AhrnCityPahnder
Yinz-o-riffic
####. Sorry.
You will be able to cherish that picture forever, GB.We only took one picture with all four of us in it
Definitely. Scan it, make copies, etc. Quite possibly your most valuable tangible possession now.You will be able to cherish that picture forever, GB.
a bump for the above...Ipif.org
that one... just layed me out cold.We only took one picture with all four of us in it
Shady, I cant say it better than the jvdesigns.jvdesigns2002 said:Uggh--I wish I was better with words--as I know I'm not capable of expressing how sorry I am for your loss. What you have gone through and what you are currently going through is beyond the scope of what I can even fathom. I truly wish you and your entire family all of the strength, love and positive energy that you need to get through these tough times. I also want to commend you, your family, and Riley (God bless your soul) all for being pillars of strength, courage, and love. While its impossible for every story to have a perfectly happy ending--it is possible to draw inspiration and enlightenment from these imperfect stories. I know that this probably doesn't mean much to you--but the strength, courage and love that you and Riley have shown throughout this entire ordeal has been nothing short of amazing and inspirational to me. I know I'm not the only one. Read through this thread--you guys have touched so many lives. For this I say "Thank You"--and "God Bless you for giving us the opportunity and honor to let Riley touch our lives". Deepest condolences and much love.
My god. Reading that was crushing. So sorry for you and your family.Riley fought so hard but she couldn't do it anymore. RIP Riley. My warrior.
I'm completely heart broken. Justin got to kiss her good bye.
Not true.
Imagine how you'd feel if you hadn't done all of those things. Any child in a similar situation would be extremely lucky to have parents like you dedicating their lives trying to do everything they can. The fact is you went above and beyond doing absolutely everything you could and then some and Riley thanks you for it.Went back and forth to the hospital for 7 weeks while she was in NICU, took a ton of days off work to be at every doctor appointment, went to Early Intervention meeting and fought for her to get services, joined support groups on Facebook for pediatric stroke, ip, children with special needs, and pulmonary hypertension. Did tons of research on stroke, seizures, pulmonary hypertension, babies not gaining weight. And it was all for nothing. I can't believe she's gone. A week ago at this time was her appointment for pre surgical testing and I didn't think anything was wrong with her and now I'm planning her funeral. Life is not fair.
The nurse for the eye care facility just called and left a message asking how the pre surgical testing went and to remember put the drops in her eyes. We had to cancel the christening party we had planned for her in October. She never had a party, I never bought her a gift, I barely took her out to do anything, we went to lego land the Monday before this all happened and cheesecake factory. It was like the only thing we ever did like a normal family. That was her great vacation. I posted pics on Facebook without a care in the world and now she's gone.
Man, you put forth more effort into being a father for her in a short time than some others do over decades. Your wife and son and those around you including us saw that and won't forget it.Went back and forth to the hospital for 7 weeks while she was in NICU, took a ton of days off work to be at every doctor appointment, went to Early Intervention meeting and fought for her to get services, joined support groups on Facebook for pediatric stroke, ip, children with special needs, and pulmonary hypertension. Did tons of research on stroke, seizures, pulmonary hypertension, babies not gaining weight. And it was all for nothing. I can't believe she's gone. A week ago at this time was her appointment for pre surgical testing and I didn't think anything was wrong with her and now I'm planning her funeral. Life is not fair.
The nurse for the eye care facility just called and left a message asking how the pre surgical testing went and to remember put the drops in her eyes. We had to cancel the christening party we had planned for her in October. She never had a party, I never bought her a gift, I barely took her out to do anything, we went to lego land the Monday before this all happened and cheesecake factory. It was like the only thing we ever did like a normal family. That was her great vacation. I posted pics on Facebook without a care in the world and now she's gone.
Some things to think about.
This is not your fault. Take some time to think about it. This is not your fault. You did everything you could have or should have done. You may find yourself thinkong later what if i had done this or we had done that or she hadn't done that. It's not your fault.
She got a really sad deal from life. It's tremendously sad that some people get 100 years and other people don't even get one. But for someone who only got a short time here on earth, she was as loved as any kid could be. You and your family inspired people around the country. She was loved and she will be missed.
You are going to feel like the worst kind of celebrity for a while. People will try to talk to you about this like they understand or like they don't understand or like they should definitely say something but they don't know what. Make your life simpler by finding something polite to say when you want to change the subject, like thank you so much ive always appreciated your friendship. If you don't want to talk about it, don't. If you need to talk about it, do. You can always talk here.
This is an unfair thing. It is an unfair thing that happened to riley. It's an unfair thing that happened to your wife. An unfair thing that happened to your son. And an unfair thing that happened to you. All of those need to be grieved.
Don't feel guilty for grieving for your own ####ty deal here. Don't feel obligated to do more than you can. You are dealing with a lot and won't be perfect these next few weeks. To be your best for the people who need you right now you have to have time to grieve for your own ####ty lot in this, too. This is natural and it's equally natural to feel bad about it.
I am sorry for your loss. Not just for riley who was a beautiful kid. For what you and your family are going to go through. I am confident that you're a good person after seeing everything you've done here. We all are. And you should know that. You're a good dude and i wish you all the best going forward.
Fred said it best. You did all that you could. You and that little girl touched A LOT of strangers lives over the past couple of months. You showed a lot of us what is right in this world. Hang in there.Thanks Fred, I thought I did all I could but maybe I should've pushed for another echo after the first one was normal. I can't believe an echo can show a normal heart and then show severe hypertension 8 weeks later. I'm hoping the autopsy provides some answers and can save at the very least one baby. Her death can't be for nothing.