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RIP Riley

that's great news Shady. 

I'll add to stay on top of the all of this and keep advocating above and beyond what support staff is providing... nobody has Riley's back more than you, even these genuinely lovely people.

 
Need some thoughts and prayers from team Riley everyone. We came to children's hospital in long island for pre surgical testing for her eye exam under anesthesia next week and her o2 levels kept desating for no apparent reason so they admitted us to PICU. She shows no signs of respiratory distress when it happens. She has had 24 hour EEG and showing no seizures. She has had two chest xrays come back normal. No respiratory infection. They said her heart looked a little large for her body in her xray so they are gonna give her electrocardiogram. We have to stay overnight again and right now they are truly baffled. I'm an hour away from home so can't go back and forth. My wife has been home with Justin the whole time and he's asking a lot of questions. Thankfully he can visit her here so they're coming later.

 
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shadyridr said:
Need some thoughts and prayers from team Riley everyone. We came to children's hospital in long island for pre surgical testing for her eye exam under anesthesia next week and her o2 levels kept desating for no apparent reason so they admitted us to PICU. She shows no signs of respiratory distress when it happens. She has had 24 hour EEG and showing no seizures. She has had two chest xrays come back normal. No respiratory infection. They said her heart looked a little large for her body in her xray so they are gonna give her electrocardiogram. We have to stay overnight again and right now they are truly baffled. I'm an hour away from home so can't go back and forth. My wife has been home with Justin the whole time and he's asking a lot of questions. Thankfully he can visit her here so they're coming later.
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Wow man.   I'll definitely send some thoughts, prayers and positive vibes your way.    Hopefully it ends up being nothing.   

 
shadyridr said:
Need some thoughts and prayers from team Riley everyone. We came to children's hospital in long island for pre surgical testing for her eye exam under anesthesia next week and her o2 levels kept desating for no apparent reason so they admitted us to PICU. She shows no signs of respiratory distress when it happens. She has had 24 hour EEG and showing no seizures. She has had two chest xrays come back normal. No respiratory infection. They said her heart looked a little large for her body in her xray so they are gonna give her electrocardiogram. We have to stay overnight again and right now they are truly baffled. I'm an hour away from home so can't go back and forth. My wife has been home with Justin the whole time and he's asking a lot of questions. Thankfully he can visit her here so they're coming later.
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Sorry to hear this shady.  Thoprawishes your way today.

 
shadyridr said:
Need some thoughts and prayers from team Riley everyone. We came to children's hospital in long island for pre surgical testing for her eye exam under anesthesia next week and her o2 levels kept desating for no apparent reason so they admitted us to PICU. She shows no signs of respiratory distress when it happens. She has had 24 hour EEG and showing no seizures. She has had two chest xrays come back normal. No respiratory infection. They said her heart looked a little large for her body in her xray so they are gonna give her electrocardiogram. We have to stay overnight again and right now they are truly baffled. I'm an hour away from home so can't go back and forth. My wife has been home with Justin the whole time and he's asking a lot of questions. Thankfully he can visit her here so they're coming later.
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Team Riley standing by.  

 
We've gotten over this many hurdles - she'll get us all through this one, also. 

I presume the hour away is not this way (LI)... If it somehow is and we out here can be of any help please just holla.

 
Koya said:
We've gotten over this many hurdles - she'll get us all through this one, also. 

I presume the hour away is not this way (LI)... If it somehow is and we out here can be of any help please just holla.
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Cohen's childrens medical center

 
shadyridr said:
Cohen's childrens medical center
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Out in Nassau County? It's like 15-20 min from me. 

SERIOUSLY, as in the wife's visiting friends and I literally have nothing planned this weekend - if you need anything, let me know.  Like, I know a Shake Shack down the block or whatever you need, would be happy to make a delivery.  Hit me up in PM, or on Facebook, whichever. 

 
Koya said:
Out in Nassau County? It's like 15-20 min from me. 

SERIOUSLY, as in the wife's visiting friends and I literally have nothing planned this weekend - if you need anything, let me know.  Like, I know a Shake Shack down the block or whatever you need, would be happy to make a delivery.  Hit me up in PM, or on Facebook, whichever. 
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You're 20 min away from me as well. Anything you need, just ask.

 
riley i am totally in and always will be just like everyone else here you fight and you get through this no matter what you got this and we got your six 

 
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