Thursday and Friday were full of Doctor's appointments and tests.
We met with the brain surgeon team. It is funny because the head Dr is a very even keeled, monotone, low speaking voice and easy delivery and then he has another Dr and Practicing Nurse that are extremely bubbly, goofy, fun, etc. I have no idea how they work so well together. They took out her staples (gross) said it all looked good and were very happy with her progression. She is still unsteady (walks with a walker), texts me gibberish, gets confused easily, and has some headaches but they said she is doing much better than most having the same kind of procedure.
We met with with the radiation Dr. They will start that soon. She has to get some weird mask thing to wear which she is anxious about because she gets claustrophobic at times (like the MRI's). So, he prescribed her some sort of Valium type drug to take before getting the mask made and the treatments.
The appointments with the brain and radiation Dr's were the same hospital but several hours apart so we just chilled and had lunch in the cafeteria (which they do much better with the food there than other hospitals) and then went to the next one. But I was walking with her as she shuffled along with the walker. Of course, I made a ton of jokes.
At lunch we obviously talked a lot which we really haven't done since the surgery as she has been out of it or sleeping or I am running around keeping life going with the kids. Basically she does not remember anything for the last couple of weeks. Even her ripping me a new one for bringing the wrong Ducalax. I told her, it was the maddest you have ever been with me. It was total roid rage. She didn't remember me getting it and coming back then handing to her and saying "here, stick it up your @##". She didn't remember seeing people in her ICU room at first but then started to remember. I told her, you were pretty jacked up on meds because if you saw the girl from the Ring and weren't drugged up, you would have been screaming and running out instead of laughing about it.
She had a call with the plastic surgeon later in the afternoon but I haven't talked to her about how that went. They need to take the spacers out completely or replace it with some gel thing until she can get the reconstruction done since the spacers have magnets in them (why?).
Monday is the appointment with the Oncologist which we will get an idea of what drug treatments she will get.
She remains at my inlaws since it is easier for my BIL and SIL to help out there plus my FIL is a Dr so it just works. It is a 12-14 min drive from our home so after whatever kids stuff and I collect them up we usually go over there. The kids are spending the nights there on the weekends.
I am somewhat keeping things up with the kids. Swim season and BJJ for the little one has been mostly sacrificed as I HC both my boys bball teams and have little choice in getting them to more than the bball. The school set up a meal tree which is a life saver at this point. If not, the best I would be able to do would be to alternate from McDs, Taco Bell and the occasional Chipotle, Jimmy Johns and Pizza thrown in or whatever fast food. I took up the HC for both teams which I knew would be a lot but had no clue we would be fighting cancer again. It is a lot but I also enjoy it and it does give me a mental break as I focus on the kids and basketball. My daughter should hopefully get fully cleared for sports on the 18th so that means school and club vball. I have no idea how I am going to swing that. It will likely be a lot of pawning her off to a teammate (Hoping the club team has one of her friends on it) and then missing a lot of her games.
My wife asked to text her boss to give him updates and her direction to me is "tell him I am doing good but not too good" because she wants to "extend" not working to Christmas. I am like you just had brain surgery, can't walk and can't communicate clearly (written at least) as well as being easily confused... I don't think you have to worry.
Overall, progressing. Kids are well. I am surviving. Rock n roll.
Thank you for the prayers even if you are creepily thinking of her in the middle of the night (just kidding
@Atomic Punk I am truly touched that she is on your mind like that and your are praying like that.... damn it.... is it dusty in here?) Continued prayers would be good. Like her boss said "Lizette Strong" which is so dang on the nose. Her strength is amazing.