skol asylum
Footballguy
Thoughts and prayers for the little guy and your family. Take it day by day and moment by moment and you'll get through this.
Thanks for taking the time to keep us updated. Continued thoughts and prayers for the little guy and for your family. Stay strongLittle dude had what is supposed to be the worst of the treatments yesterday...crash cart waiting outside and all.
Took it like champ. For the most part anyway. Kinda crashed about an hour after the final drip but I was able to get him to go to sleep and he slept through the night (which means I got to sleep a little).
Good news - genetic tests came back with nothing out of the "norm" meaning we don't have to go super aggressive with chemo. On top of that his liver and spleen are showing signs of lessening swelling. Which is a sign in the right direction. Blood sugars quite a bit elevated but we knew this was coming with the steroids so we just have to watch his intake more carefully (we don't have sodas and cookies loading our pantry but this will be a more diabetic approach).
Thoughts/prayers/good vibes seem to be working. Thank you all for the positive vibes.
On a side note, he even got well wishes form Anthony Mackie, aka Falcon, on his little fb page. He just lit up at that.
This may be why he is sticking to you. Mr R goes all Mr Spock in emergencies. Then he apologizes for it because he thinks I may think that he doesn't care. I keep telling him I prefer the Spock stuff over weeping and wailing. I'm still not sure he believes me.My wife is waaaaay more emotional than I am.
Funny, not so dunny story....This may be why he is sticking to you. Mr R goes all Mr Spock in emergencies. Then he apologizes for it because he thinks I may think that he doesn't care. I keep telling him I prefer the Spock stuff over weeping and wailing. I'm still not sure he believes me.My wife is waaaaay more emotional than I am.
It usually hits Mr R later, too. I guess you just roll with that stuff, and that's okay.Funny, not so dunny story....This may be why he is sticking to you. Mr R goes all Mr Spock in emergencies. Then he apologizes for it because he thinks I may think that he doesn't care. I keep telling him I prefer the Spock stuff over weeping and wailing. I'm still not sure he believes me.My wife is waaaaay more emotional than I am.
2 weekends ago before this all happened I was sitting in my back porch and her a rumble and some weird "cries" . Went out front and thought oh no someone's dog gor run over. I realized it was kids crying ran inside, yelled at my 19 yo son to come with me...
A family flipped their gator/4 wheeler and I took of running to them. Tried to calm them down (grandma seemed to be the only one hurt).
The middle kids ran to get mom and dad I guess. I made my son tend to the 1 yo who seemed ok. Don't let her move etc. Grandma kept trying to stand up. I just tried to calm her down. Cops came. 2 ambulances. 1 fire truck. Fight or flight I guess. Just enough 1st aid training to not freak out. Not sure what I was doing but that's me. Calm the situation. Then poop hit the fan wednesday and I'm a mess.
Man, I missed this somehow and now seem insesitive. So sorry. Here's to hoping treatment goes smoothly and kick cancers a$$.So glad to hear the little guy is home, best wishes to you all.
Man, F cancer. We just got a diagnosis in my family, stage 4. Chemo starts next week. Been having crying fits almost daily.
No need to apologize at all. First treatment went well. We actually had a second opinion visit yesterday at John’s Hopkins where we didn’t get any new information, but the doctor had a far better bedside manner. Treatments will continue as scheduled for now, but having a second set of (highly trained) eyes looking at everything is making us all feel a bit better.Man, I missed this somehow and now seem insesitive. So sorry. Here's to hoping treatment goes smoothly and kick cancers a$$.So glad to hear the little guy is home, best wishes to you all.
Man, F cancer. We just got a diagnosis in my family, stage 4. Chemo starts next week. Been having crying fits almost daily.
I reckon you folks did something right here. That's a big deal."I miss my brother"
He obviously needs "special" socks and underwear for Christmas. Those Incrdible Hulk briefs will look fantastic.Okay then...show off those marvel boxer briefs little dude.
Thanks for the kind words.Late to the thread. Thanks for sharing. Breaks my heart when it's children. So sad. As someone who recently went through a cancer recovery with my wife I can emphasize the emotions. It just feels so different with children. Stay strong man, sounds like your role is to support and be the rock.
Time for an update...
He is doing well. We are getting close to the maintenance phase which is when treatments slow down. We started the next phase last week which is a 24hr chemo drip then watch numbers for kidney function. We We there til Friday. He gets a week off and we go again Monday. 4 times total. Thos is when either me or my wife has to spend the night until he can go home so we swap days here and there.
He's taken it like a champ... no nausea or anything other than a bit of the poops. I just hope it keeps going this way as opposed to the horror stories of chemo you usually hear.
One cool thing (careful, onions may be in the room or some dust in your eyes)....
The Senior Bowl had me submit a write up about him. We just got the video that some players put together. We put it on the TV and recorded the reaction. Fb link with both vids https://www.facebook.com/share/p/6oCTdsUWKYVKRJs2/?mibextid=oFDknk
Youtube link of the senior bpwl vid:
- YouTube
Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.youtu.be
Time for an update...
He is doing well. We are getting close to the maintenance phase which is when treatments slow down. We started the next phase last week which is a 24hr chemo drip then watch numbers for kidney function. We We there til Friday. He gets a week off and we go again Monday. 4 times total. Thos is when either me or my wife has to spend the night until he can go home so we swap days here and there.
He's taken it like a champ... no nausea or anything other than a bit of the poops. I just hope it keeps going this way as opposed to the horror stories of chemo you usually hear.
One cool thing (careful, onions may be in the room or some dust in your eyes)....
The Senior Bowl had me submit a write up about him. We just got the video that some players put together. We put it on the TV and recorded the reaction. Fb link with both vids https://www.facebook.com/share/p/6oCTdsUWKYVKRJs2/?mibextid=oFDknk
Youtube link of the senior bpwl vid:
- YouTube
Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.youtu.be
Not real sure where to start here without getting too long winded but warning...long post. Also, to be clear, we won't be sure until the bone marrow test tomorrow but cancer has hit our family most likely and to an innocent child that doesn't deserve any of this.
Short version of the beginning: Close to 4 years ago we got a call that my nephews (twins) either needed to come stay with us or they were going into foster care with a 99% chance they would be split up. We were on our way home from my sister's birthday dinner (worst I've ever had at Red Lobster btw). Obviously, we turned the car around, met the social care worker in the Walmart parking lot next to the van they had been living in and took them home with us.
Twins were just shy of 3, our biological kids were 15 and 13, we live in a 2000 sf 3 bedroom house. No idea how it was going to work but we were determined to help mom figure out the world and get her kids back. This was just temporary. Or so we thought.
Biological dad wasn't going to be any help. We knew that. Mom had a shot. Until she didn't. Too lazy maybe. Too incompetent maybe. Just never took the initiative to do even the simplest of tasks put in front of her by the social worker. Then covid hit. Hearings pushed back. Mom couldn't keep a job or steady place to live.
Here we are 4 years later. Havent heard from mom in over 2.5 years. Just finally just gave us custody 1.5 years ago. It's to the point they have started calling us mom and dad. In fact, at soccer practice last Wednesday (I'm the coach), we had a new kid come to check out practice. During a water break I overheard Twin B telling the new kid "the coach is my dad". I melted a little.
Fast forward to June of this year...
Boys have had their share of strep, sniffles, whatever but for the most part all boy and definitely twins. They feed off of each other and are identical in looks but definitely not personality. They play soccer. Love doing push-ups and riding scooters. Then Twin A got what we thought was strep yet again. Took him to the doc but he tested negative for strep/flu/covid. We got the "it's a virus...fluids...Tylenol...Yada yada. If he's not better in 2 weeks come back."
2 weeks later, not better so we head back. They did a blood test. Ugh, Mono. Could be 4-8 weeks. Limit activity. Rest andhatever else the PA said. A month later and no real change my wife takes him back and requests the doctor and not PA. "I assure you it's all just part of Mono".
About 2-3 weeks ago, he got real lethargic. Swollen belly. Kinda pale looking. School called and said he had a fever. We called the doc office twice and left a message. They never called back. This weekend we ran into a nurse friend who suggested to just keep calling and demand an appointment. That was today.
I was at work, my wife took Twin A to his appointment (with PA and not the doc no less) who ordered blood work and an ultrasound. While waiting for the ultrasound, the PA got the blood results and said to take him to a different hospital to have them run and confirm some tests due to abnormal blood counts.
This whole time I'm at work trying to pry info from my wife - "what's low? Is it red blood cell? White blood cell?" I can't get a good answer so I tell my boss I have to go and meet them. As I'm pulling into the parking lot, I get the "I NEED YOU HERE NOW!!!" text.
I walk in and can see my wife in tears standing next to a doctor yet I can't get in due to sign in/metal detector/wrist band protocols and I'm yelling "THEY ARE RIGHT THERE!"
Finally I get through and it's the dreaded "come into this room" feel. Sure enough, the doctor is almost certain with all 3 blood counts (red, hemo and white) being low that it is a form of Leukemia. He said he had a look under the microscope and feels like it's the "better" of the 2 forms which has a high cure rate at this age but little dude has to get blood infusion and then a bone marrow test tomorrow to confirm.
If confirmed tomorrow, a spinal tap and port insertion is scheduled for Friday with chemo to start immediately.
This post turned out way longer than I intended but it felt good to type out. My wife is a basket case. I was stoic (as much as I could be) but she couldn't even speak when doctors and nurses came in to ask questions. I was stoic that is, until we face timed his twin. The bond those 2 have is incredible. As my wife took the phone to continue the conversation with the other kids, I could see in Twin A's eyes that he just wanted to be home with his brother. He's been so brave so far. Got blood taken twice with out even flinching. Understands he's sick and it may be a long recovery. He just gave me a thumbs up after I hugged him and told him I'd be back in the morning.
Not really sure where I'm going woth this. Not sure if I intend to use it as a log during his recovery or if I just need to vent with out publicly plastering on Facebook. Cancer sucks. For everolyone involved. After watching my mom whittle away from breast cancer I already know. Little guy didn't deserve this. If anyone did it was/is me. But we'll get him through this. Some how, some way we will kick cancers a$$. Maybe, just maybe, I can post tomorrow and say its just a tummy ache.
We did some immuno therapy treatment after the first month due to him getting a staph infection. Apparently it's safer than starting up chemo while he was fighting staph and that's what put him in to initial "remission". I'm like why aren't we just using that?Not real sure where to start here without getting too long winded but warning...long post. Also, to be clear, we won't be sure until the bone marrow test tomorrow but cancer has hit our family most likely and to an innocent child that doesn't deserve any of this.
Short version of the beginning: Close to 4 years ago we got a call that my nephews (twins) either needed to come stay with us or they were going into foster care with a 99% chance they would be split up. We were on our way home from my sister's birthday dinner (worst I've ever had at Red Lobster btw). Obviously, we turned the car around, met the social care worker in the Walmart parking lot next to the van they had been living in and took them home with us.
Twins were just shy of 3, our biological kids were 15 and 13, we live in a 2000 sf 3 bedroom house. No idea how it was going to work but we were determined to help mom figure out the world and get her kids back. This was just temporary. Or so we thought.
Biological dad wasn't going to be any help. We knew that. Mom had a shot. Until she didn't. Too lazy maybe. Too incompetent maybe. Just never took the initiative to do even the simplest of tasks put in front of her by the social worker. Then covid hit. Hearings pushed back. Mom couldn't keep a job or steady place to live.
Here we are 4 years later. Havent heard from mom in over 2.5 years. Just finally just gave us custody 1.5 years ago. It's to the point they have started calling us mom and dad. In fact, at soccer practice last Wednesday (I'm the coach), we had a new kid come to check out practice. During a water break I overheard Twin B telling the new kid "the coach is my dad". I melted a little.
Fast forward to June of this year...
Boys have had their share of strep, sniffles, whatever but for the most part all boy and definitely twins. They feed off of each other and are identical in looks but definitely not personality. They play soccer. Love doing push-ups and riding scooters. Then Twin A got what we thought was strep yet again. Took him to the doc but he tested negative for strep/flu/covid. We got the "it's a virus...fluids...Tylenol...Yada yada. If he's not better in 2 weeks come back."
2 weeks later, not better so we head back. They did a blood test. Ugh, Mono. Could be 4-8 weeks. Limit activity. Rest andhatever else the PA said. A month later and no real change my wife takes him back and requests the doctor and not PA. "I assure you it's all just part of Mono".
About 2-3 weeks ago, he got real lethargic. Swollen belly. Kinda pale looking. School called and said he had a fever. We called the doc office twice and left a message. They never called back. This weekend we ran into a nurse friend who suggested to just keep calling and demand an appointment. That was today.
I was at work, my wife took Twin A to his appointment (with PA and not the doc no less) who ordered blood work and an ultrasound. While waiting for the ultrasound, the PA got the blood results and said to take him to a different hospital to have them run and confirm some tests due to abnormal blood counts.
This whole time I'm at work trying to pry info from my wife - "what's low? Is it red blood cell? White blood cell?" I can't get a good answer so I tell my boss I have to go and meet them. As I'm pulling into the parking lot, I get the "I NEED YOU HERE NOW!!!" text.
I walk in and can see my wife in tears standing next to a doctor yet I can't get in due to sign in/metal detector/wrist band protocols and I'm yelling "THEY ARE RIGHT THERE!"
Finally I get through and it's the dreaded "come into this room" feel. Sure enough, the doctor is almost certain with all 3 blood counts (red, hemo and white) being low that it is a form of Leukemia. He said he had a look under the microscope and feels like it's the "better" of the 2 forms which has a high cure rate at this age but little dude has to get blood infusion and then a bone marrow test tomorrow to confirm.
If confirmed tomorrow, a spinal tap and port insertion is scheduled for Friday with chemo to start immediately.
This post turned out way longer than I intended but it felt good to type out. My wife is a basket case. I was stoic (as much as I could be) but she couldn't even speak when doctors and nurses came in to ask questions. I was stoic that is, until we face timed his twin. The bond those 2 have is incredible. As my wife took the phone to continue the conversation with the other kids, I could see in Twin A's eyes that he just wanted to be home with his brother. He's been so brave so far. Got blood taken twice with out even flinching. Understands he's sick and it may be a long recovery. He just gave me a thumbs up after I hugged him and told him I'd be back in the morning.
Not really sure where I'm going woth this. Not sure if I intend to use it as a log during his recovery or if I just need to vent with out publicly plastering on Facebook. Cancer sucks. For everolyone involved. After watching my mom whittle away from breast cancer I already know. Little guy didn't deserve this. If anyone did it was/is me. But we'll get him through this. Some how, some way we will kick cancers a$$. Maybe, just maybe, I can post tomorrow and say its just a tummy ache.
If it's any consolation, my good friend's child had Leukemia, went through all the treatments and has been in remission for many years now.
I believe the University of Pennsylvania has done some groundbreaking treatments on Leukemia.
8 months later, and I wouldn’t have thought dad would still be with us - but he’s doing great. Chemo worked extremely well, he’s still going in every other week for it, but he’s now on a slightly “lower dose” that doesn’t impact him as negatively. Praying he continues to progress as he has.So glad to hear the little guy is home, best wishes to you all.
Man, F cancer. We just got a diagnosis in my family, stage 4. Chemo starts next week. Been having crying fits almost daily.
wishing you and yours all the best as well8 months later, and I wouldn’t have thought dad would still be with us - but he’s doing great. Chemo worked extremely well, he’s still going in every other week for it, but he’s now on a slightly “lower dose” that doesn’t impact him as negatively. Praying he continues to progress as he has.So glad to hear the little guy is home, best wishes to you all.
Man, F cancer. We just got a diagnosis in my family, stage 4. Chemo starts next week. Been having crying fits almost daily.
Cancer treatment has really progressed over the last decade or so.8 months later, and I wouldn’t have thought dad would still be with us - but he’s doing great. Chemo worked extremely well, he’s still going in every other week for it, but he’s now on a slightly “lower dose” that doesn’t impact him as negatively. Praying he continues to progress as he has.So glad to hear the little guy is home, best wishes to you all.
Man, F cancer. We just got a diagnosis in my family, stage 4. Chemo starts next week. Been having crying fits almost daily.