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Wife dominated colon cancer (2 Viewers)

TheWalkmen said:
Update: a port goes in today for chemo, and chemo starts tomorrow. She will get infusions through the port every other week for 6 months and also take 2 chemo pills a day for 7 days each time she has chemo treatment. Per the oncologist, the stage is 3B. I mentioned 3A earlier, but that was incorrect. Still very beatable. He also thinks there's some microsattelite instability in the tumor, so for now they think it is hereditary, which means our children will be getting colonoscopy's starting around age 20!

Speaking of children, my wife's ability to reproduce may be gone after chemo. We are not freezing eggs, but we're considering a pill called lupron that is supposed to protect the eggs. That's been one of the hardest parts for my wife so far; she wanted at least one more child, but that is pretty up in the air for now. Anyone have experience with lupron?

For the most part we have remained positive, we have been overwhelmed with support from family, friends, and my wife's former co-workers. She left Panera in September to be a stay at home mom. but they have raised money for us and have been tremendous with help in other ways as well!
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She is most likely getting a regimen called CAPOX http://jco.ascopubs.org/content/29/11/1465.fullThe pills are usually for 2 weeks though, I would check....diarrhea/tingling in hands and feet/a rash like burn on her hands and feet are relatively common so look out for them. Lupron is a shot typically given monthly, works for other cancers. This regimen does not always cause infertility so it may not be needed.

Best of luck, she'll do great!

 
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Not going to lie, I was got very nervous when I saw this thread updated. I actually didn't want to open it for awhile but it kept popping up to the top and so I finally decided to.

Thanks for the update. Continued thoughts and prayers! You guys will get through this.

 
I have not updated this since chemo started. Round 5 of adjuvant chemo starts tomorrow. As of now the cancer has NOT returned. My wife is on chemo for 7 days then off for 7 days for 12 rounds of chemo over a 6 months span. We are 1/3 of the way done and almost half way done. It has sucked pretty bad.

She goes in every other week to see her oncologist then sits in the “chair” for 4.5 hours to receive chemo through the port that was put in her chest / neck area. The port is used so they aren’t constantly inserting an IV into her veins. The day she goes in she also takes a pill form of chemo called xeloda; 3 pills in the morning and 3 at night. She then takes the same dosage the next 6 days.

The most consistent symptoms are no appetite, throwing up, nausea, and tingling in her mouth when eating while on chemo. Basically she is sick and can’t do much for those 7 days. I’m worried about long-term neuropathy as Mr-know-it-all’s wife seems to have. Hopefully that doesn’t happen. The hardest part mentally is the obvious: will the cancer come back? One less obvious is just having faith that chemo works in general and is working for her. With her type of cancer and chemo, as far as I know, there is no way to really measure how effective it is.

It’s been a lot to go through and has now become a way of life. One week on, one week off. It really makes you appreciate the good weeks and hate life during the bad. I find more joy in things like just going to work, because hey, at least I don’t have cancer. There’s definitely a new perspective on life.

ETA: my wife has a blog that is pretty real, she doesn't hold back. PM if you would like the link.

 
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really glad to hear the positive news about no cancer returning... :thumbup:

chemo just sounds like hell. but better that than the cancer. fu cancer.

 
TheWalkmen said:
I have not updated this since chemo started. Round 5 of adjuvant chemo starts tomorrow. As of now the cancer has NOT returned. My wife is on chemo for 7 days then off for 7 days for 12 rounds of chemo over a 6 months span. We are 1/3 of the way done and almost half way done. It has sucked pretty bad.

She goes in every other week to see her oncologist then sits in the “chair” for 4.5 hours to receive chemo through the port that was put in her chest / neck area. The port is used so they aren’t constantly inserting an IV into her veins. The day she goes in she also takes a pill form of chemo called xeloda; 3 pills in the morning and 3 at night. She then takes the same dosage the next 6 days.

The most consistent symptoms are no appetite, throwing up, nausea, and tingling in her mouth when eating while on chemo. Basically she is sick and can’t do much for those 7 days. I’m worried about long-term neuropathy as Mr-know-it-all’s wife seems to have. Hopefully that doesn’t happen. The hardest part mentally is the obvious: will the cancer come back? One less obvious is just having faith that chemo works in general and is working for her. With her type of cancer and chemo, as far as I know, there is no way to really measure how effective it is.

It’s been a lot to go through and has now become a way of life. One week on, one week off. It really makes you appreciate the good weeks and hate life during the bad. I find more joy in things like just going to work, because hey, at least I don’t have cancer. There’s definitely a new perspective on life.

ETA: my wife has a blog that is pretty real, she doesn't hold back. PM if you would like the link.
Click to expand...
Chemo does indeed suck. Try to countdown the days that she's gone through, not what's left. Remind her that you've communicated with folks who've gone through what she's going through, and in no time this period of hell will be a distant memory that was well worth it to eradicate the cancer. I'm a firm believer in positive energy so do the best you can to support her/prop her up in that area. I'd make plans now to do something special when she's finished so she has something to look forward to when she gets out of the chemo tunnel.

And post your wife's blog link here.

 
James Daulton said:
TheWalkmen said:
I have not updated this since chemo started. Round 5 of adjuvant chemo starts tomorrow. As of now the cancer has NOT returned. My wife is on chemo for 7 days then off for 7 days for 12 rounds of chemo over a 6 months span. We are 1/3 of the way done and almost half way done. It has sucked pretty bad.

She goes in every other week to see her oncologist then sits in the “chair” for 4.5 hours to receive chemo through the port that was put in her chest / neck area. The port is used so they aren’t constantly inserting an IV into her veins. The day she goes in she also takes a pill form of chemo called xeloda; 3 pills in the morning and 3 at night. She then takes the same dosage the next 6 days.

The most consistent symptoms are no appetite, throwing up, nausea, and tingling in her mouth when eating while on chemo. Basically she is sick and can’t do much for those 7 days. I’m worried about long-term neuropathy as Mr-know-it-all’s wife seems to have. Hopefully that doesn’t happen. The hardest part mentally is the obvious: will the cancer come back? One less obvious is just having faith that chemo works in general and is working for her. With her type of cancer and chemo, as far as I know, there is no way to really measure how effective it is.

It’s been a lot to go through and has now become a way of life. One week on, one week off. It really makes you appreciate the good weeks and hate life during the bad. I find more joy in things like just going to work, because hey, at least I don’t have cancer. There’s definitely a new perspective on life.

ETA: my wife has a blog that is pretty real, she doesn't hold back. PM if you would like the link.
Click to expand...
Chemo does indeed suck. Try to countdown the days that she's gone through, not what's left. Remind her that you've communicated with folks who've gone through what she's going through, and in no time this period of hell will be a distant memory that was well worth it to eradicate the cancer. I'm a firm believer in positive energy so do the best you can to support her/prop her up in that area. I'd make plans now to do something special when she's finished so she has something to look forward to when she gets out of the chemo tunnel.

And post your wife's blog link here.
Click to expand...
I really like this advice. Think and act positive.

 
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Wow. Got to follow this thread. Thanks for posting her progress and what she's going through. Many thoughts and prayers to you and her! PS: Sending PM. Thanks!

 
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Hmm... Maybe you could start giving her the tiny components of a surprise that comes due when chemo is over. See how long it takes for her to figure out the surprise. Or hints as to what it is. Could be a picnic, or a dinner date, or anything really. Just so she knows she has a treat coming, and you are the thoughtful husband who is there for her.

Warm thoughts for both of you.

 
Chemo sounds like a truly awful thing but at least it sounds like it is working. Hopefully the second half of the treatments won't be as bad.

 
I did a terrible job of keeping this thread updated. My wife finished her 12th round of chemo at the end of Sep. Our kids and several others were there for the bell-ringing, which was pretty cool. For those that don't know, after your last infusion of chemo at the hospital, you ring a bell signalling the end of chemo. I'm not sure if it's a regional thing or what but that's what we did. The follow up with her oncologist and subsequent CT scan and colonoscopy revealed no cancer, so as of now she is cancer free.

We then moved from St. Louis to Pittsburgh at the end of October for my job, and in early November we found out my wife is knocked up. She got into an OB right away since she was shortly removed from chemo, and everyone is amazed that (1) she got pregnant and (2) that as of now the baby seems healthy at the 10-11 week mark. We see a specialist tomorrow to discuss the pregnancy in more detail. So my wife's timeline of events are as follows:

Nov 2011 miscarriage

Nov 2012 birth of 1st child

Apr 2014 birth of 2nd child

Mar 2015 diagnosed with stage 3b colon cancer

Mar 2015 surgery to remove tumor

Sep 2015 finish 12th round of chemo

Oct 2015 pregnant with 3rd child

I better get her one hell of a Christmas present this year! What a fighter!

 
Awesome news Walkmen. Congratulations to you and your family.

 
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Great news! Yeah, I was following her blog so I knew. Here's to her remaining cancer free!! :clap: And congrats on a new one on the way! So much for you and your fam to celebrate this holiday season. Many blessings to you all. X

 
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Was nervous to click on this thread, so glad I did. So happy for you guys right now. Great update!

 
AWESOME news...been through it all with my wife - but in her case no pregnancy after chemo (thank goodness as we already have 5 kids). The next 5 years will breeze by and this will all be a distant memory (except for the new child part). Congrats and awesome news.

 
TheWalkmen said:
I did a terrible job of keeping this thread updated. My wife finished her 12th round of chemo at the end of Sep. Our kids and several others were there for the bell-ringing, which was pretty cool. For those that don't know, after your last infusion of chemo at the hospital, you ring a bell signalling the end of chemo. I'm not sure if it's a regional thing or what but that's what we did. The follow up with her oncologist and subsequent CT scan and colonoscopy revealed no cancer, so as of now she is cancer free.

We then moved from St. Louis to Pittsburgh at the end of October for my job, and in early November we found out my wife is knocked up. She got into an OB right away since she was shortly removed from chemo, and everyone is amazed that (1) she got pregnant and (2) that as of now the baby seems healthy at the 10-11 week mark. We see a specialist tomorrow to discuss the pregnancy in more detail. So my wife's timeline of events are as follows:

Nov 2011 miscarriage

Nov 2012 birth of 1st child

Apr 2014 birth of 2nd child

Mar 2015 diagnosed with stage 3b colon cancer

Mar 2015 surgery to remove tumor

Sep 2015 finish 12th round of chemo

Oct 2015 pregnant with 3rd child

I better get her one hell of a Christmas present this year! What a fighter!
Click to expand...
Awesome news. Glad to have you and your family in Pittsburgh!

 
I'm so happy for you and your family, great news!

TheWalkmen said:
For those that don't know, after your last infusion of chemo at the hospital, you ring a bell signalling the end of chemo. I'm not sure if it's a regional thing or what but that's what we did.
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I live in southwest Missouri, not sure if its a Missouri thing or what, but when I finished my treatment I rang the bell as well.

 
Sand said:
If there is a silver lining survival rates are very good where she is at. Still a horrible situation. Prayers for you and yours.

Oh, and #### cancer.
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This.

My dad lived through two bouts with colon cancer and then ultimately died of old age. Be positive, cancer sucks, but this kind is far from a death sentence.

ETA: Nevermind, didn't realize this was an update. Congrats!

 
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