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Soooooooooooooooooooooooo (3 Viewers)

You are one brave mother****er. Pardon the language.

Dude got bitten by a copperhead, killed it, put it in a brown paper bag and took it with him to the hospital. This is Chuck Norris level brave and bad.
Nah. He was bit by a shark, dragged it all the way from the beach to the hospital and is planning to go surfing tomorrow.
Chuck Norris stays far away when Bob is around.
I was bitten by a shark when I was 13. :lmao:
 
The surgeries a week ago Tuesday went well! Not only do I have a cancer that has never been observed worldwide, but the location of the tumor is so unique that my case was described as a once-in-a-lifetime teaching experience. That doesn't sound great right?! LOL ;)

Like the stock market, sometimes bad is good and good is bad. In this case, it was certainly good! I had about a dozen world class surgeons in the OR observing and helping patch me up. Ug, I know, please no more puns Bob!!

I was also very fortunate to have first class RN's look after me in the ICU during my time in the OR. There was one exception. That was Thursday evening and after meeting the new RN for the next 12 hours, my wife Patty, who slept overnights with me, instacalled telling me one nurse gave her the vibe she didn't know what she was doing. Ironically, she had years of experience and wasn't "newly minted" (my wife's term) like the rest of the nurses. We later learned she is a travel nurse filling in for someone that called in sick.

Patty, aka, Pep, had to help her with a few things but was doing her best to stay out of the way. Pep was sleeping when she was draining the bulbs coming out of left leg which tendons were cut out of to fill the orbital cavity, and didn't drain and seal them properly. Because of this, I had a massive hematoma in my upper left thigh. Again, so lucky to have so many surgeons involved as I was checked and checked again all day and night by surgeons. Even on drugs, it was painful, like having Charley horse the size of cantaloupe. It was discovered immediately by one of the surgeons. As luck would have it, there was another surgery that just canceled so the OR, anesthesia, instruments, etc., was set up. The universe provides! They rushed me in to re-open my leg and clean me out. All good!

During a shift change that evening, the new nurse, Katie, was briefed by Sydney, the current nurse, about my case. Katie remarked that I must have been freaking out. Sydney told her I was the calmest person in the room. Communicating that to all of you because it’s YOU that gives me this strength!

Here’s a funny moment from early Saturday morning: around 2am, I needed to use the restroom and hit the call button for Katie to unhook me from the monitors. As I sat on the edge of the bed, gravity did its thing and a heck of a lot of blood burst through the gaps in incisions. It looked like a crime scene. Katie yells “I need a nurse!!” waking Pep up and summoning a dozen newly minted female RN’s to my room. Katie is trying to stop the blood, so my gown is hiked up and nothing left to the imagination. My blood pressure cuff was still hooked up and registered a 110/71. It didn’t bother me at all. Plus, the ear-to-ear smile on Pep’s face made me appreciate her, how well she knows me, but I’m sure didn’t want to know exactly what was going through my mind. 😉


I was released from the hospital on Sunday and arrived home early afternoon. I've slept almost the entire time since. If you have ever been in the ICU, you know, it's not a place to rest. I promise I will be going back to bed soon and rest for the next 4-5 weeks to heal up so that phases 2-3 can be started. Everyone has been so supportive; I’ve felt it difficult to check out without giving you an update. The love, my God, the love. I wish everyone could experience what this support feels like from all of you. I promise I will be back in bed resting soon.

Love you all!


BH


PS

Send me a text if you sicko's want to see gory pictures. ;)

This post makes me love you even more Bob. You are incredible! Have you picked out your pirate name yet?
I'll let others do that for me. ;) Love you too
 
It’s 8 in the morning and I’m laying in bed sobbing over a one eyed, cat shirt bandit that I’ve never actually met.

Face looks normal to me. Your leg however, wtf did they use, those scissors that are jagged to make crinkle cuts!?!

Wishing you the best!
:lmao:

I was thinking the same thing about the incision. My guess is it's easier to heal back together, like two puzzle pieces.
 
My team has been satisfied with my progress but have been in a holding pattern. They want to use proton radiation instead of the typical photon. Considering the location of the tumors, I couldn't agree more. The insurance company has repeatedly denied coverage but they have gone to bat for me and finally got it covered today. Radiation starts Monday and will be completed towards the end of November.

I had a new sexy port put in last week. Type and frequency of chemo is TBD but will be administered after radiation instead of during like last time.

Here's a short video. Keep in mind the left side of my face, lips, are still numb. Plus drugs, oh yeah you got to have drugs. /HJS ;)


Most unexpected is that a day hasn't gone by since I've gotten home from the hospital where I haven't received cards, gifts, food, etc. I don't know that I deserve this outpouring of affection but I'm grateful. I also hope it stops soon. I'm a dickmitten when it comes to receiving gifts. Character flaw I guess.

Love you fam! Thank you all again for support!

SLB
 
You are one brave mother****er. Pardon the language.

Dude got bitten by a copperhead, killed it, put it in a brown paper bag and took it with him to the hospital. This is Chuck Norris level brave and bad.
Nah. He was bit by a shark, dragged it all the way from the beach to the hospital and is planning to go surfing tomorrow.
Chuck Norris stays far away when Bob is around.
I was bitten by a shark when I was 13. :lmao:
How many times did you bite it back?
 
My team has been satisfied with my progress but have been in a holding pattern. They want to use proton radiation instead of the typical photon. Considering the location of the tumors, I couldn't agree more. The insurance company has repeatedly denied coverage but they have gone to bat for me and finally got it covered today. Radiation starts Monday and will be completed towards the end of November.

I had a new sexy port put in last week. Type and frequency of chemo is TBD but will be administered after radiation instead of during like last time.

Here's a short video. Keep in mind the left side of my face, lips, are still numb. Plus drugs, oh yeah you got to have drugs. /HJS ;)


Most unexpected is that a day hasn't gone by since I've gotten home from the hospital where I haven't received cards, gifts, food, etc. I don't know that I deserve this outpouring of affection but I'm grateful. I also hope it stops soon. I'm a dickmitten when it comes to receiving gifts. Character flaw I guess.

Love you fam! Thank you all again for support!

SLB
Good luck!

And it's amazing that dickmitten doesn't get caught by the language filter but **** Vermeil does.
 
My team has been satisfied with my progress but have been in a holding pattern. They want to use proton radiation instead of the typical photon. Considering the location of the tumors, I couldn't agree more. The insurance company has repeatedly denied coverage but they have gone to bat for me and finally got it covered today. Radiation starts Monday and will be completed towards the end of November.

I had a new sexy port put in last week. Type and frequency of chemo is TBD but will be administered after radiation instead of during like last time.

Here's a short video. Keep in mind the left side of my face, lips, are still numb. Plus drugs, oh yeah you got to have drugs. /HJS ;)


Most unexpected is that a day hasn't gone by since I've gotten home from the hospital where I haven't received cards, gifts, food, etc. I don't know that I deserve this outpouring of affection but I'm grateful. I also hope it stops soon. I'm a dickmitten when it comes to receiving gifts. Character flaw I guess.

Love you fam! Thank you all again for support!

SLB

You look great! And love seeing you smile. The technology and machinery for proton is so freaking crazy.
 
keep on fighting like hell man lots of love for you from everywhere including and not limited to this little corner of the universe
 
Been basically puking and sleeping. Figured most people could do without. Lol

Yeah, it’s the storm before the rainbow on one of those miserably humid summer days. It will ease up, and you’ll have one of those beautiful dry ones with a breeze on the lake. Easy for me to say, but I just believe it.

You keep fighting for as long as you need and feel the same. There’s something good on the other side of this.
 
Been basically puking and sleeping. Figured most people could do without. Lol

Yeah, it’s the storm before the rainbow on one of those miserably humid summer days. It will ease up, and you’ll have one of those beautiful dry ones with a breeze on the lake. Easy for me to say, but I just believe it.

You keep fighting for as long as you need and feel the same. There’s something good on the other side of this.
It’s difficult to describe, for sure. As I previously stated it's almost like being a ghost at your funeral where you get so many people saying incredible things about you. There might be a few bad things too. ;)

However you have to relive all of the horrible things too. This treatment, combined with the last treatment, divided by just getting old, made the possibility of death seem like a better possibility. :lmao:

I'm one of the luckiest people alive. I think that sums things up nicely. Nothing left to say.
 
I e-mailed this out earlier today. I count many of you as friends although some are long gone. Just the way it goes. Still, I'll always be grateful to Joe, David, and all of you for the love and support you gave me during some tough periods in my life. Thank you

SLB

Good afternoon! The tone of this e-mail may sound different than past communications, but it’s important to me to be as transparent as possible.

First, the good news! My scan from a few weeks ago came back cancer free. Hooray! However, my doctors still have some concerns about what they are seeing. They already have an incredibly difficult job but when you are trying to cure someone with a cancer that has never been observed in the world, it’s hard to interpret exactly what is going on. I have a date with the CT machine again in three months.
I haven’t seen anyone but doctors and my father in months. So, it’s not you, it’s me. You may have noticed I never really mention exactly what is wrong with me (hey, I know what you’re thinking!! 32.png) in past e-mails because I don’t want to sound like I’m complaining or fishing for sympathy. I’m so lucky to have all of you, and to be alive!

Here you go, probably TMI, but you are important to me, and I don’t want any hurt feelings.

Throat: My throat for all intents and purposes has been swollen shut. To swallow something as small as pea takes half a glass of water to get it down. Plus, I still don’t have my taste buds back so almost everything tastes horrible. I’ve been getting by on protein shakes and eating whatever I can get down. Sometimes chicken noodle soup & scrambled eggs taste good, other times they don’t. I have a swallow study scheduled in a couple of weeks. Patty told me after this test there will be surgery where they stick a series of tubes down my throat to try and expand it. She went back to school after I got sick to get her First Assist degree (I’m so proud of her!) and has personally performed this procedure with doctors many times. It’s always good to have a RNFA in the house! Plus, I had saliva glands removed and have a dry mouth all the time. It’s my hope that if I can eat, I will feel better.

Face: As you know they had to remove my left eye in order to extract the tumor behind it. To fill in the void my tendon in my left leg was taken and inserted where my eye was. Now, and the surgeon said this is completely normal, my body is generating two kinds of mucus trying to heal this space. One is fast moving; I’m always blowing my nose. The other is very slow and accumulates in my head. It feels like a bug is under my skin moving around, something I don’t think I’ll ever get used to. I can take Sudafed which stops the fast-moving drainage but then it creates a rock in my head that is extremely painful and difficult to expel. As the slow-moving mucus accumulates it eventually runs out of space putting extreme painful, pressure on my face. To make things worse, it literally stinks. If you were around me, you could smell it which is gross and embarrassing. Every 10 days or so it all comes out in at once. The volume is always hard to believe but I literally thank God every time it does it's such a relief. Then there’s nerve pain which extends from the top of my head down to my chin. That’s the worst of the TMI so it’s safe to read on!

Hearing: My hearing has been diminished but mostly in my left ear. I was scheduled to have a tube put in but after cutting open my eardrum it was discovered that it is 10X thicker than it should be because of all the radiation I have received. It is healed now, and I have an appointment in a few weeks to have a special tube put in. It’s crazy but I can’t wait! My poor wife has had to yell at me too many times so I can understand her. It helped my hearing immensely last time that they were able to get the fluid out.

Neck: I have had a lot of nodes removed on both sides of my neck which has led to lymphedema. Every night around 7 or so I’m reminded of this. Pain levels vary but there are times when it’s impossible to sleep. Thank God for pain meds and ice packs! Last night was one of the worst. I already go through these periods where I can’t sleep for a couple of weeks and then all I can do is sleep for a couple of weeks. As I write this, I’ve been awake since 10am yesterday. My record is 40 hours! The lymphedema also restricts how far I can open my mouth. I can barely get a spoonful of soup in. It’s like someone is telling me to keep my big mouth shut! LOL32.png I have been going to PT, and doing the exercises at home, which will hopefully correct these issues.

I don’t mind writing that there are times when I completely break down and cry my eye out. As Jack Handy said, it takes a big man to cry and an even bigger man to laugh at that man. LOL I feel so guilty about not being there for what I’m putting my wife and kids through. For not being there for all of you the last year. Not being available to my dad after mom’s passing in February. (Thank you Uncle Dave for stepping in for me and taking care of him!) The best way I can explain it is every day I feel like I have the flu. No fun, but I’ll never give up fighting. That you can count on!

We have the Holiday Thursday and some of you have daughters getting married this weekend and next. I WILL be there. Patty and our sons may have to carry me, but you will see me. I can’t say I will be there for very long, but I will be there.
There you go. Sorry for the filibuster but all my cards are on the table. You’re lucky I have PT at 1pm or I might type more. LOL!32.png

Lastly, and most importantly, it may be Thanksgiving in a couple of days but for me it’s every day because of the support I get from all of you. You keep the fight in this old dog. I’m doing everything I can to get back to health. I owe you my life because I couldn’t do this without your love and kindness. I’m so, so, lucky. Thank you!

Have a Happy Thanksgiving!



Bob
 
It got dusty in here all of the sudden. Your last post really reminded me of what is really important. I'm so glad my family is coming over tomorrow.

Best of luck as you continue the fight, Bob. You'll be in my thoughts.
 

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