Hi everyone. Here to post a happy update.
My wife 'graduated' from hospice care effective June 6. I learned through this process that, while in hospice care, the hospice team had to certify her status every 2 months. Part of that certification was answering the question, is the patient within 6 months of the end of his/her life? They had answered yes to that every time until the most recent time, when they answered no. This is obviously a great development for us. It is in large part a credit to the excellent quality of hospice care she received. I am eternally grateful to those nurses.
My wife is still in a very challenging state of healthcare. She has not been out of our bed since last September other than for medical transport to and from the hospital. She has a catheter and multiple wounds that will continue to require home healthcare. She also still suffers from severe chronic pain, although she is no longer on the pain pump, which is a good thing.
In addition, while in hospice care, everything is centralized and generally covered without insurance challenges. Everything is also delivered in the home. Now, we are adjusting to new providers, back to the normal state of healthcare insurance challenges, and will have to figure out how to transport her to appointments out of the home.
But... these are great challenges to have.
Once again, I really appreciate the support I have gotten from this community. Because of my wife's condition, she is largely isolated, and that has made my life largely isolated, other than going to work (and living with her parents, which is often like living in a sitcom...). This forum has been a great place to come to take my mind off of these challenges and also to get support for dealing with them.
