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Did the link turn into German for you guys too?This has been a busy week. A lot of tests and a lot of Dr appointments.
She completely skipped the previous two weeks of treatment because her liver wasn't doing so good. The levels have gone down but not yet back in normal levels so we went back to treatment this weeks but on the HER2 meds and no chemo to continue to let the liver recover.
The tests confirmed that the tumors are shrinking. One went from 2 something to .9 and they said to the level it may be benign now. From the tests there was a little concern... concern isn't really the right word I think.... that there are some nods in the lungs. The test showed it grew but the Dr thinks it is a difference in the machines- the first one not being as sharp (assuming a newer machine) as the previous test and that is most likely calcium deposits but that we want to keep an eye on them.
We have another appointment with the surgeon next week and then following up with the Oncologist to see how the skipping treatments and tests will either change or not the treatment plan. Also, they have to check the clinical trial to see what is allowed or not within the trial. From what I can tell the trial may be more strict that what the Dr recommendations are likely to be.
So things are trending in the right direction. She has been in a good mood... not tearing my head off for no reason. (There was one occasion that we got the meal tree dropped off but there was confusion about it as it wasn't what they said they were dropping off, it was delivery from a restaurant and said 'chicken parm for 2'... my daughter is looking through it and says something like it looked like more food than for two. I replied to her 'I dunno, that is what Mommy said' and then she exploded 'HERE! It has a receipt! I can read! I am not stupid' towards me and then stormed off. I was like.... uh.... that escalated quickly). And she even took our daughter to her volleyball games last weekend as I was busy with my son and his basketball team. She opted to do that rather than ask for help.
I changed the title because screw it... she doesn't have it, she is beating the crap out of this thing. It picked the wrong women to screw with.
My bday is coming up so I did that FB donation thing for Lynn Sage Breast Cancer Foundation which is focused on research. It has a 4 start 91% rating on Charity Navigator. I am MUCh more comfortable asking for people to support this than I am taking help personally. (I haven't decided if that is a flaw of mine or not but I will worry about that later). If ya'll want to donate to it that would be awesome. I dunno if you have to be friends with me to donate.... I don't think so but happily would accept any friend requests... just let me know you are from FBG because I ignore most requests with a ton of industry types looking to recruit or mortgage lead gen people looking to sell me etc.
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I checked the link, it works right for me at least.
YaDid the link turn into German for you guys too?This has been a busy week. A lot of tests and a lot of Dr appointments.
She completely skipped the previous two weeks of treatment because her liver wasn't doing so good. The levels have gone down but not yet back in normal levels so we went back to treatment this weeks but on the HER2 meds and no chemo to continue to let the liver recover.
The tests confirmed that the tumors are shrinking. One went from 2 something to .9 and they said to the level it may be benign now. From the tests there was a little concern... concern isn't really the right word I think.... that there are some nods in the lungs. The test showed it grew but the Dr thinks it is a difference in the machines- the first one not being as sharp (assuming a newer machine) as the previous test and that is most likely calcium deposits but that we want to keep an eye on them.
We have another appointment with the surgeon next week and then following up with the Oncologist to see how the skipping treatments and tests will either change or not the treatment plan. Also, they have to check the clinical trial to see what is allowed or not within the trial. From what I can tell the trial may be more strict that what the Dr recommendations are likely to be.
So things are trending in the right direction. She has been in a good mood... not tearing my head off for no reason. (There was one occasion that we got the meal tree dropped off but there was confusion about it as it wasn't what they said they were dropping off, it was delivery from a restaurant and said 'chicken parm for 2'... my daughter is looking through it and says something like it looked like more food than for two. I replied to her 'I dunno, that is what Mommy said' and then she exploded 'HERE! It has a receipt! I can read! I am not stupid' towards me and then stormed off. I was like.... uh.... that escalated quickly). And she even took our daughter to her volleyball games last weekend as I was busy with my son and his basketball team. She opted to do that rather than ask for help.
I changed the title because screw it... she doesn't have it, she is beating the crap out of this thing. It picked the wrong women to screw with.
My bday is coming up so I did that FB donation thing for Lynn Sage Breast Cancer Foundation which is focused on research. It has a 4 start 91% rating on Charity Navigator. I am MUCh more comfortable asking for people to support this than I am taking help personally. (I haven't decided if that is a flaw of mine or not but I will worry about that later). If ya'll want to donate to it that would be awesome. I dunno if you have to be friends with me to donate.... I don't think so but happily would accept any friend requests... just let me know you are from FBG because I ignore most requests with a ton of industry types looking to recruit or mortgage lead gen people looking to sell me etc.
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gutYaDid the link turn into German for you guys too?This has been a busy week. A lot of tests and a lot of Dr appointments.
She completely skipped the previous two weeks of treatment because her liver wasn't doing so good. The levels have gone down but not yet back in normal levels so we went back to treatment this weeks but on the HER2 meds and no chemo to continue to let the liver recover.
The tests confirmed that the tumors are shrinking. One went from 2 something to .9 and they said to the level it may be benign now. From the tests there was a little concern... concern isn't really the right word I think.... that there are some nods in the lungs. The test showed it grew but the Dr thinks it is a difference in the machines- the first one not being as sharp (assuming a newer machine) as the previous test and that is most likely calcium deposits but that we want to keep an eye on them.
We have another appointment with the surgeon next week and then following up with the Oncologist to see how the skipping treatments and tests will either change or not the treatment plan. Also, they have to check the clinical trial to see what is allowed or not within the trial. From what I can tell the trial may be more strict that what the Dr recommendations are likely to be.
So things are trending in the right direction. She has been in a good mood... not tearing my head off for no reason. (There was one occasion that we got the meal tree dropped off but there was confusion about it as it wasn't what they said they were dropping off, it was delivery from a restaurant and said 'chicken parm for 2'... my daughter is looking through it and says something like it looked like more food than for two. I replied to her 'I dunno, that is what Mommy said' and then she exploded 'HERE! It has a receipt! I can read! I am not stupid' towards me and then stormed off. I was like.... uh.... that escalated quickly). And she even took our daughter to her volleyball games last weekend as I was busy with my son and his basketball team. She opted to do that rather than ask for help.
I changed the title because screw it... she doesn't have it, she is beating the crap out of this thing. It picked the wrong women to screw with.
My bday is coming up so I did that FB donation thing for Lynn Sage Breast Cancer Foundation which is focused on research. It has a 4 start 91% rating on Charity Navigator. I am MUCh more comfortable asking for people to support this than I am taking help personally. (I haven't decided if that is a flaw of mine or not but I will worry about that later). If ya'll want to donate to it that would be awesome. I dunno if you have to be friends with me to donate.... I don't think so but happily would accept any friend requests... just let me know you are from FBG because I ignore most requests with a ton of industry types looking to recruit or mortgage lead gen people looking to sell me etc.
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Melde dich bei Facebook an, um dich mit deinen Freunden, deiner Familie und Personen, die du kennst, zu verbinden und Inhalte zu teilen.
Spezensy Deutch and gut are about as much as I got. If you asking why it is in German.... the answer is I have NO idea.
It floored me.
I am super happy for you and thank you for helping me in my private messagesBig milestone today. Last infusion treatment at least for a while. She now has a few weeks of no treatments and being able to heal up with a surgery tentatively planned for March 20th as the next big step. Some doctor appointments and some minor test stuff (like blood draws) but it will be a nice rest for her now and not get pounded weekly with chemo and HER2 meds. Very happy.
I don't recall if I mentioned this before but our kids school set up a meal tree for us (side note- if you ever have anyone you know go through something like this, helping out in this way is a HUGE help. I had no idea how much of a help it would be. We have felt... awkward, I guess is the best work for it, in accepting this help but I had no idea how much of a help it would be going into all of this. When I was told about it, I was thinking 'Oh, that is nice way for them to show they care' but didn't compute how much having meals taken care of through the week would be to just take something off the table of having to deal with... so very much encourage you to take part or help those you know in this way). They set up a site that had a meal schedule where we get dinner brought to us Mon, Wed and Thursday and then there were other options where people could buy gift cards for instacart, brubhub, Chipotle, Domino's, etc and then also some meals shipped.... so we have these meals dropped off and they often are very generous in portions so we have left overs and they carry us through more than just those three nights. Then filling in when there is not so much food or whatever, we have used the gift cards inbetween and occasional meals from my wife (she enjoys cooking so when she is feeling up to it will do something) or my daughter or one of my throwing something together (not exactly cooking). So.... about a week ago or so, one of the mothers from the school reached out to me and said that a bunch of the mothers from my sons 4th grade class were talking about how else they could help and thought about lunches. So they offered to buy hot lunches for our kids for the month if we thought that would help. We talked and agreed it would be just one more thing to take off the 'to do list' which as noted above, is hugely helpful beyond what you would think if you haven't... and I hope you don't.... experience something like this. So, a little later she lets me know that Feb was taken care of and we could talk later about later months. Ok, great.. thanks! A few more days go by and I get a text from her letting me know that the parents of the 4th grade basketball teams (there are three including the one I coach for my son) decided to cover the entire rest of the year.
My kids go to a Catholic private school. Before ahead of making the choice of where my kids would go was something that I was reluctant to send them there. The particular school is the same that my wife (who is Catholic) and all her siblings we to growing up. So, she was the one pushing it. For me, I grew up in public school and I am not Catholic. Plus, it always seemed to me that the really screwed up kids went to private school, so I was reluctant. I conceded when public school teachers that were clients of mine explained to me why they sent their kids to private school and then my wife said her Dad would pay (I am pretty sure that this is not true though- lol). The school has been great but the community of them supporting us has been something that truly makes me thankful for having sent my kids there. It isn't just because of how they have rallied around us and supported us through this time but that brings the positives of this in laser focus. Sure they are getting a better education above that of what they would get at public school (even at a very good district like ours) but the kids and our family have a true community around us. I also love the kids my children are classmates and friends with as I interact with them at their sports. Very thankful.
Similarly, you guys have been awesome. I have gotten so many private messages well beyond all the support and love here in this thread. Going above just well wishes and offering unbelievable help alogn with it. Even though I have been around for 25 odd ish years here, I really did not expect the amount of support and love given by all of you. I thought I could come in here and throw up verbally to just get it all out. Whether someone read it or not, I did not really even consider. The response has been beyond what I would have thought. It truly makes a difference.
The nurse mentioned she can tell me wife has a lot of support in a way of giving me props. She did go on to say how she can tell when people have good support and those who don't. As much as my wife has been supported by many people- I have been supported by you guys and others. Again, thank you. I can't emphasize how it really does help.
We have a long road to go. After surgery there will be radiation. After the radiation then there will be more infusion treatments.... hopefully just the HER2 meds and not chemo but that all depends on how everything goes from here with surgery and radiation.
I am not sure it is initial.... still.... our conversation when we were first approached about having the hot meals paid for the kids went something like (simplified)....
Thanks, just happy for the outcome for you guysI am super happy for you and thank you for helping me in my private messagesBig milestone today. Last infusion treatment at least for a while. She now has a few weeks of no treatments and being able to heal up with a surgery tentatively planned for March 20th as the next big step. Some doctor appointments and some minor test stuff (like blood draws) but it will be a nice rest for her now and not get pounded weekly with chemo and HER2 meds. Very happy.
I don't recall if I mentioned this before but our kids school set up a meal tree for us (side note- if you ever have anyone you know go through something like this, helping out in this way is a HUGE help. I had no idea how much of a help it would be. We have felt... awkward, I guess is the best work for it, in accepting this help but I had no idea how much of a help it would be going into all of this. When I was told about it, I was thinking 'Oh, that is nice way for them to show they care' but didn't compute how much having meals taken care of through the week would be to just take something off the table of having to deal with... so very much encourage you to take part or help those you know in this way). They set up a site that had a meal schedule where we get dinner brought to us Mon, Wed and Thursday and then there were other options where people could buy gift cards for instacart, brubhub, Chipotle, Domino's, etc and then also some meals shipped.... so we have these meals dropped off and they often are very generous in portions so we have left overs and they carry us through more than just those three nights. Then filling in when there is not so much food or whatever, we have used the gift cards inbetween and occasional meals from my wife (she enjoys cooking so when she is feeling up to it will do something) or my daughter or one of my throwing something together (not exactly cooking). So.... about a week ago or so, one of the mothers from the school reached out to me and said that a bunch of the mothers from my sons 4th grade class were talking about how else they could help and thought about lunches. So they offered to buy hot lunches for our kids for the month if we thought that would help. We talked and agreed it would be just one more thing to take off the 'to do list' which as noted above, is hugely helpful beyond what you would think if you haven't... and I hope you don't.... experience something like this. So, a little later she lets me know that Feb was taken care of and we could talk later about later months. Ok, great.. thanks! A few more days go by and I get a text from her letting me know that the parents of the 4th grade basketball teams (there are three including the one I coach for my son) decided to cover the entire rest of the year.
My kids go to a Catholic private school. Before ahead of making the choice of where my kids would go was something that I was reluctant to send them there. The particular school is the same that my wife (who is Catholic) and all her siblings we to growing up. So, she was the one pushing it. For me, I grew up in public school and I am not Catholic. Plus, it always seemed to me that the really screwed up kids went to private school, so I was reluctant. I conceded when public school teachers that were clients of mine explained to me why they sent their kids to private school and then my wife said her Dad would pay (I am pretty sure that this is not true though- lol). The school has been great but the community of them supporting us has been something that truly makes me thankful for having sent my kids there. It isn't just because of how they have rallied around us and supported us through this time but that brings the positives of this in laser focus. Sure they are getting a better education above that of what they would get at public school (even at a very good district like ours) but the kids and our family have a true community around us. I also love the kids my children are classmates and friends with as I interact with them at their sports. Very thankful.
Similarly, you guys have been awesome. I have gotten so many private messages well beyond all the support and love here in this thread. Going above just well wishes and offering unbelievable help alogn with it. Even though I have been around for 25 odd ish years here, I really did not expect the amount of support and love given by all of you. I thought I could come in here and throw up verbally to just get it all out. Whether someone read it or not, I did not really even consider. The response has been beyond what I would have thought. It truly makes a difference.
The nurse mentioned she can tell me wife has a lot of support in a way of giving me props. She did go on to say how she can tell when people have good support and those who don't. As much as my wife has been supported by many people- I have been supported by you guys and others. Again, thank you. I can't emphasize how it really does help.
We have a long road to go. After surgery there will be radiation. After the radiation then there will be more infusion treatments.... hopefully just the HER2 meds and not chemo but that all depends on how everything goes from here with surgery and radiation.
Oh yea... I don't expect replies to "she had a test and all is good" updates. I mean, there isn't much to say on that really. I do appreciate the thoughtfulness of bringing that up though and reinforcing that!
I get reminded often how long this journey is. Hang in there brother. You're in my prayers.
This was the way to go... but she told me that morning on the way to the appointment with the plastic surgeon and I had no time or way to react. I am just glad the Doc didn't just say "ok"
No, I am not that much of a science guy but I am more of a "logic" guy.
I was going to tell her that if she went that route then she would have to go to a therapist and/or marriage therapist after.
That is not a possible answer. The chance can be lessened, but not eliminated. She needs to talk with her doctor about this.
She understands that. That was her frame of mind though in terms of making her choices... she doesn't want to go through this again so she was willing to do whatever she needed to do in order to achieve that which which in her mind was the double mastectomy and losing the nipples. No reconstruction was more about her not wanting to do more surgeries and then in her head (totally wrong) she would not get reconstruction on both or had to pay for the other side or something.... I dunno. Chemo brain is a helluva thing.
Seems oddly specific... other folks are the worst. Hang in there GB. Looking forward to an update later if you have time. Thoughts and prayers regardless.
Banned in the waiting room I was in. They seemed pretty strict about it.
Very oddly specific.
DM sent brother.
