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Murky ultrasound results, wife is a basket case (1 Viewer)

My heart hurts. Sorry your baby has to go through this. I would be an absolute mess. Hell, I'm having trouble just reading this.

 
Your strength and perspective are both amazing and inspiring. My thoughts and prayers are with you, your family, and the miracle that is your little baby girl.

 
Congrats BK. After our first born, we had 6 straight miscarriages. It was a rough time on our lives and marriage, but we have one beautiful 7 year old boy now.

 
Wow - awesome to see your little girl is doing so well. Sincerely hope things keep going your way.

 
My wife is 28 weeks pregnant with our 1st...I can't even imagine what you're going through. Thoughts and prayers.

 
And she's happy. Incredibly happy. If she's crying, which is rare, then something is wrong. Despite an entire lifetime of oxygen deprivation, a surgical procedure every other week, constant blood draws, needles, CT scans, MRIs, and virtually any other invasive procedure you can imagine...she's happy. Intensely curious about the world around her. Observant to a fault and keenly aware of anyone and everyone around her. Desperately attempting to communicate through her eyes, her one good hand, or her mouth which cannot speak or even make a sound.
That's all that matters. She's happy and despite the struggles she makes you happy, That's all you need. The rest will get figured out one way or another, just enjoy the fact that you have a sweet happy child.

best of luck going forward, you just never know what amazing things can happen

 
Amazingly, through it all, she's about the cutest kid you'll see. The few friends i have that were brave enough to visit have all said "you know i was really worried and nervous, but she looks like a normal kid, only more adorable".

And she's happy. Incredibly happy. If she's crying, which is rare, then something is wrong. Despite an entire lifetime of oxygen deprivation, a surgical procedure every other week, constant blood draws, needles, CT scans, MRIs, and virtually any other invasive procedure you can imagine...she's happy. Intensely curious about the world around her. Observant to a fault and keenly aware of anyone and everyone around her. Desperately attempting to communicate through her eyes, her one good hand, or her mouth which cannot speak or even make a sound.

Everything for the last 10 months and everything for the next X years will be about her. About putting forth every effort to give her a glimpse of a normal life. Holding on to the distant hope that we'll Andy Dufresne this ##### and come out clean on the other side. Probably not, but you never know
God bless you and your family Buddy. This is heartbreaking and inspiring, and I pray along with all the others that you win this fight.

 
I am sure that your positive attitude has a lot to do with your daughter's happiness despite all of the stuff she has an gone through.

Buddy you are an awesome Dad.

 
10 months, 21 surgeries, and $5 million in medical bills later and it's only just begun.

I am Buddy's raging amygdala

We've spent the vast majority of the past 10 months inside a hospital, with only small windows of time at home and enjoying any sort of normal life with our daughter. Of course, normal is all relative if you consider the medicines, the in home nursing, and the constant trips to Dr Appts and middle of the night ER visits

If you want a Hollywood ending, stop reading. Though I suppose there is a silver lining and a hint of optimism for the most sanguine among us

Apparently when you take the insides of a human body and start dotting T's and crossing I's, instead of the other way around, all hell breaks loose. From internal bleeding to infections to major strokes to a common cold that is nothing to you and I but could kill her. Finally, after multiple attempts with every Dr that came into our view, i got one dept head to admit she has a 50/50 chance of making it to her 18th. Considering all that she's been through, i suppose thats a good thing. She's had so many complications stacked on top of one another that the medical journals don't even calculate her morbidity or mortality rates.

Amazingly, through it all, she's about the cutest kid you'll see. The few friends i have that were brave enough to visit have all said "you know i was really worried and nervous, but she looks like a normal kid, only more adorable".

And she's happy. Incredibly happy. If she's crying, which is rare, then something is wrong. Despite an entire lifetime of oxygen deprivation, a surgical procedure every other week, constant blood draws, needles, CT scans, MRIs, and virtually any other invasive procedure you can imagine...she's happy. Intensely curious about the world around her. Observant to a fault and keenly aware of anyone and everyone around her. Desperately attempting to communicate through her eyes, her one good hand, or her mouth which cannot speak or even make a sound.

Everything for the last 10 months and everything for the next X years will be about her. About putting forth every effort to give her a glimpse of a normal life. Holding on to the distant hope that we'll Andy Dufresne this ##### and come out clean on the other side. Probably not, but you never know
Wow.

I don't believe in God, but I believe in humanity. Primarily because of people like you.

 
I imagine many guys would not have stuck around. Kudos to you for sticking it out. Hope everything gets better for you and your family.

 
BigJohn said:
My heart hurts. Sorry your baby has to go through this. I would be an absolute mess. Hell, I'm having trouble just reading this.
Your strength and perspective are both amazing and inspiring. My thoughts and prayers are with you, your family, and the miracle that is your little baby girl.
I could not say it better than these guys

I feel the same

 
I imagine many guys would not have stuck around. Kudos to you for sticking it out. Hope everything gets better for you and your family.
Many guys ? I hope there are not that many scum bags that would leave when their kid needs them most. Can't imagine not being around.

 
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