RIP Riley (1 Viewer)

[shadyridr]

Do they let yo hold her skin-to-skin?  Studies show that helps preemies and other ill newborns.  Maybe it could help you and yours.

No 

 

[James Daulton]

So I only spent a few hours there today because I was alone and as much as I love my Riley it's boring talking to a sleepy three week old. However, I fed her and she did eat 25ml by mouth. The ability is there imo. She just tires out easily. The nurse seemed confident she'd get it eventually but all nurses say different things. 

At this point Shady, slow boring progress is very very good.

 

[shadyridr]

At this point Shady, slow boring progress is very very good.

Oh I'm not complaining at all. Very happy with the way things are going so far

 

[Righetti]

Keep talking, though.  (Or read some books to her?)  Trust in the power of that ...let her 'hear' your love for her.  I suspect those lonely hours between the two of you will be powerful memories to hold close.  And - Circle of Life - maybe she will return the favor many, many years from now.

Maybe read the FFA to her, start with Tim's thread

 

[shadyridr]

Maybe read the FFA to her, start with Tim's thread

Not trying to put her in a coma again

 

[shadyridr]

The transition from tears to laughter has been remarkable and inspiring.

Not out of the woods yet, but the clearing is just around the bend. So happy for you and yours, Shady.

I'll be a daddy in the not too distant future and I'm sure I'll look back on this thread as an example of how to handle adversity when the inevitable bumps in the road arise. Hopefully they're not as massive as yours but I hope to handle them with similar strength and aplomb.

Good job, daddy 

A great support system (especially that gofundme), Riley's progress, and a great family/friends network have been key. Definitely not out of the woods yet but I'm very hopeful. Ran for the first time in three weeks today (it was a disaster) but I did it.

 

[QuizGuy66]

Here's hoping that Riley makes that run with you one day, shady!

 

[Fred Flintstone]

Keep talking, though.  (Or read some books to her?)  Trust in the power of that ...let her 'hear' your love for her.  I suspect those lonely hours between the two of you will be powerful memories to hold close.  And - Circle of Life - maybe she will return the favor many, many years from now.

And music, always have music playing

 

[Capella]

Not trying to put her in a coma again

Jesus!

 

[James Daulton]

Jesus!

Almost feel bad for Timmy...almost.

 

[bigbottom]

Glad to hear that things are progressing, albeit slowly. Still keeping all of you in my prayers. 

 

[Mrs. Rannous]

Maybe read the FFA to her, start with Tim's thread

I think that violates the Geneva Conventions.

 

[Otis]

Thinking about your fam today Shady. Looking for more slow and steady forward progress. 

 

[Tom Servo]

Almost feel bad for Timmy...almost.

Have you read Mr. Ishida's Bookstore?

 

[BigJohn]

Morning Riley. 

 

[Righetti]

We haven't seen a recent picture, any charce you can post one, Shady?

 

[shadyridr]

We haven't seen a recent picture, any charce you can post one, Shady?

Of course

 

[shadyridr]

http://imageshack.com/a/img924/6287/Iz17Yw.jpg

 

[shadyridr]

http://imageshack.com/a/img921/6683/VRuOrJ.jpg

 

[shadyridr]

http://imageshack.com/a/img921/5469/pVZjs6.jpg

 

[Nathan R. Jessep]

 keep fighting, baby girl! Beautiful, shady. 

 

[shadyridr]

Those pics were from the last few days

 

[Uruk-Hai]

I think you should set aside some money for hair products. Lordy day, that girl is gonna have a full head of it. You Italian, shady?

 

[shadyridr]

I think you should set aside some money for hair products. Lordy day, that girl is gonna have a full head of it. You Italian, shady?

Her hair shocked us when she was born. Our son was blond and bald. Yes both me and my wife are 100% Italian

 

[Brady Marino]

Sorry if this has been asked/addressed, but is she trying to communicate through babbling, grunting, cooing, etc?

 

[D in the D]

Slow and steady wins the race.  Thanks for the updates. Keep the faith, Shady.

 

[shadyridr]

Sorry if this has been asked/addressed, but is she trying to communicate through babbling, grunting, cooing, etc?

Yes she coos. Way too young to babble. Doesn't cry but several times looks like she wants to. I think it's the medicine.

 

[James Daulton]

From those pics, she looks just like any beautiful newborn.  The lack of obvious distress, jaundice, gauntness, etc has got to be a good sign, yes?  She also seems fairly alert for a little one who recently had such a huge scare.  Riley looks like she wants to gtfo of there and get home to casa de Shady.

#TeamRiley

 

[ChiefD]

Yes she coos. Way too young to babble. Doesn't cry but several times looks like she wants to. I think it's the medicine.

Great news. 

 

[matttyl]

Not trying to put her in a coma again

Easily one of the best posts in this thread. 

 

[matttyl]

http://imageshack.com/a/img924/6287/Iz17Yw.jpg

That's quite a stink eye she's got!  Was this the look she gave you when you mentioned reading Tim's thread to her?

 

[Scoresman]

That's quite a stink eye she's got!  Was this the look she gave you when you mentioned reading Tim's thread to her?

I think its more a look of "Get this ####### straw out of my nose!"

 

[rail]

Love the pics.  What a little doll. 

 

[Spin]

Transferring to the crib is a great step towards getting her home! 

 

[Arizona Ron]

@shadyridr  I've always considered you a major dude in my book.  Stay strong bro.

 

[Yankee23Fan]

Yeah, she continues to be beautiful. 

 

[Mrs. Rannous]

That's quite a stink eye she's got!  Was this the look she gave you when you mentioned reading Tim's thread to her?

That was my thought.  And that child has a ton of hair.  Best be ready to braid and otherwise style it.

She is just totally cute.

 

[krista4]

http://imageshack.com/a/img921/6683/VRuOrJ.jpg

This picture.  Swoon.

 

[QuizGuy66]

Thanks for sharing the awesome pics shady

 

[shadyridr]

They are lowering the steroids again. There is no protocol for this treatment so they are just seeing how she does. The feedings are still inconsistent. She takes 10ml, 15ml, 25ml, etc but is supposed to take 75ml (they upped her intake again cuz she's still not gaining). She had pt today and is exhausted. Doctor basically said they are trying to hold off on putting tube in but they want her to come home so it's a delicate line on waiting.

 

[shadyridr]

Also, doctor said we are open to come for all her feedings but it's tough because we live half hour away and she eats every 3 hours. My wife is still sick so I fed her at 12 and now I'm at a German bar by myself eating a burger and drinking beer so I can give her a 3pm feeding. Not complaining about that though lol

 

[Buzzbait]

Also, doctor said we are open to come for all her feedings but it's tough because we live half hour away and she eats every 3 hours. My wife is still sick so I fed her at 12 and now I'm at a German bar by myself eating a burger and drinking beer so I can give her a 3pm feeding. Not complaining about that though lol

I think you've earned a burger and beer! 

 

[QuizGuy66]

Friday Riley bump

 

[fred_1_15301]

Also, doctor said we are open to come for all her feedings but it's tough because we live half hour away and she eats every 3 hours. My wife is still sick so I fed her at 12 and now I'm at a German bar by myself eating a burger and drinking beer so I can give her a 3pm feeding. Not complaining about that though lol

Nice!  Take care of our girl.

 

[SameSongNDance]

Beautiful pictures shady, I hope you can bring your baby girl home soon.

 

[AnonymousBob]

Also, doctor said we are open to come for all her feedings but it's tough because we live half hour away and she eats every 3 hours. My wife is still sick so I fed her at 12 and now I'm at a German bar by myself eating a burger and drinking beer so I can give her a 3pm feeding. Not complaining about that though lol

Glad to see you're taking care of yourself and your wife. You'll need that energy once Riley comes home! 

 

[Ministry of Pain]

http://imageshack.com/a/img924/6287/Iz17Yw.jpg

This one's my fav so far.

"Daddy, don't worry. Now turn off that light and let me get some more sleep, tyvm!"

 I echo the slow n steady approach of others in here. Getting things stable for her is what's important. She will catch right up with everyone else but she needs time to heal. 

 

[Righetti]

She's awesome Shady

let me know if you want some company for that burger and beer one day.  Always looking for a way to kill a few hours during a workday

 

[shadyridr]

She's awesome Shady

let me know if you want some company for that burger and beer one day.  Always looking for a way to kill a few hours during a workday

The place is awesome if you ever find yourself in SI... Nurnberger Bierhaus

 

[RBM]

http://imageshack.com/a/img921/6683/VRuOrJ.jpg

Looks great here man. Just beautiful.