Here is the eulogy:
For those of you who may not know me, I am XXXXXXs cousin XXXXX. XXXXXXX has given me the honor to eulogize his beautiful daughter Riley through his words.
Most of you know Riley’s story by now. Riley was born with a rare genetic condition called IP that can range from having mild to very severe complications. Unfortunately, our Riley had some very serious complications. On day 4 of her life, she suffered from seizures and strokes. She was given a poor prognosis for survival but she did survive. She was in the NICU for 7 weeks recovering and the day she was discharged was one of the happiest days of Riley’s family’s lives. She spent 8 weeks at home and it was the best weeks of mom, dad, and big brother, Justin’s lives. They knew there would be several challenges ahead but they also knew they could overcome them together as a family providing all the love and strength Riley would need to beat the odds. Unfortunately, hiding inside Riley was an unknown, even more rare complication of IP called pulmonary hypertension that proved to be too much for one little girl to handle.
While Riley was only with us a little over 3 months, she inspired thousands across the world. From a bunch of anonymous fantasy football geeks on a message board who coined the phrase #TeamRiley to hundreds of moms on an IP support group who’s daughters also battled the same rare condition that Riley fought. Everyone was rooting for Riley. Riley went by many nicknames since she was born. Everybody had their favorite pet name for her from Ri-Ri to Smushy to Squishy to RileyBear to Supergirl. They were all cute names for her but our favorite nickname of all, the one that embodied her true spirit, was Riley the Warrior. She was a true warrior and fighter in every sense of the word. There are not many people that could go through the amount of procedures she went through looking more and more beautiful after each one.
Despite being with us a short time, we all loved our beautiful Riley in our own special way. Riley was the little girl her mommy always wanted. Her mom and dad were shocked when she was born because of all her hair and eventually that hair started turning red! She was a spitting image of mommy and while mommy only got to dress her up in all her little outfits for 8 weeks we can all take solace in knowing how Riley would have looked like when she grew up. One just needs to look at her mother.
To dad, Riley was his little princess he would always protect. He loved holding her little body in his arms and rocking her and he loved stroking her beautiful soft hair. Riley taught daddy how to be compassionate and tore away at his rough exterior to open up his heart to others. She changed him as a human being.
To Justin, he was very happy to FINALLY become a big brother! He waited almost 7 years to become one and he adored her so much. He always begged to hold her, feed her, and was always eager to wake her up to eat her bottle and help with all her exercises. He was, and still is, the most amazing big brother his parents could ever imagine having and he would have protected her for his whole life. Justin’s mom and dad are VERY proud of the young man Justin has become. Riley had numerous developmental delays, one being tracking. However, EVERY time Justin spoke, Riley stared right into his big blue eyes and listened. They had a bond like none other.
To the XXXXXXXXs, Riley represented hope during a very bleak time. Riley’s nanny XXXXXX was passing away from cancer and she represented the strength we needed when Riley suffered her stroke. After XXXXXXX passed, we all looked at Riley as the hope to get us through those dark times. She survived and she came home shortly after and she was now displaying the same strength to all of us to get through XXXXXXX’s passing.
Riley’s passing will not be for nothing. Thanks to the great doctors that took care of Riley and the IP Foundation, they are currently in the process of updating the protocols to include screenings for Pulmonary Hypertension in all IP babies. We know these new protocols will not bring Riley back but we’d like to think if they save even one baby’s life, Riley will be smiling from up above.
In closing, Riley the Warrior, was loved by and inspired more people in her short 3 months on Earth than most people do in their entire lifetime and we will forever be proud of her for how she fought and battled. It is not fair when a child passes at such a young age. People often say heaven got a new angel and that may be true but it is also ok to be selfish and want that angel for ourselves to be with us here. That is true about Riley. We all wanted her with us here. We may never understand fully why she was taken away from us at a very early age but we know why she was here. When Riley suffered through her first health crisis, Riley’s mom and dad found inspiration in a song called “Don’t Let Me Down.” Some of the lyrics of that song include the following verse:
[SIZE=12pt]Crashing, hit a wall
Right now I need a miracle
Hurry up now, I need a miracle
Stranded, reaching out
I call your name but you're not around
I say your name but you're not around[/SIZE]
[SIZE=12pt]I need you, I need you, I need you right now
Yeah, I need you right now
So don't let me, don't let me, don't let me down[/SIZE]
Riley was all of our miracles. She may be gone but she did not let us down. She was here to inspire us all to become better people. She was here to teach us again how to love one another. She was her to teach us how to fight and never lose hope. She was here to make Justin an amazing young man. And she was here to hopefully one day, save other babies. She was a true gift. Riley the Warrior, we will forever have holes in our hearts without you but we will never forget you.