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Daughter scheduled for back surgery - one year checkup (1 Viewer)

Just catching up. Best wishes to your daughter and the whole fam. I'm sure everything will go great and hope this is the last bump in the road for quite a while. She seems to deserve a good long run now. 

 
The surgery went well but they had to take a lot of fluid - her lung was almost completely compressed from the fluid. Her breathing was very labored this morning and that is already much improved.  She has 2 chest tubes to allow more fluid to drain and those typically stay in 2 to 4 days and she will get antibiotics around the clock until this passes.  They still don't know what caused it but will run cultures or whatever to help determine the cause and the specific antibiotic to use against the infection. 

 
She is still in ICU and probably will be for a few more days.  Both chest tubes are still in and the lung is still not fully functioning, but it's getting better each day. She sat up in a chair today twice for an hour each time but mostly slept.  This is going to be a long journey it seems.

 
Steeler said:
The surgery went well but they had to take a lot of fluid - her lung was almost completely compressed from the fluid. Her breathing was very labored this morning and that is already much improved.  She has 2 chest tubes to allow more fluid to drain and those typically stay in 2 to 4 days and she will get antibiotics around the clock until this passes.  They still don't know what caused it but will run cultures or whatever to help determine the cause and the specific antibiotic to use against the infection. 
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Pleural edema is no joke, but it sounds like the hospital is doing well by you all.  Glad to hear she's improving.  I look forward to a post about how well everything turned out and what great care your daughter has gotten.  

 
Steeler said:
She is still in ICU and probably will be for a few more days.  Both chest tubes are still in and the lung is still not fully functioning, but it's getting better each day. She sat up in a chair today twice for an hour each time but mostly slept.  This is going to be a long journey it seems.
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Glad to hear things are moving in positive direction :thumbup:

 
Henry Ford said:
Pleural edema is no joke, but it sounds like the hospital is doing well by you all.  Glad to hear she's improving.  I look forward to a post about how well everything turned out and what great care your daughter has gotten.  
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She has pleural effusion and that's no joke either. The hospital, the doctors,  the nurses are amazing people and I feel she is getting excellent care. It's the same hospital where she had the spinal fusion surgery and we remember many of the nurses and they remember us. 

Anyway, still in ICU and will be for a few more days. The recovery is going to take way longer than I originally anticipated - even after she leaves the hospital. She won't be back to 100% for a month or more. 

 
Steeler said:
She has pleural effusion and that's no joke either. The hospital, the doctors,  the nurses are amazing people and I feel she is getting excellent care. It's the same hospital where she had the spinal fusion surgery and we remember many of the nurses and they remember us. 

Anyway, still in ICU and will be for a few more days. The recovery is going to take way longer than I originally anticipated - even after she leaves the hospital. She won't be back to 100% for a month or more. 
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No joke either, but I'm glad to hear it isn't in the lungs.  Glad to hear things are going well, if slowly.  Stay strong, you guys got this.

 
Time really flies, I can't believe the last update was on Saturday.  Anyway, she is still in the hospital but should be coming home tomorrow or Friday.  She had steady improvement after the surgery but it was very gradual improvement each day.  No matter, it's nearly behind her now.

She was slowly weaned off the oxygen and they finally removed the oxygen completely today.  She has to go 24 hours without needing the oxygen (based on her oxygen levels) before she can be released - tonight when she is sleeping will be the big test.  They removed one of the chest tubes on Monday, the other chest tube on Tuesday, and the feeding tube and oxygen today.  She will be taking antibiotics for a long time (a month?) with weekly blood tests to ensure her recovery isn't backsliding.

And her sense of humor and good spirits are back even though she is still not 100% (she still looks tired, etc.).  She had to use one of those Adult Potty Chairs while she was hooked up to all those monitors, chest tubes, etc.  Anyway, my wife said she had to go to the restroom and my daughter told her to use that thing.  She's also looking forward to getting a HUGE Lego City set and ice cream when she gets home.

 
Time is flying!  She came home on the 4/7 which was a Thursday and continued to recover well through that weekend.  She went to school on Monday 4/11 for 2 periods and then for 3 periods on 4/12.  Then on 4/13 she had an upset stomach in the morning and we decided to keep her home that day - I worked from home so my wife could go back to work. She ate breakfast but went back to bed until around 10:30 when she said she had to go to the bathroom.  She didn't look right to me so I stayed near by... then she gasped for air a few times while sitting on the toilet and I thought to myself "she needs to get back to bed ASAP".  She was done going #1 so I helped her stand and get her pants up and then she collapsed!  Passed out, completely limp! Fortunately I caught her, carried her to the bed and called 911.  My heart was pounding so hard I couldn't believe it but I was otherwise pretty calm.  She was awake and responsive as soon as we got back to the bed but was really pale.  Her vital signs were good when help arrived and she took a slow ambulance ride to the ER where she had all her surgeries.  They did a bunch of tests and found nothing wrong.  They said she was dehydrated and kept her over night for observation and to give her a bunch of IV fluids.  She'said been home about a week now and started going back to school yesterday for 2 periods.  Hopefully this is the end of the excitement!

 
Steeler said:
Time is flying!  She came home on the 4/7 which was a Thursday and continued to recover well through that weekend.  She went to school on Monday 4/11 for 2 periods and then for 3 periods on 4/12.  Then on 4/13 she had an upset stomach in the morning and we decided to keep her home that day - I worked from home so my wife could go back to work. She ate breakfast but went back to bed until around 10:30 when she said she had to go to the bathroom.  She didn't look right to me so I stayed near by... then she gasped for air a few times while sitting on the toilet and I thought to myself "she needs to get back to bed ASAP".  She was done going #1 so I helped her stand and get her pants up and then she collapsed!  Passed out, completely limp! Fortunately I caught her, carried her to the bed and called 911.  My heart was pounding so hard I couldn't believe it but I was otherwise pretty calm.  She was awake and responsive as soon as we got back to the bed but was really pale.  Her vital signs were good when help arrived and she took a slow ambulance ride to the ER where she had all her surgeries.  They did a bunch of tests and found nothing wrong.  They said she was dehydrated and kept her over night for observation and to give her a bunch of IV fluids.  She'said been home about a week now and started going back to school yesterday for 2 periods.  Hopefully this is the end of the excitement!
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Glad to hear it Steeler!

 
Just seeing this thread for the first time.  Positive thoughts and payers for your daughter. I hope there's no more issues and that she's back to 100% as soon as possible.  :thumbup:

 
That wasn't the end of the excitement :(   My daughter passed out again on Monday morning, back to the ER, additional fluids were given and she came home later that day.  This time she has a heart monitor that she will wear for a month.  If she passes out again (or has any other symptoms/issues), we can press the "record" button on the monitor and have the data sent immediately to the monitoring company and they will forward the information to the doctor.

They still contribute the fainting to being dehydrated as sort of a side effect of the lung surgery.  She is tall 5'8" and really thin - she lost some weight while recovery from the back surgery and never fully regained it.  Tall, thin teen aged girls can have fainting spells when standing up even if they are completely healthy.  And apparently she can become dehydrated easily because she is so thin.  We are redoubling our efforts to get her to eat properly and maintain fluids.  Milkshakes and smoothies are recommended and she likes that!  We are also pushing more Pedialyte (to help with dehydration) and Ensure (to help her regain the wait more quickly) - but these are things she doesn't enjoy as much.

I'm really looking forward to when she is fully recovered and back to normal.

 
Steeler said:
That wasn't the end of the excitement :(   My daughter passed out again on Monday morning, back to the ER, additional fluids were given and she came home later that day.  This time she has a heart monitor that she will wear for a month.  If she passes out again (or has any other symptoms/issues), we can press the "record" button on the monitor and have the data sent immediately to the monitoring company and they will forward the information to the doctor.

They still contribute the fainting to being dehydrated as sort of a side effect of the lung surgery.  She is tall 5'8" and really thin - she lost some weight while recovery from the back surgery and never fully regained it.  Tall, thin teen aged girls can have fainting spells when standing up even if they are completely healthy.  And apparently she can become dehydrated easily because she is so thin.  We are redoubling our efforts to get her to eat properly and maintain fluids.  Milkshakes and smoothies are recommended and she likes that!  We are also pushing more Pedialyte (to help with dehydration) and Ensure (to help her regain the wait more quickly) - but these are things she doesn't enjoy as much.

I'm really looking forward to when she is fully recovered and back to normal.
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I hope she recovers completely quickly Steeler!

 
Steeler said:
That wasn't the end of the excitement :(   My daughter passed out again on Monday morning, back to the ER, additional fluids were given and she came home later that day.  This time she has a heart monitor that she will wear for a month.  If she passes out again (or has any other symptoms/issues), we can press the "record" button on the monitor and have the data sent immediately to the monitoring company and they will forward the information to the doctor.

They still contribute the fainting to being dehydrated as sort of a side effect of the lung surgery.  She is tall 5'8" and really thin - she lost some weight while recovery from the back surgery and never fully regained it.  Tall, thin teen aged girls can have fainting spells when standing up even if they are completely healthy.  And apparently she can become dehydrated easily because she is so thin.  We are redoubling our efforts to get her to eat properly and maintain fluids.  Milkshakes and smoothies are recommended and she likes that!  We are also pushing more Pedialyte (to help with dehydration) and Ensure (to help her regain the wait more quickly) - but these are things she doesn't enjoy as much.

I'm really looking forward to when she is fully recovered and back to normal.
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I don't know if you given updates in another thread, but how is your daughter doing?

 
Hey Curly! 

Sorry I haven't responded to this thread, but things are going really well for her!  Since the 2nd fainting spell we decide to really ease her back into things and just let her recover.  She stayed home from school for about a week after that last episode and is still not back to school full time yet- but screw it, she needs to get fully healthy first.  She's just starting to seem fully like herself if that makes any sense - always upbeat and happy, smiling, joking, etc.  We'll continue to ease her into school, slowly increasing the number of periods she attends until she gets back full time.  She really seems to be in the clear now :thumbup:

 
Steeler said:
Hey Curly! 

Sorry I haven't responded to this thread, but things are going really well for her!  Since the 2nd fainting spell we decide to really ease her back into things and just let her recover.  She stayed home from school for about a week after that last episode and is still not back to school full time yet- but screw it, she needs to get fully healthy first.  She's just starting to seem fully like herself if that makes any sense - always upbeat and happy, smiling, joking, etc.  We'll continue to ease her into school, slowly increasing the number of periods she attends until she gets back full time.  She really seems to be in the clear now :thumbup:
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Oh yesss, great news! So glad to hear she's back to herself again! :towelwave:

 
We just had the one year follow up from the back surgery and everything looks good!  I don't know remember if I mentioned it in the thread, but she lost a bunch of weight after the first surgery and the 2nd surgery just delayed the weight gain - anyway, she is back to her normal weight that she was before the first surgery.  She returned to school full time a few weeks ago and is having no trouble with endurance or whatever throughout the day.  She now seems fully recovered from both surgeries which is a huge relief - and she is still killing me at Mario Cart every day.

 
Steeler said:
We just had the one year follow up from the back surgery and everything looks good!  I don't know remember if I mentioned it in the thread, but she lost a bunch of weight after the first surgery and the 2nd surgery just delayed the weight gain - anyway, she is back to her normal weight that she was before the first surgery.  She returned to school full time a few weeks ago and is having no trouble with endurance or whatever throughout the day.  She now seems fully recovered from both surgeries which is a huge relief - and she is still killing me at Mario Cart every day.
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Yay! So happy to hear she's doing well! X

 
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