She is a warrior, her spirit won't give up!They called us to rush over last night at 930pm because she was in really bad shape just in case she didn't make it. We got there and there were 10 people in her room trying to save her life. Her face was blue. Worst night ever. Somehow they stabilized her and my warrior survived the night and her color came back. At 2am we came back to get some sleep and they said they would call and they didn't. Heading over there now to see our warrior. I thought we lost her and already contemplated life without her. She has to get better. I can't go through that again.
I'm really out of words Shady. Just keep fighting for your girl and love her every single measure of time.They called us to rush over last night at 930pm because she was in really bad shape just in case she didn't make it. We got there and there were 10 people in her room trying to save her life. Her face was blue. Worst night ever. Somehow they stabilized her and my warrior survived the night and her color came back. At 2am we came back to get some sleep and they said they would call and they didn't. Heading over there now to see our warrior. I thought we lost her and already contemplated life without her. She has to get better. I can't go through that again.
I'm really out of words Shady. Just keep fighting for your girl and love her every single measure of time.
I don't know what to say but my thoughts are with Riley, Justin, and you and your wife.
I started feeling horrible and weak and losing my breath about a year and a half ago. Being 45 and having treated my body like a frat house, I thought it was just age catching up with me. It got worse and worse to the point that I couldn't walk more than 20 feet without feeling like I had run a marathon. I checked myself into a local hospital and spent a day there getting tests. They diagnosed me with Congestive Heart Failure. Gave me some meds and told me to start living a healthier life and I could get better. The meds helped a little and I felt better for about two weeks. Then it got worse again and I drive an hour and checked myself into Cedars Sinai in Beverly Hills. I have good insurance so I decided to check myself into the best hospital I could find. I was there for 5 days running tests and actually had 2 catheters ran into my heart to test the chambers. Turns out I have pulmonary hypertension. I did the same reading you did. Affects around 1 in 500,000 people, at least the type I have. It also says that 50% of people die within 7 years. That was a scary thought. But my doctor told me that when they catch it early, and with treatment you can live a long life. I was put on two medications and IMMEDIATELY began feeling better. It's been six months now and I am able to live a somewhat normal life.Reading about pulmonary hypertension scares the life out of me. It does not have a good prognosis.
Fantastic relatable story. Thanks for sharing.I started feeling horrible and weak and losing my breath about a year and a half ago. Being 45 and having treated my body like a frat house, I thought it was just age catching up with me. It got worse and worse to the point that I couldn't walk more than 20 feet without feeling like I had run a marathon. I checked myself into a local hospital and spent a day there getting tests. They diagnosed me with Congestive Heart Failure. Gave me some meds and told me to start living a healthier life and I could get better. The meds helped a little and I felt better for about two weeks. Then it got worse again and I drive an hour and checked myself into Cedars Sinai in Beverly Hills. I have good insurance so I decided to check myself into the best hospital I could find. I was there for 5 days running tests and actually had 2 catheters ran into my heart to test the chambers. Turns out I have pulmonary hypertension. I did the same reading you did. Affects around 1 in 500,000 people, at least the type I have. It also says that 50% of people die within 7 years. That was a scary thought. But my doctor told me that when they catch it early, and with treatment you can live a long life. I was put on two medications and IMMEDIATELY began feeling better. It's been six months now and I am able to live a somewhat normal life.
I went through all the dark thoughts that you have when you read that 59% of people die within 7 years. Before I was diagnosed I had thoughts of giving up and if I didn't have my two sons I don't know what I would have done. Fortunately I didn't take that path. Now I have a future.
Sure, there are lots of things I can't do anymore. I can't play sports. I can't go to places that require lots of waking, yet. But I can watch my kids grow up. I hope can see my grandchildren born. I can play video games and fantasy football. I can still enjoy my life. I'm not saying everything is going to be ok. I'm just trying to let you know there is hope. Don't give up. PM me if you ever want to talk.
Unfortunately it doesn't sound like we caught Rileys in time. They had to cut her procedure short and she's in real bad shape right now.I started feeling horrible and weak and losing my breath about a year and a half ago. Being 45 and having treated my body like a frat house, I thought it was just age catching up with me. It got worse and worse to the point that I couldn't walk more than 20 feet without feeling like I had run a marathon. I checked myself into a local hospital and spent a day there getting tests. They diagnosed me with Congestive Heart Failure. Gave me some meds and told me to start living a healthier life and I could get better. The meds helped a little and I felt better for about two weeks. Then it got worse again and I drive an hour and checked myself into Cedars Sinai in Beverly Hills. I have good insurance so I decided to check myself into the best hospital I could find. I was there for 5 days running tests and actually had 2 catheters ran into my heart to test the chambers. Turns out I have pulmonary hypertension. I did the same reading you did. Affects around 1 in 500,000 people, at least the type I have. It also says that 50% of people die within 7 years. That was a scary thought. But my doctor told me that when they catch it early, and with treatment you can live a long life. I was put on two medications and IMMEDIATELY began feeling better. It's been six months now and I am able to live a somewhat normal life.
I went through all the dark thoughts that you have when you read that 59% of people die within 7 years. Before I was diagnosed I had thoughts of giving up and if I didn't have my two sons I don't know what I would have done. Fortunately I didn't take that path. Now I have a future.
Sure, there are lots of things I can't do anymore. I can't play sports. I can't go to places that require lots of waking, yet. But I can watch my kids grow up. I hope can see my grandchildren born. I can play video games and fantasy football. I can still enjoy my life. I'm not saying everything is going to be ok. I'm just trying to let you know there is hope. Don't give up. PM me if you ever want to talk.
Holy ####Told my ####### father Riley may be dying. These were his comforting words...
Life is not fair in general. Everyone has their share of problems. Life is temporary
Who says #### like that?
It is very easy for me to sit here and type this, but please, please dont think about this. From what I remember, your relationship with your father was not good.Told my ####### father Riley may be dying. These were his comforting words...
Life is not fair in general. Everyone has their share of problems. Life is temporary
Who says #### like that?
The apple doesn't fall far from the tree, but sometimes it hits the ground running... You should be proud you're not an ####### like your dad and that you have become a great person despite him.Told my ####### father Riley may be dying. These were his comforting words...
Life is not fair in general. Everyone has their share of problems. Life is temporary
Who says #### like that?
JFC that's horrible, sorry you have to deal with that during all of what's going on with Riley.Told my ####### father Riley may be dying. These were his comforting words...
Life is not fair in general. Everyone has their share of problems. Life is temporary
Who says #### like that?
Yup.Thinking about you guys while sitting in a dark room with tears in my eyes
Just keep fighting for your girl and love her every single measure of time.
These two posts reminded me of a situation from several years ago - my boss at the time lost his infant son to complications from a heart defect. He and his wife found some level of solace in the fact that their son knew he was loved during his time with his family. I'm sure Riley knows she is loved by her immediate family and you know how much she is loved by her extended family here at FBG. I started this post literally an hour ago, I just don't know how to finish it and I'm sitting here with tears rolling down my face. I'll just say I thought that was a remarkable way for my boss and his wife to view their situation. I hope and pray Riley turns the corner, but either way she is immensely loved and she knows it.As for Justin, if she passes, you tell him that he was the best big brother in the world. You tell him that Riley was a special angel that brought your family (real and this one) together and she fought hard for him.