Thanks for sharing this. If you don't mind, I have a question. I am coming at this discussion as someone with so little tragedy in my life, so I admittedly struggle to really connect with the perspectives of those who have truly suffered.
When you talk about having hope during that time in your life, what is it that your hope was looking forward to? Was it primarily that you maintained hope that Chance would be healed? Or was it primarily a hope that things would be ok even if the worst happened to Chance? Or a combination of the two or sometime entirely different?
I remember a while back thinking about how we mostly use the word "hope" as it relates to low-probability events. We "hope" something that is unlikely to happen will happen, whether that's something as trivial as the Commanders winning the Super Bowl this year or as significant as the healing of a child facing low odds. Rarely do I hear someone talk about hope in something that they are actually confident about. So, for a long time, I didn't have a great view on the concept of hope because I equated it with being unrealistic. I guess I can see value in even unrealistic hope to get through a time of crisis, but I think I would then worry about a loss of hope when the desired outcome doesn't happen. In your experience, is the value of hope in hoping to beat those odds or does the value of hope come from hoping in some other aspect of the situation? Or, again, is something completely different going on that I'm maybe not connecting with because of my life experience?
I hope my question makes sense.
Good topic!
While there is obviously nothing inherently wrong with hope, I tend to feel it can sometimes cloud your judgment and prevent you from facing reality today. You can find a lump somewhere and hope it goes away. Hope prevents you from discussing it with your spouse and starting the necessary steps immediately. Living in the now forces you to take the steps necessary, while they are still small. Every problem in the world starts off small and should be addressed asap, instead of just hoping it gets better or goes away. You and your spouse are not getting along, hopefully this new puppy will bring us closer together. That’s an irrational decision. Instead, have the tough conversations and whatever happens, happens. I prefer staying positive as opposed to hope. It lets you live for today and make the best of each moment. I know that both can be possible.
My wife regularly hopes this doesn’t happen or that doesn’t happen. I’m just like “worry about it if or when it happens” Life is too short.
These are both incredibly thoughtful posts with inquiries that I have spent a lot of time on. I want to take the time necessary to respond but am tied up for a bit. In the meantime, I wanted to thank you for raising these questions which will make for a great discussion!
Again, thank you for your posts. I’ve thought a lot about the concept of hope and how it can impact our lives. I’ve never reduced any of those thoughts to writing, though I’ve toyed with the idea of doing so. This thread got me to finally try to articulate some of the things that have been rattling around in my brain. So thank you
@Joe Bryant for starting this thread.
Now be forewarned, there is nothing earth shattering or even particularly insightful here. And it may not be convincing at all to anyone. Maybe my conclusions are nothing more than the pollyanna ramblings of someone trying to escape the abyss. But I believe them all the same. This is all pretty much stream of consciousness, so please forgive any lack of clarity, triteness, or typos.
WHAT IS HOPE?
HOPE IS NOT DENIAL - To be hopeful, one isn’t required to ignore reality. In fact, the recognition of reality is almost an essential component of true hopefulness. When I speak to families facing life altering diagnoses, the mantra I often share is “know the plan, work the plan.” There is a certain peace that comes with having purpose and direction when facing down something so scary. But there is a third part to the mantra - “be hopeful about the plan.” Because being hopeful puts you in a positive frame of mind that helps you mentally meet the unavoidable challenges you must face. Hope is not being blind to reality. Rather, hope is remaining positive as you face it down.
HOPE IS TRIUMPH OVER DESPAIR - When facing a challenging reality, an acute sense of despair can infect and ultimately overwhelm you. Despair is perhaps the most insidious of all emotions. Despair doesn’t spur you to action - it paralyzes you. It steals happiness from you. It makes you feel powerless to the world around you. And when you feel powerless, you often become powerless.
HOPE IS THE ABSENCE OF CYNICISM - There is so much beauty in the world. There is so much goodness in the hearts of those around you. Cynicism makes you suspicious of that beauty and goodness. And when you can’t trust something, in many ways it ceases to exist. A hopeful heart is one that trusts in the beauty and goodness of the world, and that trust has a way of revealing those things to you in fundamental and everlasting ways.
HOPE UNLOCKS JOY - Similarly, when you have a hopeful disposition devoid of despair and cynicism, it opens your heart and mind to experience joy. To welcome it. To embrace moments that make your heart smile. This is of course not to say that joy is unachievable by those who are not hopeful. But for a true cynic, joy is only occasional and almost always momentary.
HOPE IS COMPLICATED . . . AND ALSO SIMPLE - It can be hard to hope. What if I am hopeful and things don’t turn out the way I want them to? What if the bad thing that I fear ends up happening anyway despite all my hope? Will I have regrets? Will I curse my stupid misplaced hopefulness? These questions and thoughts can create doubt, complicating your efforts to have a hopeful heart. Lowering our expectations and giving in to fear and despair is a way to protect ourselves from feeling betrayed by hope.
But one thing I learned after experiencing one of the worst things that a parent can experience is that the outcome is not the point of hope. HOPE IS THE POINT OF HOPE. Sure, had I not had hope, I would have been “right” that life sucks and is unfair. I would have been “right” to be cynical. I would have been “right” to be overwhelmed by despair. And what would being right have cost me? It would have cost me all the joy, all the beauty, all the goodness of those last fifteen months with Chance. As I mentioned during that radio interview, some of the greatest and most meaningful moments of my life occurred during those fifteen months when Chance was battling cancer. Without a hopeful heart, I’m afraid I would have missed them. They would have been invisible to me, lost in the fog of grief and despair and anger. And after losing Chance, had I not fought to regain my hopeful heart, I would have been robbed of all the joy, beauty and goodness that still exists in my life and with my loved ones. Indeed, I very well may have been robbed of life itself. So yes, embracing hope can be difficult and challenging. And you may worry that it will ultimately betray you. But in the end, I think it’s a simple realization that hope, if only for the sake of having hope, is still worth it. Indeed, it may be worth everything.