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Think there is/was a doctor at MSU you might not want to see...............
what koya said... but without the whiney tinged long island accent.
Ugh been their buddy. Your heart jumps every time they desat. I am so glad to hear he is a fighter! Have fun in Italy. Crossing my fingers too!
It was. They were basically telling us (including Jack) to make decisions on whether or not he wanted to be intubated, receive CPR, etc if necessary... how painful it would be, etc. I know it scared the crap out of me... had to do the same to him. But he was walking the halls of the hospital 2 days later giving the doom and gloomers the evil eye.
She’s a friggin’ saint. Absolute best patient advocate Jack could have. Selfless, organized, and continually questions how, why and when anything is recommended or prescribed. Did I mention how awesome she is?
It's unfortunate how important this is, but my goodness, having almost died a few years back myself, only to have a series of hospitalizations and major surgeries (including one that barely saved my life), the work my mother and (no ex) wife did was tremendous. In fact, there were a lot of times where my ex was not there for me as she should have been, but thankfully, when it came to keeping the medical system, docs and nurses focused, looking out for MY well being and ensuring I got the best care, I have to give it to her, she was great.
Sad but true, GB. She catches mistakes on the part of the team supporting him constantly. Really a shame that it's so common. She is constantly asked if she's in the medical profession (which she's not) because she keeps copious notes, does her research and isn't afraid to challenge the Drs/Nurses. Some of them are really good, but others are painfully inept.Koya said:
and sometimes people are just human and overlook, forget, make a mistake - except that can result in tremendous pain (or worse) in some situations. 2-3 days after I came back to consciousness after my first and most significant surgery, we had very clear instructions from the Surgeon about my pain meds. I was to stay on the drip as opposed to go to oral meds, because I hadn't eaten, it would likely make me nauseaus and other reasons.
I bet I could charge for tickets if someone tried to pull this one on Mr R.
❣❣❣❣❣❣❣Keerock said:
Jeebus. Did you file a complaint? The hospital I use and their docs offices always mail a survey asking us to rate everything- the docs, staff, cleanliness, wait times, etc. It's very thorough and detailed. That's the only way the board of directors at the hospital know how they are doing. I get the survey even for just getting my port flushed or labs. Because of this it's a really good hospital with a great staff. Shows they care.
Yes, we did. A pointed one. This is the complete arrogant ####### surgeon stereotype that feeds into that stereotype - was probably the most seasoned / experienced of my surgical group, thinks his #### don't stink, and he isn't going to "take gruff from a stupid patient"
- brainiack.
Sending prayers and good thoughts to dear Jack, and to all of you. Glad he is feeling good for the holiday season. And wtg with the 4.0! God bless you all. XxxUpdate on Jack. He's home from school after a 4.0 first semester
He's currently feeling really good. Has put on weight and has no restrictions on his activity. Unfortunately, his last scans showed some progression of the disease... mostly in his lung. This indicates that his current chemo treatments are not effective (enough) so we are researching alternative treatments. His primary oncologist has a couple options and we have reached out to Dana Farber, Sloan Kettering, and (thanks to @bigbottom) Texas Children's/MDAnderson for their recommendations. There are no standard treatments beyond what he has already had so we are looking at what other options are there, including clinical trials.
I appreciate all of you keeping Jack in your thoughts and prayers... he deserves to be done with this.
Definitely gets it from his mother.Update on Jack. He's home from school after a 4.0 first semester
I haven't said anything because I feel uncomfortable, but please know my best wishes, prayers, thoughts, are with you and your family. Let's get Jack well somehow.Update on Jack. He's home from school after a 4.0 first semester
He's currently feeling really good. Has put on weight and has no restrictions on his activity. Unfortunately, his last scans showed some progression of the disease... mostly in his lung. This indicates that his current chemo treatments are not effective (enough) so we are researching alternative treatments. His primary oncologist has a couple options and we have reached out to Dana Farber, Sloan Kettering, and (thanks to @bigbottom) Texas Children's/MDAnderson for their recommendations. There are no standard treatments beyond what he has already had so we are looking at what other options are there, including clinical trials.
I appreciate all of you keeping Jack in your thoughts and prayers... he deserves to be done with this.
Thanks for the update, Kee. I have been thinking about you guys, hoping everything was good. Continued prayers for Jack and the whole family, and for good news on a clinical trial.Update on Jack. He's home from school after a 4.0 first semester
He's currently feeling really good. Has put on weight and has no restrictions on his activity. Unfortunately, his last scans showed some progression of the disease... mostly in his lung. This indicates that his current chemo treatments are not effective (enough) so we are researching alternative treatments. His primary oncologist has a couple options and we have reached out to Dana Farber, Sloan Kettering, and (thanks to @bigbottom) Texas Children's/MDAnderson for their recommendations. There are no standard treatments beyond what he has already had so we are looking at what other options are there, including clinical trials.
I appreciate all of you keeping Jack in your thoughts and prayers... he deserves to be done with this.
same.
