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HEALTH UPDATE...RECIEVED A LIVER (1 Viewer)

Woah, don't think I ever opened this thread before. I only did because a friend recently had the surgery and I thought I'd see how things went in here.

Sorry to read what you've been going through, Parm. Hang in there bud, I hope for better days to come.

Would this have been worse if you hadn't had the surgery, being that you'd have the extra weight to carry on top of it?

 
Woah, don't think I ever opened this thread before. I only did because a friend recently had the surgery and I thought I'd see how things went in here.

Sorry to read what you've been going through, Parm. Hang in there bud, I hope for better days to come.

Would this have been worse if you hadn't had the surgery, being that you'd have the extra weight to carry on top of it?
I\m not sure.  When I had the bariatric surgery, the surgeon said at that time I had a fatty liver and it wasn't long after that I ended up in hospital the first  time

The extra weight wasn't helping

 
Hello friends,

I have been offline for a long time due to my ongoing health issues.  In Sept 2016 I was told that I had NASH disease, and would eventually require a new liver.  On Dec 8/16 I was put on the transplant list.  I have not been able to work since Sept 16, due to the illness.  Since that time, I have progressively gotten worse health wise.  Muscle wasting, weakness, lethargy, pain, ascities, unsteady on feet, memory lose, fogginess, word dropping.  It was aweful  So, since Sept of this year, I was called into the hospital 2x for a potential liver, but both times I was sent home as the liver was not viable.  This emotional rollercoaster takes it toll.  I was beginning to think this may never happen.  Then on Dec 6th, I was called to the hospital again around dinner time.  There may be a liver for me, but they wouldn't know until after midnight.  I was in my hospital bed, and at 4:45 am, a Dr came into my room and said I had to be in the OR in 1 hr.  It was surreal.  I was not scared, but am eerie calm fell over me.  My wife and 2 boys were there with me, and walked with me to the OR.  Approx 7 hrs later I was in the ICU.  I was only there for 28 hrs, and then was transferred to the transplant unit.  Physio started on day 3 post op, and I was up walking....very gingerly.  Each day I got a bit better, and on day 8 post op, I was discharged home.  I am back in hospital every 2 days for bloodwork to monitor my anti rejection medication.  Yesterday I had half of the 70 or so staples removed from my incision.  I have lost a lot of weight, as there is little appetite right now. Today is 16 days post op.

I am a very lucky guy.  What an incredible gift to receive right before Christmas.  

I am happy to answer any questions.....Its good to be back

Parm

 
Hello friends,

I have been offline for a long time due to my ongoing health issues.  In Sept 2016 I was told that I had NASH disease, and would eventually require a new liver.  On Dec 8/16 I was put on the transplant list.  I have not been able to work since Sept 16, due to the illness.  Since that time, I have progressively gotten worse health wise.  Muscle wasting, weakness, lethargy, pain, ascities, unsteady on feet, memory lose, fogginess, word dropping.  It was aweful  So, since Sept of this year, I was called into the hospital 2x for a potential liver, but both times I was sent home as the liver was not viable.  This emotional rollercoaster takes it toll.  I was beginning to think this may never happen.  Then on Dec 6th, I was called to the hospital again around dinner time.  There may be a liver for me, but they wouldn't know until after midnight.  I was in my hospital bed, and at 4:45 am, a Dr came into my room and said I had to be in the OR in 1 hr.  It was surreal.  I was not scared, but am eerie calm fell over me.  My wife and 2 boys were there with me, and walked with me to the OR.  Approx 7 hrs later I was in the ICU.  I was only there for 28 hrs, and then was transferred to the transplant unit.  Physio started on day 3 post op, and I was up walking....very gingerly.  Each day I got a bit better, and on day 8 post op, I was discharged home.  I am back in hospital every 2 days for bloodwork to monitor my anti rejection medication.  Yesterday I had half of the 70 or so staples removed from my incision.  I have lost a lot of weight, as there is little appetite right now. Today is 16 days post op.

I am a very lucky guy.  What an incredible gift to receive right before Christmas.  

I am happy to answer any questions.....Its good to be back

Parm
Wow Parm, that's incredible.  Sending great recovery thoughts your way!

 
So stoked for you!! Merry Christmas to you and your family. I suspect Christmas is going to hold a bit more meaning for you guys from here on out.

 
Great news, parm! Best/happiest thoughts for continued ###-kicking during your recovery. 

What a great way for you and your family too head into the new year after such a rough 2017... All the best!

 
Great news Parm. Continued T&Ps.  I may pm you with some questions because my wife just went on the liver wait list 12/11/17.  

 
Merry Christmas and congrats, Parm!  I have often wondered how you've been doing.  What a wonderful thing to hear in time for the holidays!  BE WELL!!  :)

 
Very happy to see this.  My MIL died on the table getting her transplant, and honestly I was worried for you.  The Dr. at Yale told us she would have been as good as new almost immediately if it worked.  Do you feel like a million bucks already?

 
Last edited by a moderator:
Very happy to see this.  My MIL died on the table getting her transplant, and honestly I was worried for you.  The Dr. at Yale told us she would have been as good as new almost immediately if it worked.  Do you feel like a million bucks already?
Yes,

Aside from the normal post op recovery pain, I feel great.

I had a few bumps, but all feels good now

 
Just back from my clinic appointment.  All my labs came back "Perfect".  Have to follow up weekly now to monitor the anti rejection levels.  This road is starting to get smoother.  

Big things in the not so distant future!

 
Just back from my clinic appointment.  All my labs came back "Perfect".  Have to follow up weekly now to monitor the anti rejection levels.  This road is starting to get smoother.  

Big things in the not so distant future!
Great news! 

 
Hello friends,

I have been offline for a long time due to my ongoing health issues.  In Sept 2016 I was told that I had NASH disease, and would eventually require a new liver.  On Dec 8/16 I was put on the transplant list.  I have not been able to work since Sept 16, due to the illness.  Since that time, I have progressively gotten worse health wise.  Muscle wasting, weakness, lethargy, pain, ascities, unsteady on feet, memory lose, fogginess, word dropping.  It was aweful  So, since Sept of this year, I was called into the hospital 2x for a potential liver, but both times I was sent home as the liver was not viable.  This emotional rollercoaster takes it toll.  I was beginning to think this may never happen.  Then on Dec 6th, I was called to the hospital again around dinner time.  There may be a liver for me, but they wouldn't know until after midnight.  I was in my hospital bed, and at 4:45 am, a Dr came into my room and said I had to be in the OR in 1 hr.  It was surreal.  I was not scared, but am eerie calm fell over me.  My wife and 2 boys were there with me, and walked with me to the OR.  Approx 7 hrs later I was in the ICU.  I was only there for 28 hrs, and then was transferred to the transplant unit.  Physio started on day 3 post op, and I was up walking....very gingerly.  Each day I got a bit better, and on day 8 post op, I was discharged home.  I am back in hospital every 2 days for bloodwork to monitor my anti rejection medication.  Yesterday I had half of the 70 or so staples removed from my incision.  I have lost a lot of weight, as there is little appetite right now. Today is 16 days post op.

I am a very lucky guy.  What an incredible gift to receive right before Christmas.  

I am happy to answer any questions.....Its good to be back

Parm
Great news Parm!  May this new year be the start of much better health for you.

 

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