Worried about her as much as I am about my dad.
My wife has been run ragged by the "health" system.

The assisted living situation we had my MIL in lasted three days and they've been reported to the state for their negligence.

The worse part is that my MIL's dementia wasn't caused by an actual mental decline. She had a knee replacement two years ago and fell on it mid-winter. Three months ago it started to swell and she started to complain of pain. She also started to retain a lot of fluid in her abdomen. When they drained the abdominal fluid they found no infection...but when they drained her knee they didn't even bother to check.

Turns out the mental issues were likely an infection in the one knee.

So, if someone had just done their job and checked, she'd likely still be living on her own on her apartment.

Now, though, the hospital's "social worker" has been pressuring is to get her out of their building - but she's only there because of their missed diagnoses. BTW - those type of social workers aren't there for the patients. They're only for the hospital.

Anyway, it's been example after example of incompetence. Does anyone know how to think anymore?

 
Just a general update for those that give a hoot.... my dad (85, battling lymph node and liver cancer) is actually doing much better with whatever cocktail of chemo and other medication they're doing now.  He has a small tumor on his femur which is causing a lot of pain, but it's subsiding somewhat.  Still needs a walker to get around 80% of the time, but is doing physical therapy (thank God our next door neighbor of 30+ years is a PT and is in-network... he comes and helps my pops out) and is starting to amble around without the walker a bit.

My mom's a mess though... good health, physically speaking.  But all the doctor appointments, dealing with all sorts of insurance BS, dealing with my dad being in the house 24/7... etc... really taking a toll on her mentally and emotionally.  Worried about her as much as I am about my dad.

My sister and I have promised to come over weekly to help with chores.. just to be around... I went over on Friday, but my mom told my sister not to come over today for some reason.  

Anyways, had to get that all out.  The worst is certainly yet to come, but as of now we've stabilized things rather well for the time being.  I just pray that I'll have the strength to deal with the next 3-4 years or whatever it may be.
You have to find time to decompress.  I suck at this.  

 
In our state, it's a 7 year look back to make sure assets were given away or sold at fair market value.  They also look at the house and who is on the deed.  Luckily, my wife's grandmother had put all of them (1 child and 3 grandkids) on the deed so they couldn't count the house.  But granny had cosigned on my MIL car and BIL and we had "gifted her a car (from a previous family member we took care of).  We had to fight tooth and nail to get the 2 co-signed cars out of her name and then I had to buy the car, at fair market value, we gave her and got for free in order to clear her assets.  It was a nightmare.

Her husband (passed in the 80s) was former coast guard and after the asset clearing she qualified for Medicaid so that helped.  Still could only find a rinky dink place here in town but it was a God send with us having 2 kids + 2 younger nephews (that we now have custody of).  The place wasn't great but the people were nice and did their job.  It's a job I would never take for the measly 15 an hour they might get.

We've now been caretakers for 1 great aunt (no kids) with dementia, 1 grandmother with alzheimers and my wife's mother that had a stroke and didn't last too long after.  I hate to say it but the passing, each time, was a relief especially for my wife. Her family has/had no money and obviously never financially prepared for any of this.  

When her great aunt passed, she had told us everything was taken care of.  Funeral plot, services etc.  When we got to the funeral home they said everything was taken care of.... except the headstone.  Apparently you can't prepay for those.  And her aunt had pre-purchased a plot in the "exclusive" lot.  Bronze headstones only. We didn't have the money back then so I asked what people do.  They said "most people take out a loan".  Lol.  No way I was taking out a loan.  I just post dated a check then paid them with whatever her aunt had left in checking.

 
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Mrs. Rannous said:
What are these?  Do they just have a bronze plaque on the stone or what?
Yes. Bronze plaque on a granite headstone.  From what I can remember the least expensive for that area of the cemetery was around $2500

 
It looks like I am letting go of my mother in the next week possibly. She’s in the final stages of dementia and suffered a stroke Wednesday. She started hospice care yesterday. Any tips or tricks to get thru this?
No advice, just sorry to hear. Prayers to you and her.
 
It looks like I am letting go of my mother in the next week possibly. She’s in the final stages of dementia and suffered a stroke Wednesday. She started hospice care yesterday. Any tips or tricks to get thru this?

Very sorry FW - this is something I’ve heard people say so take it with a grain of salt - you may have things you want to say to her but didn’t in the past for any number of reasons. Say them now if you feel like it. Good luck.
 
It looks like I am letting go of my mother in the next week possibly. She’s in the final stages of dementia and suffered a stroke Wednesday. She started hospice care yesterday. Any tips or tricks to get thru this?
Hospice care usually offers family support during and after the life of loved ones. I remember vividly a talk given by a retired Methodist minister turn hospice counselor who discussed using humor, playing cards, and just listening as techniques she used. She was great. There are also Alzheimer's Association support groups everywhere. They tend to be dominated by women due to demographic factors and differences in how men and women grieve. Men tend to withdraw. It's important to also have family or friends to speak with. There's also this discussion board which has provided emotional support to many.
 
Funny this thread was bumped this morning as I was going to do it myself.

Our experience with assisted living has been a complete nightmare this year.

I don't have time to catalog here all the incompetence and borderline neglect my MIL has received in her care.

Just yesterday, with my wife and physical therapist in her room, the nurse's aide (who shouldn't even be giving shots) failed in giving her the right dose of insulin in two ways. One, you're supposed to keep the needle in for 10 seconds so the body can absorb the shot - she did it for less than 5. This caused most of the dosage to spill out when she removed the needle.

On top of that - it was the wrong dosage. She read how much lactulose she was supposed to get (30 units of measure) and read it as her insulin dosage (which is supposed to be 20 UOM). It's like they don't understand that they could kill her with mistakes like that.

THEN, we found out the night before that an aide said she gave her medicine - but since we have a camera in her room we know it's a lie. Nobody went in her room at all. We're pretty sure that lady was fired.

But the biggest whopper was when we checked the blood sugar log book against what is ACTUALLY IN THE #### GLUCOSE METER - none of them matched up. Not a single number. For weeks. We were tipped off to this when the exact same measurement of 152 was written down for two consecutive measurements. These people are complete morons.

We're about to alert the media and call in the State to practically shut this place down. My wife is a trooper but I wouldn't want to be in her way at this place.

All that is to say that again, I can't recommend enough having a camera in your loved one's room to see just what's going on. And be up on their care. Don't just assume that since you're paying $8000/month to someone that that should guarantee you good service.

:hot: :hot: :hot:
 
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It's "odd" to say, but with my wife going through this now with both of her parents I feel somewhat lucky that my parents died when I was young(er). Best wishes to all of you going through this, I know how hard and exhausting it is. Stay strong.

Will read through the posts more when time allows, and thinking about checking out the book in the second post.
 
Sorry to hear FW. Remember the good. Surround yourself with loved ones, and you will persevere together. It is not easy, but I am sure the last few years have not been easy. Know she will be at peace soon.
 
@FairWarning , I apologize. I didn't mean to step on your post like that. That was insensitive.

I'm sorry to hear about your mom. My dad also has several signs of dementia and our Christmas was really tough this year. So I can relate.
 
Going through this with my MIL. She gets very confused and has little short term memory. A lot of her memories are from her childhood. She also gets mad at my wife for things that do not matter and accuses her of doing things that make no sense. She still lives alone, but I know the day is coming when she will be unable to. That will not go well as there is no way she will go to a nursing home without a fight. My guess is she will have to be mentally gone before we can get her to go. As a note she is 81 and has not been to a doctor in 40 years.
 
Going through this with my MIL. She gets very confused and has little short term memory. A lot of her memories are from her childhood. She also gets mad at my wife for things that do not matter and accuses her of doing things that make no sense. She still lives alone, but I know the day is coming when she will be unable to. That will not go well as there is no way she will go to a nursing home without a fight. My guess is she will have to be mentally gone before we can get her to go. As a note she is 81 and has not been to a doctor in 40 years.
This is exactly my dad and is typical in dementia cases - uncontrollable and nonsensical anger outbursts. He too should be in assisted living but won't do it because he insists he feels fine.
 
Even though my sister lives a few miles away, I do not trust her in attending to my parents needs. There are a few reasons why for my thoughts. Main reason is that she still has issues with them when she was young. I believe she will neglect both parents.

This happens more than people think. It's actually quite common.

I've always taken care of my health, but getting too old has been a rough ride. I stopped driving myself for practical business reasons many years ago, but I always liked to occasionally drive myself sometimes to get away, get something to eat, go to a park or something. Now I have to come to terms that I'm an active danger to others on the road if I get behind the wheel. My vision is failing. My hand eye coordination is shot. My reaction time has degraded. When you get older, well you make adjustments. Then you get to an age where you run out of adjustments.

I have full time in house care now. Just in case. That's one thing I wanted to make sure of and planned for it long ago. That my godson would not have to spend his youth taking care of a geriatric headed for the glue farm. But I recognize that my situation is probably unique compared to the average. Most people end up in nursing homes or in a spare bedroom in their adult children's houses or situation.

As I am much older than most of you, probably nearly all of you, here are some things to consider

1) Reduce your stress level at all costs. Career stress probably took 15 years off my lifespan and did a heavy number on my overall health. The pandemic and all the BS from all the logistics from that was a doozy. It was more drama that I needed at my age.

2) Exercise as if your life depends on it. Because it does. I took care of myself. And I'm in bad shape. Sometimes I imagine if I didn't. Take care of your health, think about how you eat, sleep and spend your time.

3) Clutter is stress. Push things out of your life that don't have a real function for you. Stuff is one of them. People who bring nothing good in your life is another. From my career path, I still have clients that send me gifts several times a year ( Xmas, birthday, etc, etc) because they want to keep those lines of communication open in case they want to approach me later for something. TVs, IPads, ear buds, clothing, sports equipment, etc, etc. They don't even know what they are sending. Their secretaries get it, and give them a card to sign. I should know, I spend decades signing cards for gifts to be sent out and I had no clue what was being sent out, because I had to manage relationships with clients as well. Someone just sent me a Pivot mountain bike. I can't drive myself anymore and I get up 6 times a night to pee, how exactly am I going to hop onto a bicycle now? I've literally run out of people in my daily life to hand off this stuff. The point is, when you die, don't leave storage units worth of mess for your grieving relatives to sort through and handle. A year ago, I sent my godson a Concept 2 rower that a client gifted me. I was just relieved to get that out of my way. Three months ago, I got another one. Same person. His secretary probably forget to cross it off a list and had it ordered and sent again.

4) Get into a single story living situation. Stairs will break you if you are already broken down enough.

5) Retrofit your bathrooms, if you can. Most of you here today, if you slip in your bathroom, well you might be OK. If it happens to me, the recovery, if I could recover, could take years. Literally years at this point from some kind of bad fall. Think about your bathrooms for functionality as you age. The kind of grip on the floor of a shower stall or a tub might be the difference between you being wrecked or not.

6) You lose maintenance ability. I don't mow my own lawns, clean my own bathrooms nor do my own cooking. But for those that do still, you have to think about that. You want to be pushing a lawnmower in your 80s? In most cases, most people are better off downsizing their living situation. Also less stuff means less stuff that needs to be handled or cleaned or be given maintenance.

I can still pull quality and drop loads though. At least that didn't fall apart on me.

One thing I will say and it will sound bizarre. Get your parents into gaming. It's a good time killer and it will likely help them focus on how to do small problem solving, etc, etc, etc. I don't think extensive gaming is good for young people and middle aged people with other priorities, but it's probably good escapism for those who will go insane if they try to read another book or watch another episode of Walker Texas Ranger on cable. My IT people are all on the younger side, I got them all that new graphics card that just came out for Xmas. They were so excited as nearly all of them are into video games. Don't quite get it, but if it keeps these tech monkeys somewhat sane, it should keep some codgers sane too. One of those kids tried to explain to me why these things need to be the size of a loaf of bread and have so many fans on them. So excited, I thought he was going to pee his pants. Well, it's nice to see people happy I suppose. I should have sent him that rower instead.
 
I just wanted to say this is a great resource. My mom will be living with my wife, and I probly within next year or two. She doesn't have much for retirement. She is ok healthwise at the moment, but we plan on being her primary care giver down the road.
 
Don't want to sound heartless, but those having to deal with this for days, weeks or even months should be thankful.

My dad took care of my mom. She was wheelchair bound after suffering a closed head injury. My dad wore himself down taking care of her, but reused all other options becasue he did not want to "give up" things he worked hard for.

In 2011, he suffered a ruptured colon and was in the hospital for 6 weeks before dying from going septic.

During those 6 weeks I worked with an elder law attorney to protect everything for my dad (for when he came home) while getting my mom the help she needed.
What a nightmare.

When my dad passed away, things shifted greatly. My mom was able to do SOME things on her own, so we spent the money they had saved along with the balance of my dads insurance and placed her into an American House. That worked great, but with her needs, the money went fast at over $6,000 a month. We knew Medicaid was in our future.

What the lawyer failed to tell us is how difficult it is to find a Medicaid bed. We ended up paying a month out of pocket, because a nursing home cannot boot you as long as you are applying for or receiving Medicaid.

10 years to the day my dad died, my mom passed away. Those 10 years wore on me and my family. Nursing homes are terrible. Even the better ones.
 
Going through this with my MIL. She gets very confused and has little short term memory. A lot of her memories are from her childhood. She also gets mad at my wife for things that do not matter and accuses her of doing things that make no sense. She still lives alone, but I know the day is coming when she will be unable to. That will not go well as there is no way she will go to a nursing home without a fight. My guess is she will have to be mentally gone before we can get her to go. As a note she is 81 and has not been to a doctor in 40 years.
This is exactly my dad and is typical in dementia cases - uncontrollable and nonsensical anger outbursts. He too should be in assisted living but won't do it because he insists he feels fine.


I've always liked you Andy, you are a good egg, and what I'm about to say isn't personal to you nor anyone in your family.

A lot of old people get into their elderly stage and automatically assume wisdom comes with age. Which is not true at all. Some old codgers are pretty wise, but they were likely pretty wise in middle age and quite bright as kids. Some people are stupid and they stay stupid pretty much forever.

Same thing with people with toxic level behavior. Sometimes age does a number on people and they no longer have cognitive control. That's true and it's tragic when it happens. But some people are basically a lifetime huge POS and now they are culturally and socially in a situation where they can put that on at full volume and no one is going to punch them in the face for it.

I actually take pride in being a "Cool Grandpa" type.

I care how things function, not how people feel. And especially not how I feel about things. I don't pick my feelings over function. If it makes more sense to do X instead of Y, then do X, and if you don't like how that feels, then suck it up. That's a simple principle that creates success in business. But many people just can't do it.

The worst thing you can do as a geriatric is "to be tolerated" Who wants that?

The kid who works in my motor pool gave me a nice compliment. Sometimes he had to drive me around, and he told someone else that he liked driving me because "it was like driving around Pat Riley" That was nice. There's no one more "Cool Grandpa" than Pat Riley.

The lesson here is don't be right, be justified instead. If you think you are right, take a step back, and investigate the situation. Look for function first. Don't be ruled by your feelings. When the logic adds up to your viewpoint, then you are justified. Then you can hold the line and still be a reasonable person.

Would a row machine help your old man? Maybe I should send him one.

But I have always liked you Andy. In all the years I was gone, I'm glad you were still here when I came back.
 
My dad took care of my mom. She was wheelchair bound after suffering a closed head injury. My dad wore himself down taking care of her, but reused all other options becasue he did not want to "give up" things he worked hard for.

One things that helps with older people is to put things on paper. Obviously your situation had time and process and is resolved now ( Sorry for your losses) but for the sake of the others here, here are some thoughts -

Put a plan to paper, explain why the solutions presented are logical, and what the negative fallout will be if that road isn't taken.

Don't argue with the elderly, just hand it to them and ask that they read it. It gives the illusion of choice. On paper, the argument works differently too. On paper, the layout of the numbers and the math is impossible to deny.

Verbal arguments and disagreements tend to go nowhere really fast.

On paper, you are making an "offer" By having the power to reject the offer, the elderly person won't feel as heated about the thought of losing "personal agency" in the matter. I can have a conversation with hard things being said and look for function over feelings. But most people can't do that.

The difference with the "offer" is you are also in a position to withdraw it. What's the saying? Don't set yourself on fire to make someone else warm.

When you are dealing with an unreasonable person and the situation has become totally unreasonable, then the only answer is to walk away until the person decides to "act" in a reasonable manner. I say "act" because unreasonable people don't magically become reasonable. They have to surrender because all their other option are exhausted.

When I had talks with my godson's father, about the idea of raising the kid should something happen, I was pretty explicit in what I would or would not do. A lot of this is about boundaries, and I know that's a struggle because it's family. But you can't fight with reason against an unreasonable person. Your only option is to walk until they surrender, no matter how painful that might be.

For many people, unfortunately, their elderly parents pick their pride or their unresolved glitches over function. If you want to do that, earn a lifestyle that gives you that. I can be as difficult as I want to be. But I bled my entire life and suffered to have old man gangster level FU money. I choose not to be difficult because I see it as pointless. That's the perspective people need to have here. If your parents want it "their way", they should have built a life to support that in full. Once they need to rely on you, they lose the right to have it their way in absolute terms. I get things "my way" all the time. But it wasn't free. It wasn't cheap. I had to endure many ugly trade offs in my life to have these options now. In this life, you keep what you kill.

With family - Boundaries must come first. Then things like money, logistics, etc, etc. Because without boundaries to start, the situation is hopelessly doomed to some kind of suffering for the care givers.
 

Would a row machine help your old man? Maybe I should send him one.

But I have always liked you Andy. In all the years I was gone, I'm glad you were still here when I came back.
He's had seven stents put in and the last one/s was to clear a blockage that were pretty sure was restricting blood flow to his brain. He had a multiple bypass surgery 1.5 years ago and has refused physical therapy since.

At Christmas, he was likely malnourished/dehydrated (by choice, he's terrified of diabetes so he doesn't eat or drink much) which caused him to not be able to move his legs, even with the use of a walker.

So no, physical activity isn't in the cards. He's straddling the fence of waiting to, but refusing to die. I know that sounds more callous than I intend to. But my dad has a lot of personality issues - like clinical ones.
 
I just wanted to say this is a great resource.

Glad the thread has worked for folks here.

Personal update. I'm living in China for two years. I mom is safely living in an assisted living facility. She can come and go as needed, but she pretty much stays put. She's aware of her limitations in short term memory and fears wandering off. While I'm living in China my daughter and son-in-law are living rent free in my house so they can save some money. Part of the deal is that they have to check in on gram at least once a week. It's working out well so far (been six months) for all involved. My mother would much rather hang out with her granddaughter than me.

My mother will run out of money after three years. The place she's living costs just a bit over $4000 a month. All inclusive utilities and meals. We made sure that the place she's living will accept Medicaid, but we have to pay full freight for three years before we can kick into that mode. The other part that's nice about this facility is that they have two wings. One is assisted and other other is a full-on nursing home. When the time comes she will be able to painlessly transition from one to the other. We just have to make it through those three years. Fortunately, she's physically very healthy. Only issues are short term memory and general cognitive ability.

I feel like I'm getting off easy so far this period of time. Wishing anyone else having to go through these times the best.
 
My mother will run out of money after three years. The place she's living costs just a bit over $4000 a month. All inclusive utilities and meals. We made sure that the place she's living will accept Medicaid, but we have to pay full freight for three years before we can kick into that mode. The other part that's nice about this facility is that they have two wings. One is assisted and other other is a full-on nursing home. When the time comes she will be able to painlessly transition from one to the other. We just have to make it through those three years. Fortunately, she's physically very healthy. Only issues are short term memory and general cognitive ability.
That sounds very similar to the community where my parents finished their days. They gradually moved from independent living (house) to independent living (small house --- dad died there) to assisted living to nursing care to dementia unit. Mom's money had to all be spent down to a pittance before Medicare kicked in, but the fortunate thing is she always moved from one place she knew to another.

If I could offer a piece of advice it's to get familiar with the nursing home part before it's time for her to move there. The nursing care unit was easy for me to get used to but the dementia unit was just a shock to me. I had to force myself to get used to it and the people there because it's the only way I could see mom each week. I listened to John Prine's "Hello in There" a lot and it was a great help. Every person in that dementia unit had been a person and was, to the best of their remaining abilities, still a person; someone worth saying hi to and worth respect. Mom died last month, and now I miss going there.

Best of luck to you.
 
My mother will run out of money after three years. The place she's living costs just a bit over $4000 a month. All inclusive utilities and meals. We made sure that the place she's living will accept Medicaid, but we have to pay full freight for three years before we can kick into that mode. The other part that's nice about this facility is that they have two wings. One is assisted and other other is a full-on nursing home. When the time comes she will be able to painlessly transition from one to the other. We just have to make it through those three years. Fortunately, she's physically very healthy. Only issues are short term memory and general cognitive ability.
That sounds very similar to the community where my parents finished their days. They gradually moved from independent living (house) to independent living (small house --- dad died there) to assisted living to nursing care to dementia unit. Mom's money had to all be spent down to a pittance before Medicare kicked in, but the fortunate thing is she always moved from one place she knew to another.

If I could offer a piece of advice it's to get familiar with the nursing home part before it's time for her to move there. The nursing care unit was easy for me to get used to but the dementia unit was just a shock to me. I had to force myself to get used to it and the people there because it's the only way I could see mom each week. I listened to John Prine's "Hello in There" a lot and it was a great help. Every person in that dementia unit had been a person and was, to the best of their remaining abilities, still a person; someone worth saying hi to and worth respect. Mom died last month, and now I miss going there.

Best of luck to you.
My mom was in a memory care facility. It had four quadrants with a large shared space in the center. Each section was for people with progressively worse dementia. You could bring a pet or share a room with your partner. I could visit any time, day or night. I could eat there with her if I wanted to. So could visitors. There was always something going on and other families viisting. Even the food smelled good. It definitely helped that it was that nice. I never had to worry about her. That peace of mind was worth what it cost.
 
Today was the day, mom is in a better place - and pain free.

Sorry, FairWarning. And sorry to others. I can't fathom.

Happened upon this thread last night. This was a tough read. My parents are 74 and 78, not in any signs of decline, but I don't feel like I have my ducks in a row. This has been another awakening and another difficult conversation to have, I guess. Which will not be met well and will likely be ignored.
 
Today was the day, mom is in a better place - and pain free.

Sorry, FairWarning. And sorry to others. I can't fathom.

Happened upon this thread last night. This was a tough read. My parents are 74 and 78, not in any signs of decline, but I don't feel like I have my ducks in a row. This has been another awakening and another difficult conversation to have, I guess. Which will not be met well and will likely be ignored.
They better be in a row ASAP, just saying. Life comes at you fast and hard here.
 
Today was the day, mom is in a better place - and pain free.

Sorry, FairWarning. And sorry to others. I can't fathom.

Happened upon this thread last night. This was a tough read. My parents are 74 and 78, not in any signs of decline, but I don't feel like I have my ducks in a row. This has been another awakening and another difficult conversation to have, I guess. Which will not be met well and will likely be ignored.
Still need to make sure they have wills, etc. Part of this is how you frame the conversation. If one of them has an accident, you want to make sure they can access each other's stuff. AARP has some resources that might help.
 
Today was the day, mom is in a better place - and pain free.

Sorry, FairWarning. And sorry to others. I can't fathom.

Happened upon this thread last night. This was a tough read. My parents are 74 and 78, not in any signs of decline, but I don't feel like I have my ducks in a row. This has been another awakening and another difficult conversation to have, I guess. Which will not be met well and will likely be ignored.
Still need to make sure they have wills, etc. Part of this is how you frame the conversation. If one of them has an accident, you want to make sure they can access each other's stuff. AARP has some resources that might help.
This.

I’ll have some good stories from medicaid and others trying to get money.
 
My dad was moved from his "after care facility" to the hospital on Friday. His kidneys are failing and he did not react well to short-term dialysis. So at this point we are moving to "comfort care" (hospice) and letting nature and God take the reins.

I feel terrible for him, yes, that his body and soul have to go through this... but also feel bad for my mom who's endured months if not years of his doctor visits, tests, in-home care, etc. I fear for her health (although she's in fairly good shape) as well.

If you're the praying type, please include my dad and his small family as he prepares to go meet with his mom, dad and brother in eternity.
 
My dad was moved from his "after care facility" to the hospital on Friday. His kidneys are failing and he did not react well to short-term dialysis. So at this point we are moving to "comfort care" (hospice) and letting nature and God take the reins.

I feel terrible for him, yes, that his body and soul have to go through this... but also feel bad for my mom who's endured months if not years of his doctor visits, tests, in-home care, etc. I fear for her health (although she's in fairly good shape) as well.

If you're the praying type, please include my dad and his small family as he prepares to go meet with his mom, dad and brother in eternity.
hospice does an amazing job, at least he won’t suffer anymore. You’ll want to have his friends/family visit soon. You’ll know when that day arrives also.
 
My dad was moved from his "after care facility" to the hospital on Friday. His kidneys are failing and he did not react well to short-term dialysis. So at this point we are moving to "comfort care" (hospice) and letting nature and God take the reins.

I feel terrible for him, yes, that his body and soul have to go through this... but also feel bad for my mom who's endured months if not years of his doctor visits, tests, in-home care, etc. I fear for her health (although she's in fairly good shape) as well.

If you're the praying type, please include my dad and his small family as he prepares to go meet with his mom, dad and brother in eternity.
hospice does an amazing job, at least he won’t suffer anymore. You’ll want to have his friends/family visit soon. You’ll know when that day arrives also.
Me, my mom and my sister have been at the hospital pretty much non-stop since Friday. My kids saw him in a much better state a couple weeks ago - that's the memory I want them to have of him. He doesn't have any siblings that are still with us, and not really many friends to speak of. His friends will come to whatever memorial service we have for him... but they certainly don't need to see him in the state he's in.
 

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