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Cancer, CurlyNight's Journey (1 Viewer)

CurlyNight

Footballguy
As some of you have pieced together in the thought & prayer's thread, and several of you have been so kind with your pm's and asking me to start a thread for support, I have decided to do just that regarding my recent cancer diagnosis.

I have several folks on fftoday who want to be kept in the loop as well, so while I know there is a silent "war" so to speak between the 2 boards, I decided to post my blog/journey on a middle ground board. So if anyone is interested in following my journey, rather than posting on/worrying about 2 boards, especially when I'll be ####ed up, it will be all on 1 for whoever is interested.

I am Artista on that board and the link is

http://nomoregfiafp.boards.net/thread/1000/breast-cancer-artistas-journey

 
Curley got this. :thumbup:

As discussed, shoot me a PM if you ever get down. Until then, a couple of my favorite quotes...

“You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do” – Eleanor Roosevelt

“Feed your faith and your fears will starve to death.” – Anonymous

 
Thank you everyone for your kind words and wishes!

I remember when I first found out about Corbin's cancer last Oct (the young warrior in my avatar), I said to myself I would rather take the bullet for him than he experience any hardship. Well he did experience a ton of hardship, as I've posted his journey in the thoughts & prayers thread, so hopefully this means he's done with that and is on to kicking it's ### problem free now!

Corbin is my good friend's nephew who lives in Tyler Tx. He's doing better and should be on his way to Disney in August! If it's between him and I, for sure it should be him to be done with it asap. Not being morbid, but I truly hope that at least he is done with his hardships, as he's had so many really tough ones.

Thanks again. :thumbup:

 
Best of luck to you as you fight your fight. Let Corbin be your inspiration on how to live life with a smile on your face no matter what you are facing or how hard it is.

 
Good luck and good karma your way. I thought you were gonna say the middle ground was the curly board :lol: FFT4EVA!

 
Best of luck to you, Curly. You sound like you have your head on right to be able to deal with this......

.........<----------unlike this guy. Oh, I did all of the recommended treatment but when it looked like it wasn't working, I gave up. I was 50, unmarried (any more), never had kids. I just didn't feel like worrying over it anymore. So, I made sure my affairs were in order and waited to die. I then went on a 6 month bender that had to be seen to be believed. I have no idea how I functioned professionally.

My mother shamed me into trying one more time. I got a new oncologist, who I chose because she was open to holistic stuff. She started me with radiation, though. I told her I was never doing chemo again because it made me so sick (some people have the exact opposite reaction to the two, some handle both badly, and some breeze both).

For whatever reason, the radiation worked this last time. I had REALLY wanted to try some of the voodoo stuff, but even I'm not crass enough to complain. Been tumor-free for a couple of years. Had a minor scare last year when they found a growth on the back of my lung, but it turned out to be "just" a benign cell mass.

Anyway, sorry for rambling. Go burn that ####er down and holler if you want to chat.

 
I smell a go fund me coming along. Strike ?

Ha good luck. Mom 20 plus year survivor but step father just succumbed to the Fvxking disease a couple weeks ago.

Highs and lows. Kick its ### CN !!
GL, curly!

I mentioned previously that my mom is also a 20 year survivor (somethign in the water 20 years ago? :tinfoilhat: )... you definitely have this- and we in the FFA have your back when you need it.

So sorry to hear about your dad, shotsup.

 
I'm ####### sick of it. Just lost my brother, two years before that my mom, a few years before that my best friend, and another very close friend is fighting it too. It's gotten so I look at each member of my loved ones, and myself, and wonder who's next? It seems inevitable by now.

I wish you nothing but the best of luck.

 
Thanks so much guys. I'm overwhelmed by such kindness. Not used to it. Since I'm keeping this from all but 3 people irl, the online support from you wonderful people is special.

BB: You are so spot on. Corbin is my light in more ways than one now. I mean if he can smile, what's my excuse? Love that little man, a true warrior especially at such a young tender age.

Pik95- Have not been on the curly board in years! I don't know the saying, but it's too rated G with mostly :mellow: posts. Way too boring, and I'm talking about the non hair board. Plus I anticipate sporting the bald look for awhile so it would be weird using that board as the middle ground sitting here bald. :lol:

Shotsup: LOL. Yeah. I think Strike is done. Poor guy. He did get trashed didn't he. Plus isn't he banned from here now? And as far as go fund me, go fund CORBIN. Link is in my signature. I should be fine as I have great insurance, but it was never my idea or intention to get people to help me back then when I was facing serious shiiiiiiiiiiiiiit. It got so way out of hand...

Uruk-Hai: How similar we are with the age and no kids part. So glad you didn't give up and you are here today and look here, you are helping me! That's my intention with this is to hopefully be able to help someone once I'm through it, which is one reason why I created the blog on that board. Not just to update you all on the happs, but to share my thoughts and feelings which I have started doing today over there. Congrats on being 2 years free! I'm rooting for you too as it doesn't end emotionally and all when you are deemed in the clear. This is with you forever. And you're not rambling. I have all the time in the world to read posts now lol so thank you so much for sharing. ((hugs))

From whatdoIknow on down, I have used my likes for the day already! :loco: But know I'm reading every post and am very touched and I thank you all.

 
A couple of suggestions, mostly based on things I did wrong and fully realizing that everyone's different:

1. It's ok to be scared and lean on others. This was really hard for me, as I tend to internalize everything and not want to trouble others.

2. #1 being said - if possible, get thyself a therapist. Someone with no vested interest in you. And be completely honest. Being able to vent helps a ton and I wish I had done this.

3. Don't be afraid to move to other care-givers. My first oncologist was ok, I guess, but he basically threw his hands up and said "you're ####ed, dude".

 
Thanks ^^!

1- Yeah I know. I've always been the caregiver not the reverse so that is really weird for me.

2- I will if I need one. Thankfully I have a medical and psychology background/training so I'm pretty good on myself. But good idea for anyone is to not be ashamed or afraid to reach out to professionals when the cards are down for you.

3- Wow. What a shiiiiiiiiiiiiiit! Even if he thinks you are ####ed, you don't say anything to the like! Everyone I've seen so far have been overly kind and compassionate. I mean you should see this women's center at the hospital. Soothing music, beautiful modern atmosphere, snacks/ice water/keurig coffee maker free, comfy surroundings. I mean I felt like I was in a spa just looking at it even down to the dressing rooms and bathrooms. Any women in the Bay Area CA should check it out. Nothing close to anything I've ever seen in any clinic.

Luckily when I was a surgery scheduler for a popular surgeon who operates at the hospital, it became clear to me that people there are all awesome. My doc travels from Woodside to Fremont because the quality of people and care at Washington Hospital in Fremont are bar none. I already know some of the people from past workings.

Thanks for the tips as there are things you don't think of for yourself even if you know.. :)

 
To be fair to my first doc, I was not pleasant to be around and I'm sure he got tired of dealing with my hard-headedness. I was some kind of weird combo of self-pity, he-man, and "I'm smarter than you". We were just a bad match.

I hope you don't mind me saying this (& I don't know you from Eve so I may be way off-base here), but your psychology background could work against you if you try to tend your mental health yourself.

 
Thanks so much guys. I'm overwhelmed by such kindness. Not used to it. Since I'm keeping this from all but 3 people irl, the online support from you wonderful people is special.
best wishes Curly. You should consider letting more people know, people can provide some surprising support.

 
Thanks so much guys. I'm overwhelmed by such kindness. Not used to it. Since I'm keeping this from all but 3 people irl, the online support from you wonderful people is special.
best wishes Curly. You should consider letting more people know, people can provide some surprising support.
If you mean my family, let's just say the stress that I'd feel far outweighs the support. Several years ago when I had something major going on, while they have the best intentions and do care a lot, they drove me bat shiiiiiiiiiiiiiiiit crazy between their over the top anxiety, the know it alls, and wanting to be attached to my hip 24/7. I mean if I didn't answer a call, forget that I could be taking a nap, instant panic ensues. Promised myself back then should something to that magnitude arise again, oh hell no with telling parents and rest of fam. I would need 10 anxiety rxs just to deal with my mom alone! lol. Bro is cool despite his deep concern. Unfortunately he's the only one like this in the fam. And especially this will be such a long process, I'd have to be eventually committed as well. lol

That's probably why I studied psychology as well as occupational therapy at UW in Seattle. To try and figure out what makes people the way they are! lol. Not that I'm near perfect, oh hell no. I have my quirks but they seem to be liveable by the people who matter the most.

 
To be fair to my first doc, I was not pleasant to be around and I'm sure he got tired of dealing with my hard-headedness. I was some kind of weird combo of self-pity, he-man, and "I'm smarter than you". We were just a bad match.

I hope you don't mind me saying this (& I don't know you from Eve so I may be way off-base here), but your psychology background could work against you if you try to tend your mental health yourself.
Ahhhh, I see. Yeah, I've had pts like that working in a surgeon's office. Those are the very ones you put at the bottom of your to do list. lol. Kindness always gets you far, especially when you are basically a number of so many. See the same thing every day and it's those that are nice and understanding that I'd go the extra 2 miles for, even though I was so damn busy in that practice.

As for my psych degree and training, I know what you mean but I am aware of the over diagnosing yourself. I mean I had myself locked up committed studying the DSM in college! Mind boggling. But thanks for the heads up as I will have to be more careful if I do forget this.

 
while I know there is a silent "war" so to speak between the 2 boards,
huh?
Must be a one sided thing. lol. Just when you bring up I'm on fbg you get sarcastic remarks. I know a few years back (I"ve been a member of fft since 2002) that fft folks would come here and stir shiiiiiiiiiiiit up before getting banned. It's hard to get banned over there so they would make fun of this board. I don't see it much nowadays but back when it was pretty brutal threads.

 
Don't give up sister! New treatments are discovered every year that radically improve the life expectancy of all kinds of cancers.

I've learned (colon cancer at 21) over the last many years that's it's ok not to be perfect. Everyone (and me) preach being positive, fighting, staying active, etc. These things are all great; however, it's ok to fail once in a while. If you're having a bad day and need to cry it out. No worries, just don't make it a bad week/month. It's fine to get a little caught up in the "why me?" and "woe is me" attitudes. We all do. Just don't get too caught up. If you take one step backwards, make sure you take two steps forward next.

And above all remember, that life is an amazing journey that is well worth fighting for. Not only for you, but for all the people you meet that can touch and help and make their lives a little better.

Good luck and tap.

 
Good Luck Curly! Cancer has come after too many people I know and care about IRL recently and keeps getting its' A## kicked.... time for you to continue the trend.

T&P

AB

 
James Daulton said:
Don't give up sister! New treatments are discovered every year that radically improve the life expectancy of all kinds of cancers.

I've learned (colon cancer at 21) over the last many years that's it's ok not to be perfect. Everyone (and me) preach being positive, fighting, staying active, etc. These things are all great; however, it's ok to fail once in a while. If you're having a bad day and need to cry it out. No worries, just don't make it a bad week/month. It's fine to get a little caught up in the "why me?" and "woe is me" attitudes. We all do. Just don't get too caught up. If you take one step backwards, make sure you take two steps forward next.

And above all remember, that life is an amazing journey that is well worth fighting for. Not only for you, but for all the people you meet that can touch and help and make their lives a little better.

Good luck and tap.
Oh wow, 21? Yeah I hear you on "cheerleader" type of thing. Do it a lot irl and have on here as it is my personality to care about people, even if I don't know them irl. If I"m to break down, it would probably just before and after surgery as it is a long and for many, shiiiiiiiiiiiiiiity road. Glad to hear you are looking many years back now. Thanks for the tip.

 
Last edited by a moderator:
Thanks Rocket. If anyone is curious about how many likes you get per day, looks like it's 10. :loco: Last day before the journey really starts. Tomorrow is meeting the surgeon followed by Friday meeting the radiation oncologist. Will keep posting thoughts and updates, etc in my Artista journey thread on the other board, link above. Thanks all. :wub:

 

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