Murky ultrasound results, wife is a basket case (1 Viewer)

[culdeus]

Just make sure when your healthy baby is born you don't sleep in the same bed with it.

tia

 

[Spike]

We went on Wednesday for another ultrasound, and again the doc told us that one of the chambers was measuring smaller than the other, but it wasn't glaringly defective. He got us an appointment for a fetal echocardiogram for yesterday afternoon.

First off, the equipment available today is unbelievable. They zoom in on the little critter's heart and you can see in great detail the tiny valves opening and closing in unison with every beat. This was a good thing btw - both valves were working properly. They do a doplar-like thing where incoming blood is blue on the screen and outgoing is red. They check to make sure there is no leakage between the chambers and that blood flow is equal. That also checked out fine.  She confirmed that one chamber is in fact smaller than the other, and its unusal in that the one that is smaller is actually most often a bit bigger than the other at this stage. She didn't rule out that there could be an undetectable leak that wouldn't be picked up now, but there is no obvious, gross defect.

We'll go in for another one of these in 10 weeks just to make sure everything is cool as the heart becomes more fully developed. For now though, much relief in Nigel's house. 

Yeah.

 

[BuddyKnuckles]

hi nigel. i would tell your wife to not worry. worrying is not going to help the situation at all. i am very similar to your wife in that regard. one of our twin girls had "soft markers" for trisomy 18. basically, a death sentence. we, of course, were devestated. they saw a choroid plexus cyst and an echogenic bowel. they said both things could be nothing, but since there was more than one indicator, they were somewhat concerned. well, i logged many hours scouring the internet for any info i could find. in the end, other than being extremely premature, they were perfectly healthy. the fact is (and you can find articles from other drs) ultrasounds are just not accurate enough to try to determine some stuff. the fact that it took that much time and effort to come up with "im 90% sure its fine" tells me, they should not be worrying the parents yet.

hoping this is the case with us. Went for the 18 wk ultrasound and we spent 5 hours in there. First the nurse took WAY too many pictures and measurements of internal organs. Like 45 minutes worth. She finally says "do you want to know the sex?" we say yes and she says "it's a girl". a few more minutes of pics and she leavesThe Dr comes in after 20 minutes and says "something looks abnormal with the heart, i'm going to take a closer look." He proceeds to take multiple pictures, measurements, and views of the heart stomach, and kidneys. His face has an "i'm not surprised but this is not going to be pleasant" look. Raised eyebrows, pursed/twisted lips.After at least 15 minutes of complete silence and the Dr viewing 100s of angles, pics, etc, he tells us the heart is asymmetrical, the stomach is on the wrong side, and there is fluid around the kidneys. That any one of those markers is not necessarily cause for significant concern. But the presence of multiple indicators means it is potentially a chromosomal issue. i.e. Trisomy. I'm 37 and my wife is 36 so we are higher risk for thisThey did an amniocentesis on the spot and took blood from both of us. 3 days before we know anything and 2 weeks before any firm answersi joke a lot on here about my relationship and my wife. But this would be her 3rd failed pregnancy. i didnt think she was going to come out of her funk after #2. This one would be a game changer i think. This one was so far along that we told everyone, our parents had already started buying things for the baby, and to make matters worse, the nurse tells us its a girl and then leaves for 20 minutes. We're talking about names and nursery colors, etc...after she had to know something was wrongnot a pleasant night in the Knuckles household

 

[DrJ]

hi nigel. i would tell your wife to not worry. worrying is not going to help the situation at all. i am very similar to your wife in that regard. one of our twin girls had "soft markers" for trisomy 18. basically, a death sentence. we, of course, were devestated. they saw a choroid plexus cyst and an echogenic bowel. they said both things could be nothing, but since there was more than one indicator, they were somewhat concerned. well, i logged many hours scouring the internet for any info i could find. in the end, other than being extremely premature, they were perfectly healthy. the fact is (and you can find articles from other drs) ultrasounds are just not accurate enough to try to determine some stuff. the fact that it took that much time and effort to come up with "im 90% sure its fine" tells me, they should not be worrying the parents yet.

hoping this is the case with us. Went for the 18 wk ultrasound and we spent 5 hours in there. First the nurse took WAY too many pictures and measurements of internal organs. Like 45 minutes worth. She finally says "do you want to know the sex?" we say yes and she says "it's a girl". a few more minutes of pics and she leavesThe Dr comes in after 20 minutes and says "something looks abnormal with the heart, i'm going to take a closer look." He proceeds to take multiple pictures, measurements, and views of the heart stomach, and kidneys. His face has an "i'm not surprised but this is not going to be pleasant" look. Raised eyebrows, pursed/twisted lips.After at least 15 minutes of complete silence and the Dr viewing 100s of angles, pics, etc, he tells us the heart is asymmetrical, the stomach is on the wrong side, and there is fluid around the kidneys. That any one of those markers is not necessarily cause for significant concern. But the presence of multiple indicators means it is potentially a chromosomal issue. i.e. Trisomy. I'm 37 and my wife is 36 so we are higher risk for thisThey did an amniocentesis on the spot and took blood from both of us. 3 days before we know anything and 2 weeks before any firm answersi joke a lot on here about my relationship and my wife. But this would be her 3rd failed pregnancy. i didnt think she was going to come out of her funk after #2. This one would be a game changer i think. This one was so far along that we told everyone, our parents had already started buying things for the baby, and to make matters worse, the nurse tells us its a girl and then leaves for 20 minutes. We're talking about names and nursery colors, etc...after she had to know something was wrongnot a pleasant night in the Knuckles household

Ouch, best of luck. If I remember correctly, this has caused you guys a lot of issues already. Hope everything works out for you and the girls.

 

[BroncoFreak_2K3]

GL good buddy.

 

[BuddyKnuckles]

hi nigel. i would tell your wife to not worry. worrying is not going to help the situation at all. i am very similar to your wife in that regard. one of our twin girls had "soft markers" for trisomy 18. basically, a death sentence. we, of course, were devestated. they saw a choroid plexus cyst and an echogenic bowel. they said both things could be nothing, but since there was more than one indicator, they were somewhat concerned. well, i logged many hours scouring the internet for any info i could find. in the end, other than being extremely premature, they were perfectly healthy. the fact is (and you can find articles from other drs) ultrasounds are just not accurate enough to try to determine some stuff. the fact that it took that much time and effort to come up with "im 90% sure its fine" tells me, they should not be worrying the parents yet.

hoping this is the case with us. Went for the 18 wk ultrasound and we spent 5 hours in there. First the nurse took WAY too many pictures and measurements of internal organs. Like 45 minutes worth. She finally says "do you want to know the sex?" we say yes and she says "it's a girl". a few more minutes of pics and she leavesThe Dr comes in after 20 minutes and says "something looks abnormal with the heart, i'm going to take a closer look." He proceeds to take multiple pictures, measurements, and views of the heart stomach, and kidneys. His face has an "i'm not surprised but this is not going to be pleasant" look. Raised eyebrows, pursed/twisted lips.After at least 15 minutes of complete silence and the Dr viewing 100s of angles, pics, etc, he tells us the heart is asymmetrical, the stomach is on the wrong side, and there is fluid around the kidneys. That any one of those markers is not necessarily cause for significant concern. But the presence of multiple indicators means it is potentially a chromosomal issue. i.e. Trisomy. I'm 37 and my wife is 36 so we are higher risk for thisThey did an amniocentesis on the spot and took blood from both of us. 3 days before we know anything and 2 weeks before any firm answersi joke a lot on here about my relationship and my wife. But this would be her 3rd failed pregnancy. i didnt think she was going to come out of her funk after #2. This one would be a game changer i think. This one was so far along that we told everyone, our parents had already started buying things for the baby, and to make matters worse, the nurse tells us its a girl and then leaves for 20 minutes. We're talking about names and nursery colors, etc...after she had to know something was wrongnot a pleasant night in the Knuckles household

Ouch, best of luck. If I remember correctly, this has caused you guys a lot of issues already. Hope everything works out for you and the girls.

Thanks. And yes, the failed pregnancies, associated weight gains, mood swings, and general frustration have caused quite a bit of trouble for us. I typically come on here to vent...rather harshly sometimes. but hey, whatever it takes to get the poison outReading up on this we have 2 or 3 major markers and 2 soft ones.

 

[Frostillicus]

hi nigel. i would tell your wife to not worry. worrying is not going to help the situation at all. i am very similar to your wife in that regard. one of our twin girls had "soft markers" for trisomy 18. basically, a death sentence. we, of course, were devestated. they saw a choroid plexus cyst and an echogenic bowel. they said both things could be nothing, but since there was more than one indicator, they were somewhat concerned. well, i logged many hours scouring the internet for any info i could find. in the end, other than being extremely premature, they were perfectly healthy. the fact is (and you can find articles from other drs) ultrasounds are just not accurate enough to try to determine some stuff. the fact that it took that much time and effort to come up with "im 90% sure its fine" tells me, they should not be worrying the parents yet.

hoping this is the case with us. Went for the 18 wk ultrasound and we spent 5 hours in there. First the nurse took WAY too many pictures and measurements of internal organs. Like 45 minutes worth. She finally says "do you want to know the sex?" we say yes and she says "it's a girl". a few more minutes of pics and she leavesThe Dr comes in after 20 minutes and says "something looks abnormal with the heart, i'm going to take a closer look." He proceeds to take multiple pictures, measurements, and views of the heart stomach, and kidneys. His face has an "i'm not surprised but this is not going to be pleasant" look. Raised eyebrows, pursed/twisted lips.After at least 15 minutes of complete silence and the Dr viewing 100s of angles, pics, etc, he tells us the heart is asymmetrical, the stomach is on the wrong side, and there is fluid around the kidneys. That any one of those markers is not necessarily cause for significant concern. But the presence of multiple indicators means it is potentially a chromosomal issue. i.e. Trisomy. I'm 37 and my wife is 36 so we are higher risk for thisThey did an amniocentesis on the spot and took blood from both of us. 3 days before we know anything and 2 weeks before any firm answersi joke a lot on here about my relationship and my wife. But this would be her 3rd failed pregnancy. i didnt think she was going to come out of her funk after #2. This one would be a game changer i think. This one was so far along that we told everyone, our parents had already started buying things for the baby, and to make matters worse, the nurse tells us its a girl and then leaves for 20 minutes. We're talking about names and nursery colors, etc...after she had to know something was wrongnot a pleasant night in the Knuckles household

I generally think you're kind of an idiot, but this almost made me tear up (I'm kind of drunk too). My wife had a miscarriage and it was horrendous for us. I can't imagine what you're going through. You've been through it before so I don't know what kind of advice to give you, but, and you know this, just be as strong for her as you can and hope everything works out ok. This has to be awful. Good luck man. Just good luck.

 

[AAABatteries]

Good luck BK - thoughts and prayers to you and your wife.

 

[rabidfireweasel]

I am wishing you the best. My wife had a miscarriage post- Hurricane Katrina that was devastating to us. The, when she was pregnant the next time, it was a total mess.. Emergency visits due to intense bleeding, bed rest, we were told that she was having another miscarriage on three different occasions. More ultrasounds than i can remember, more silent sobs in the night than that. We were a bit older than you.Somehow, someway, with some blessing from somewhere that I certainly didn't deserve, my son made it through that pregnancy. I played football with 5 year old son today, and it was awesome. I really hope this chapter finishes with joy and magic. I will send out whatever feeble karma and energy that I can.

 

[Otis]

Good luck BK, I feel your pain. We've had two doses of it here in the past year. First an 8 week miscarriage, pretty standard, but then a second time last month -- pre-term labor when my wife was nearly 6 months. That one hurt, and still does. Mrs. O is climbing out of the funk now, but it's not a fun experience. T&P.

 

[IvanKaramazov]

Good luck, BK. Hoping for the best here.

 

[bigbottom]

Best of luck to you and your wife. Will be keeping you in my thoughts.

 

[Godsbrother]

Hoping everything works out okay Knuckles

 

[shadyridr]

A cousin of mine delivered a baby with Trisomy ?? The baby survived a few days and then passed away. The whole thing was devastating but they got through it and had another baby a year or so later. Good luck. You'll get through this too.

 

[The Hank]

T&P Knuckles

 

[Righetti]

Thinking about you GB

 

[Kal El]

When my wife was pregnant with our first, the doctor said that he couldn't get a good look at her heart, so we had to go in again in a week. Turns out that she was just in a bad position for the sonogram to see her heart. My guess is that something similar happened, and the heart could very likely be fine.In any case, just try to be supportive of your wife, and be willing to listen.

 

[BuddyKnuckles]

hi nigel. i would tell your wife to not worry. worrying is not going to help the situation at all. i am very similar to your wife in that regard. one of our twin girls had "soft markers" for trisomy 18. basically, a death sentence. we, of course, were devestated. they saw a choroid plexus cyst and an echogenic bowel. they said both things could be nothing, but since there was more than one indicator, they were somewhat concerned. well, i logged many hours scouring the internet for any info i could find. in the end, other than being extremely premature, they were perfectly healthy. the fact is (and you can find articles from other drs) ultrasounds are just not accurate enough to try to determine some stuff. the fact that it took that much time and effort to come up with "im 90% sure its fine" tells me, they should not be worrying the parents yet.

hoping this is the case with us. Went for the 18 wk ultrasound and we spent 5 hours in there. First the nurse took WAY too many pictures and measurements of internal organs. Like 45 minutes worth. She finally says "do you want to know the sex?" we say yes and she says "it's a girl". a few more minutes of pics and she leavesThe Dr comes in after 20 minutes and says "something looks abnormal with the heart, i'm going to take a closer look." He proceeds to take multiple pictures, measurements, and views of the heart stomach, and kidneys. His face has an "i'm not surprised but this is not going to be pleasant" look. Raised eyebrows, pursed/twisted lips.After at least 15 minutes of complete silence and the Dr viewing 100s of angles, pics, etc, he tells us the heart is asymmetrical, the stomach is on the wrong side, and there is fluid around the kidneys. That any one of those markers is not necessarily cause for significant concern. But the presence of multiple indicators means it is potentially a chromosomal issue. i.e. Trisomy. I'm 37 and my wife is 36 so we are higher risk for thisThey did an amniocentesis on the spot and took blood from both of us. 3 days before we know anything and 2 weeks before any firm answersi joke a lot on here about my relationship and my wife. But this would be her 3rd failed pregnancy. i didnt think she was going to come out of her funk after #2. This one would be a game changer i think. This one was so far along that we told everyone, our parents had already started buying things for the baby, and to make matters worse, the nurse tells us its a girl and then leaves for 20 minutes. We're talking about names and nursery colors, etc...after she had to know something was wrongnot a pleasant night in the Knuckles household

I generally think you're kind of an idiot, but this almost made me tear up (I'm kind of drunk too). My wife had a miscarriage and it was horrendous for us. I can't imagine what you're going through. You've been through it before so I don't know what kind of advice to give you, but, and you know this, just be as strong for her as you can and hope everything works out ok. This has to be awful. Good luck man. Just good luck.

yeah, i tend to come on here specifically to be an idiot. it's my way of venting. so i'll sleep in the bed i've made

 

[BuddyKnuckles]

Good luck BK, I feel your pain. We've had two doses of it here in the past year. First an 8 week miscarriage, pretty standard, but then a second time last month -- pre-term labor when my wife was nearly 6 months. That one hurt, and still does. Mrs. O is climbing out of the funk now, but it's not a fun experience. T&P.

yeah, they're tough enough to deal with. But once you start looking at names, buying stuff, telling everyone, and once your wife looks and feels very pregnant, its no fun to go through

 

[pantagrapher]

I hope everything turns out well. My wife is 3.5 mos. pregnant right now and is an emotional wreck every time we go in for status updates. It's still early, and everything is looking good so far. I can't imagine what you're going through or what I'd do in your position. Good luck.

 

[Guest]

Best wishes BK. The ex and I went through 3 miscarriages, with the last one being pretty far along.

 

[BuddyKnuckles]

Update - no chromosomal issues. at least none that they can test for. instead we've got a superfecta of congenital defects. won't get into details but we're looking at a minimum of 3 major surgeries within 2 years. Possibility of as many as 6 if things do not go well.

Most precarious times will be just before birth, as waiting the longest gives the best chance for survival. Anything premature would not be good. And then immediately after birth they will take her right to NICU and once stabilized into surgery. If she can get through that, things look at least survivable with a realistic possibility of a normal life

oh, and my dog needs surgery and my business is failing.

thanks a lot karma, you #####

 

[St. Louis Bob]

Update - no chromosomal issues. at least none that they can test for. instead we've got a superfecta of congenital defects. won't get into details but we're looking at a minimum of 3 major surgeries within 2 years. Possibility of as many as 6 if things do not go well. Most precarious times will be just before birth, as waiting the longest gives the best chance for survival. Anything premature would not be good. And then immediately after birth they will take her right to NICU and once stabilized into surgery. If she can get through that, things look at least survivable with a realistic possibility of a normal lifeoh, and my dog needs surgery and my business is failing.thanks a lot karma, you #####

:( :( So sorry to hear about all of this GB. My cousin had a baby with similar issues. Thankfully with modern science, and a lot of surgeries, their son, now 5, is getting closer and closer to being "normal". It was a slow start for him, but it looks like everything is going to work out fine. T&P's to you and your family.

 

[pittstownkiller]

Stay strong BK, not only for you but your wife.

 

[Ketamine Dreams]

Sorry to hear this. Hang in there. T&P to you and your family.

 

[BuddyKnuckles]

i was thinking of writing a country song...i know i've got the lyrics somewhere in here already

 

[bills025]

My nephew was born way early and he and his mom were in bad places during the delivery. 10 months later and they are both doing well. He is an awesome kid, she is ok. Thoughts and prayers for you man.

 

[RustyFA4]

Bk, I'll be sending some prayers. It took us 8 years the first time with a lot of cash. Pretty sure she had a miscarriage last fall after 2 more years of trying but she is 9 weeks now. I don't know if it your thing but we lean on Jesus. I'll be praying for you.

 

[IvanKaramazov]

Good luck, BK. I hope this turns out okay for you and your family.

 

[bigbottom]

Best wishes BK. Will keep you, your wife and your little one in my thoughts and prayers.

 

[STEADYMOBBIN 22]

Best wishes Busted. ####!!!!

 

[Otis]

GL T&P for you and your wife

 

[rabidfireweasel]

Stay strong BK, not only for you but your wife.

Actually, I would be careful with this. I played things way and it almost ended my marriage.Shortly after Katrina, while we were moving from Mississippi, my wife had a miscarriage. That was very difficult. Later she was pregnant again and the pregnancy was going very badly- extreme bleeding, bad ultrasounds, etc.I tried to be strong for my daughter and strong for my wife. I rarely showed how much it was tearing me up. I just lay awake at night, and tried to hold things together at home and make things work at my job. My wife and I had a distance growing between us. I thought it was just the stress of the situation, but I seemed like it might be bigger.One night, my wife is bleeding buckets. We call the hospital. They tell us she is miscarrying, and we need to sit tight. We can see the doctor in the morning. Now, we need to lay down and be still.My wife and I hold each other, and she says "What are we going to do? I can't take this again? I don't how I will get through this?' I try to be strong, but I can't. I just cry. I cry for my lost baby, I cry for tha baby I'm losing, I cry for my wife and I cry for me. My wife looks at me stunned- She says "I never knew this bothered you so much. I have felt so alone in my grief." I said "I was trying to be strong for you and for Charlotte."She said, "I married you to share this life with me and for us to walk the road together. We have been walking separately lately"She was right. We went to the doctor, and by some miracle, the baby was still hanging on and hanging in. He is 5 now. Life is awesome.There is a fine line between being strong and distant. Don't be distant.Again, I wish you the very best of luck during this absolutely devastating time of uncertainty.

 

[TheWalkmen]

Stay strong BK, not only for you but your wife.

Actually, I would be careful with this. I played things way and it almost ended my marriage.Shortly after Katrina, while we were moving from Mississippi, my wife had a miscarriage. That was very difficult. Later she was pregnant again and the pregnancy was going very badly- extreme bleeding, bad ultrasounds, etc.I tried to be strong for my daughter and strong for my wife. I rarely showed how much it was tearing me up. I just lay awake at night, and tried to hold things together at home and make things work at my job. My wife and I had a distance growing between us. I thought it was just the stress of the situation, but I seemed like it might be bigger.One night, my wife is bleeding buckets. We call the hospital. They tell us she is miscarrying, and we need to sit tight. We can see the doctor in the morning. Now, we need to lay down and be still.My wife and I hold each other, and she says "What are we going to do? I can't take this again? I don't how I will get through this?' I try to be strong, but I can't. I just cry. I cry for my lost baby, I cry for tha baby I'm losing, I cry for my wife and I cry for me. My wife looks at me stunned- She says "I never knew this bothered you so much. I have felt so alone in my grief." I said "I was trying to be strong for you and for Charlotte."She said, "I married you to share this life with me and for us to walk the road together. We have been walking separately lately"She was right. We went to the doctor, and by some miracle, the baby was still hanging on and hanging in. He is 5 now. Life is awesome.There is a fine line between being strong and distant. Don't be distant.Again, I wish you the very best of luck during this absolutely devastating time of uncertainty.

Great read and advice.

 

[Sand]

Most precarious times will be just before birth, as waiting the longest gives the best chance for survival. Anything premature would not be good. And then immediately after birth they will take her right to NICU and once stabilized into surgery. If she can get through that, things look at least survivable with a realistic possibility of a normal life

Thoughts and prayers. It is good to hear that the issues are treatable, though.

 

[Mrs. Rannous]

Best wishes for your precious baby and wife.

And for you.

 

[AAABatteries]

Good luck BK - good thoughts your way.

 

[glumpy]

Good post weasel. Good Luck BK. Sorry for all who have to go through this.

 

[Kal El]

My thoughts and prayers go out to you, BK. Just try to be understanding and available. The silver lining(there is one, surprisingly) is that they appear to know what the issues are, and how to fix them.

 

[Otis]

Stay strong BK, not only for you but your wife.

Actually, I would be careful with this. I played things way and it almost ended my marriage.Shortly after Katrina, while we were moving from Mississippi, my wife had a miscarriage. That was very difficult. Later she was pregnant again and the pregnancy was going very badly- extreme bleeding, bad ultrasounds, etc.I tried to be strong for my daughter and strong for my wife. I rarely showed how much it was tearing me up. I just lay awake at night, and tried to hold things together at home and make things work at my job. My wife and I had a distance growing between us. I thought it was just the stress of the situation, but I seemed like it might be bigger.One night, my wife is bleeding buckets. We call the hospital. They tell us she is miscarrying, and we need to sit tight. We can see the doctor in the morning. Now, we need to lay down and be still.My wife and I hold each other, and she says "What are we going to do? I can't take this again? I don't how I will get through this?' I try to be strong, but I can't. I just cry. I cry for my lost baby, I cry for tha baby I'm losing, I cry for my wife and I cry for me. My wife looks at me stunned- She says "I never knew this bothered you so much. I have felt so alone in my grief." I said "I was trying to be strong for you and for Charlotte."She said, "I married you to share this life with me and for us to walk the road together. We have been walking separately lately"She was right. We went to the doctor, and by some miracle, the baby was still hanging on and hanging in. He is 5 now. Life is awesome.There is a fine line between being strong and distant. Don't be distant.Again, I wish you the very best of luck during this absolutely devastating time of uncertainty.

Great read and advice.

x2. Having been through similar, this is good advice.

 

[Godsbrother]

Stay strong BK, not only for you but your wife.

Actually, I would be careful with this. I played things way and it almost ended my marriage.Shortly after Katrina, while we were moving from Mississippi, my wife had a miscarriage. That was very difficult. Later she was pregnant again and the pregnancy was going very badly- extreme bleeding, bad ultrasounds, etc.I tried to be strong for my daughter and strong for my wife. I rarely showed how much it was tearing me up. I just lay awake at night, and tried to hold things together at home and make things work at my job. My wife and I had a distance growing between us. I thought it was just the stress of the situation, but I seemed like it might be bigger.One night, my wife is bleeding buckets. We call the hospital. They tell us she is miscarrying, and we need to sit tight. We can see the doctor in the morning. Now, we need to lay down and be still.My wife and I hold each other, and she says "What are we going to do? I can't take this again? I don't how I will get through this?' I try to be strong, but I can't. I just cry. I cry for my lost baby, I cry for tha baby I'm losing, I cry for my wife and I cry for me. My wife looks at me stunned- She says "I never knew this bothered you so much. I have felt so alone in my grief." I said "I was trying to be strong for you and for Charlotte."She said, "I married you to share this life with me and for us to walk the road together. We have been walking separately lately"She was right. We went to the doctor, and by some miracle, the baby was still hanging on and hanging in. He is 5 now. Life is awesome.There is a fine line between being strong and distant. Don't be distant.Again, I wish you the very best of luck during this absolutely devastating time of uncertainty.

Damn you almost had me in tears just reading this. It is great to hear everything worked out for you. BK, hang tough. I am praying and hoping that all goes well for you and your family.

 

[The Z Machine]

Thinking about you and yours BK.

 

[The Hank]

Reading this makes me more emotional than it normallyshould! (my wife and I are pregnant with our 2nd right now, 17 weeks) -- Sending thoughts and prayers to you BK

 

[Ketamine Dreams]

BK, the other thing I would add is to find an extended support group that has dealt with the issues you and your child will face. I'm guessing there is likely an online community dedicated to your child's condition. I would seek this out and start finding out what you can. Best of luck... Keep hanging in there...

 

[Sweet J]

Update - no chromosomal issues. at least none that they can test for. instead we've got a superfecta of congenital defects. won't get into details but we're looking at a minimum of 3 major surgeries within 2 years. Possibility of as many as 6 if things do not go well. Most precarious times will be just before birth, as waiting the longest gives the best chance for survival. Anything premature would not be good. And then immediately after birth they will take her right to NICU and once stabilized into surgery. If she can get through that, things look at least survivable with a realistic possibility of a normal lifeoh, and my dog needs surgery and my business is failing.thanks a lot karma, you #####

Good luck, BK. There are a couple of us on this board that have daughters with congenital defects. The hardest time I had with it was before she was born, the uncertainty of what we were going to have to deal with. But after she was born, I was amazed at how lucky I was to have my daughter. You can do it, and will be a great dad!

 

[BuddyKnuckles]

update: Wife gave birth this weekend to a girl who, as expected, was immediately struggling to survive. Rushed to the specialists in another hospital and placed directly into ICU. We got all of 30 seconds with her before she had to go.

i wont go into the details but she has multiple internal defects, some life threatening but all treatable. She did come out with some unexpected physical defects on her face and in her throat. All of those complicating the plan for treating the internal issues.

They are running a full genetic lab...again, just to be certain they didnt miss anything. At this point my only true fear is they find something chromosomal that was missed. OR she has cognitive impairments not related to chromosome issues but still substantial enough to prevent a normal life. I can deal with the 10+ surgeries lying ahead of her/us. But if we find something cognitive and we know she'll never live an independent life...i'm not sure i could handle that

ETA, dog is ok and kid is alive, who cares about everything else...

 

[GroveDiesel]

Congrats on the little girl. Prayers for you and your family as you go through all the procedures ahead. May she survive and be a beautiful blessing for you guys the rest of your lives.

 

[STEADYMOBBIN 22]

I want to punch something.

 

[ffldrew]

Congrats Buddy - I bet you are a pretty tough customer and your daughter will be a fighter too!

Thoughts and prayers to you and your family!

 

[Frostillicus]

Congrats on the little girl. Prayers for you and your family as you go through all the procedures ahead. May she survive and be a beautiful blessing for you guys the rest of your lives.